My Choice: Developing a Workplace Disclosure Decision Aid and Resources for Working Parents of Children with Mental Health Disabilities

项目摘要/摘要 心理健康残疾(MHD)儿童的工作父母经历了与不可预测的 与照顾残疾儿童和工作场所灵活性实践相关的任务。这些与上下文无关的工作 这些因素加剧了这一弱势群体的就业损失。礼貌的污蔑， 被定义为对家庭的负面看法和相关的歧视性态度和行为 患有心理健康障碍的儿童成员导致父母谨慎控制孩子精神疾病的传播 健康信息。披露伴随着对隐私和保密的威胁，以及歧视和 报复。患有多动症儿童的父母在工作中确实会受到歧视和报复，比如被拒绝 升职和职业机会或被解雇，因为公众对 儿童心理健康的病因学1，2。这可能会导致MHD儿童的父母在以下问题上发生决策冲突 是否向同事和主管披露孩子的心理健康状况。向主管披露信息 可能会为MHD儿童的父母提供必要的灵活性和社会支持，但它也可能导致 歧视、报复和解雇。决策冲突会加剧这一群体的压力 易受伤害的工人，这可能导致较低的工作保留率和慢性健康问题。这样做的目的是 建议开发一种基于网络的工作场所交互式决策辅助工具，重点是为有工作的父母 具有MHD知识的儿童，以及通过(A)减少由背景因素引起的决策冲突的过程 关于是否、什么以及何时向其主管披露其残疾相关护理需求的结构化反馈 基于风险、收益和优先级设定活动的知识，提供个性化的信息披露反馈 偏好，以及(B)支持最高排序优先级的资源。目标1将确定4-5个相关的背景因素 到决定权冲突。Aim 2开发了一个基于工作场所网络的员工信息披露决策辅助原型，资源 在设计中融入了组织和管理因素。AIM 3将试行一名基于网络的工作场所员工 在一项事前-事后研究中披露决策援助和资源，该研究将评估是否使用援助和资源 减少员工之间的决策冲突和压力。实现拟议目标的预期结果 目标是为将要配对的工人开发个人水平干预的框架和原型 通过组织一级的干预，以领导层支持为目标，促进 易受伤害的工人。这个项目是创新的，因为开发和测试了一个工作场所Web应用程序决策辅助工具， 并为患有MHD儿童的父母提供教育资源，MHD儿童是一群需求得不到满足的工人 当前的职业安全和健康计划。该项目符合国家职业发展计划的目标7 研究议程，寻求通过进行高影响力的工作场所干预来促进工人的健康和安全 通过促进可持续的工作-非工作界面，减少工人的疾病，增加健康和福祉。

Project Summary/Abstract Working parents of children with mental health disabilities (MHD) experience chronic stress linked to the unpredictable tasks associated with caring for a child with a disability and workplace flexibility practices. These contextual non-work factors contribute to increased loss of employment among this group of vulnerable workers. Courtesy stigmatization, defined as negative perceptions, and associated discriminating attitudes and behaviors projected towards family members of children with mental health disorders leads parents to carefully control the dissemination of their child's health information. Disclosure comes with threats to privacy and confidentiality, and the potential for discrimination and retaliation. Parents of children with MHD do experience discrimination and retaliation at work, such as being denied promotions and career opportunities or getting fired from their jobs because of public misperceptions related to the etiology of children's mental health1, 2. This can result in decisional conflict for parents of children with MHD regarding whether or not to disclose their child's mental health status to coworkers and supervisors. Disclosure to supervisors may provide parents of children with MHD access to needed flexibility and social support but it can also lead to discrimination, retaliation and job termination. Decisional conflict can exacerbate stress among this group of vulnerable workers, which can lead to lower job retention rates and chronic health issues. The objective of this proposal is to develop a workplace web-based, interactive decision aid, focused on giving employed parents of children with MHD knowledge and a process to reduce decisional conflict caused by contextual factors through (a) structured feedback on whether, what and when to disclose their disability-related care demands to their supervisor based on knowledge of risks, benefits and priority-setting activities that provides individualized feedback on disclosure preferences, and (b) resources supporting the highest ranked priority. Aim 1 will identify 4-5 contextual factors related to decisional conflict. Aim 2 develops a workplace web-based employee disclosure decision aid prototype, resources that incorporate organizational and managerial factors in the design. Aim 3 will pilot a web-based workplace employee disclosure decision aid and resources in a before-after study that will assess whether using the aid and resources reduces decisional conflict and stress among employees. The expected outcome of accomplishing the proposed objective is to develop a framework for, and prototype of, an individual level intervention for workers that will be paired with an organizational level intervention that targets leadership support to promote the health and well-being of vulnerable workers. This project is innovative, because develops and tests a workplace web application decision aid, and provides educational resources to parents of children with MHD, a group of workers whose needs are unmet by current occupational safety and health programs. The project aligns with Objective 7 of the National Occupational Research Agenda as it seeks to promote worker health and safety by conducting high impact workplace interventions that reduce worker illness and increase health and well-being by promoting a sustainable work-nonwork interface.