SUDDEN DEATH IN THE YOUNG CASE REGISTRY (SDY) - DATA COORDINATING CENTER BIOSPECIMEN AND CONSENT ACTIVITIES (DCC)

青少年猝死病例登记处 (SDY) - 数据协调中心生物样本和知情同意活动 (DCC)

• 批准号: 10799531
• 负责人: MEGHAN FAULKNER
• 金额: $ 34.15万
• 依托单位: MICHIGAN PUBLIC HEALTH INSTITUTE
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-11-30 至 2023-11-29
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10799531
• 关键词: Authorization documentation; Award; Centers for Disease Control and Prevention (U.S.); Collaborations; Communities; Consent; Contracts; Data; Data Coordinating Center; Event; Family; Funding; Incidence; Knowledge; National Heart, Lung, and Blood Institute; National Institute of Neurological Disorders and Stroke; Prevention; Public Health; Registries; Resource Development; Risk Factors; Services; Sudden Death; Sudden infant death syndrome; United States National Institutes of Health; authority; data registry; research and development; sudden cardiac death; sudden unexpected death in epilepsy

"Sudden Death in the Young (SDY) is a tragic event with longstanding impact on families and communities. Although the causes of SDY are myriad, sudden unexpected infant death (SUID), sudden cardiac death and sudden unexpected death in epilepsy (SUDEP) are three examples that have inspired public health efforts at prevention. Yet fundamental gaps in knowledge about incidence, mechanisms, and risk factors for SDY limit the identification of effective prevention efforts. The Sudden Death in the Young (SDY) Case Registry is a collaboration between the National Institutes of Health (the National Heart, Lung, and Blood Institute (NHLBI) and the National Institute of Neurological Disorders and Stroke(NINDS)) and the Centers for Disease Control and Prevention (CDC)."

“年轻人猝死（SDY）是一个悲惨事件，对家庭产生长期影响， 社区.虽然SDY的原因很多，但婴儿意外猝死（SUID）， 心脏性死亡和癫痫猝死（SUDEP）是三个例子， 公共卫生预防工作。然而，关于发病率，机制， SDY的危险因素限制了有效预防措施的确定。年轻人猝死（SDY）病例登记是美国国立卫生研究院（国家心脏，肺和血液研究所（NHLBI）和国家神经疾病和中风研究所（NINDS））与疾病控制和预防中心（CDC）之间的合作。"