SUDDEN DEATH IN THE YOUNG CASE REGISTRY (SDY) - DATA COORDINATING CENTER BIOSPECIMEN AND CONSENT ACTIVITIES (DCC)

“青年猝死(SDY)是一件悲剧性的事件，对家庭和 社区。虽然SDY的原因有很多，但突然的婴儿意外死亡(SUID)，突然的 心脏病死亡和癫痫猝死(SUDEP)是三个鼓舞人心的例子 预防方面的公共卫生努力。然而，关于发病率、发病机制、 SDY的风险因素限制了有效预防措施的确定。青年猝死(SDY)病例登记是国家卫生研究院(国家心肺和血液研究所(NHLBI)和国家神经疾病和中风研究所(NINDS))和疾病控制和预防中心(CDC)之间的合作。

"Sudden Death in the Young (SDY) is a tragic event with longstanding impact on families and communities. Although the causes of SDY are myriad, sudden unexpected infant death (SUID), sudden cardiac death and sudden unexpected death in epilepsy (SUDEP) are three examples that have inspired public health efforts at prevention. Yet fundamental gaps in knowledge about incidence, mechanisms, and risk factors for SDY limit the identification of effective prevention efforts. The Sudden Death in the Young (SDY) Case Registry is a collaboration between the National Institutes of Health (the National Heart, Lung, and Blood Institute (NHLBI) and the National Institute of Neurological Disorders and Stroke(NINDS)) and the Centers for Disease Control and Prevention (CDC)."