SUDDEN DEATH IN THE YOUNG CASE REGISTRY (SDY) - DATA COORDINATING CENTER BIOSPECIMEN AND CONSENT ACTIVITIES (DCC)

“年轻人猝死（SDY）是一个悲惨的事件，对家庭有着长期的影响， 社区.虽然SDY的原因很多，但婴儿意外猝死（SUID）， 心脏性死亡和癫痫猝死（SUDEP）是三个例子， 公共卫生预防工作。然而，关于发病率，机制， SDY的危险因素限制了有效预防措施的确定。年轻人猝死（SDY）病例登记是美国国立卫生研究院（国家心脏，肺和血液研究所（NHLBI）和国家神经疾病和中风研究所（NINDS））与疾病控制和预防中心（CDC）之间的合作。"

"Sudden Death in the Young (SDY) is a tragic event with longstanding impact on families and communities. Although the causes of SDY are myriad, sudden unexpected infant death (SUID), sudden cardiac death and sudden unexpected death in epilepsy (SUDEP) are three examples that have inspired public health efforts at prevention. Yet fundamental gaps in knowledge about incidence, mechanisms, and risk factors for SDY limit the identification of effective prevention efforts. The Sudden Death in the Young (SDY) Case Registry is a collaboration between the National Institutes of Health (the National Heart, Lung, and Blood Institute (NHLBI) and the National Institute of Neurological Disorders and Stroke(NINDS)) and the Centers for Disease Control and Prevention (CDC)."