Sexual Orientation and Gender Identity Data Collection in Community Oncology Practice

社区肿瘤学实践中的性取向和性别认同数据收集

基本信息

  • 批准号:
    10831229
  • 负责人:
  • 金额:
    $ 10万
  • 依托单位:
  • 依托单位国家:
    美国
  • 项目类别:
  • 财政年份:
    2014
  • 资助国家:
    美国
  • 起止时间:
    2014-08-01 至 2024-07-31
  • 项目状态:
    已结题

项目摘要

ABSTRACT This application is being submitted in response to the Notice of Special Interest (NOSI) identified as NOT-CA-23-032. This supplement’s goal is to characterize organizational and provider-level factors that differentiate community oncology practices that collect and use sexual orientation and gender identity (SOGI) data from those that do not. Sexual and gender minority people (SGM; e.g., lesbian, gay, bisexual, transgender, intersex, etc.) have received limited cancer research attention, in part because large-scale research efforts are hampered by lack of consistent collection of SOGI data in oncology practices. Oncology practices may not collect SOGI data due to organizational- and provider-level barriers, even though SGM cancer patients often want to disclose SOGI, disclosure of SOGI is correlated with better outcomes among SGM patients, and multiple national organizations recommend that oncology practices collect SOGI data as part of efforts to reduce SGM disparities. The NCI Community Oncology Research Program (NCORP) is the ideal network to assess factors leading to SOGI data collection in diverse oncology settings. In a survey of 271 NCORP practices in 2022, we found that less than half of practices (42%) were consistently collecting SOGI data. In a separate survey of 257 oncology providers supported by the American Society of Clinical Oncology (ASCO), we found that collection of SOGI data at an oncology practice was associated with leadership support, resources for data collection, and belief in the importance of collecting SOGI data. More detailed exploration of barriers and facilitators to SOGI data collection is needed to inform SOGI implementation interventions across diverse community oncology practices. In this study, we will use the Consolidated Framework for Implementation Research (CFIR) to assess implementation factors such as the geopolitical context of laws where NCORP practices are located that influence SOGI data collection (“Outer Setting”), the characteristics and contexts of the practices and providers (“Inner Setting” and “Individuals”), and strategies for implementing SOGI data within each practice’s clinical flow (“Innovation" and “Processes”). Building on strong preliminary data, we will purposively sample 16 NCORP practices diverse in geography, practice setting, and current SOGI data collection. We will complete 3 in-depth interviews at each practice, one each with a direct care provider (e.g., oncologist, nurse, advanced practice provider), an administrator, and a person responsible for intake data (e.g., front desk staff, IT specialist). Our specific aims are: 1) To assess which implementation factors are difference-makers in the collection and use of SOGI data in community oncology using qualitative thematic analysis and Boolean-logic-based configurational analysis, 2) To explore how SOGI data are collected in community oncology practices, with the goal of collating practice-driven recommendations for data collection, and 3) To explore how SOGI data are used in community oncology practices, with the goal of informing a future intervention to improve cancer care for SGM patients.
摘要

项目成果

期刊论文数量(143)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)
PENTEC: Biodevelopmental Considerations in Pediatric Patients With Cancer and Childhood Cancer Survivors.
PENTEC:儿科癌症患者和儿童癌症幸存者的生物发育考虑因素。
Older patients' experiences following initial diagnosis of acute myeloid leukemia: A qualitative study.
  • DOI:
    10.1016/j.jgo.2022.08.017
  • 发表时间:
    2022-11
  • 期刊:
  • 影响因子:
    3
  • 作者:
    Abdallah, Maya;Kadambi, Sindhuja;Parsi, Meghana;Rai, Maitreyee;Mendler, Jason H.;Wittink, Marsha;Duberstein, Paul R.;Tsang, Mazie;Klepin, Heidi D.;Loh, Kah Poh
  • 通讯作者:
    Loh, Kah Poh
I'm not putting on that floral gown: Enforcement and resistance of gender expectations for transgender people with cancer.
  • DOI:
    10.1016/j.pec.2021.03.007
  • 发表时间:
    2021-10
  • 期刊:
  • 影响因子:
    3.5
  • 作者:
    Alpert, Ash B.;Gampa, Vikas;Lytle, Megan C.;Manzano, Charlie;Ruddick, Roman;Poteat, Tonia;Quinn, Gwendolyn P.;Kamen, Charles S.
  • 通讯作者:
    Kamen, Charles S.
Surgical readmissions: results of integrating pre-, peri- and postsurgical care.
手术再入院:整合术前、围术期和术后护理的结果。
  • DOI:
    10.1002/nop2.52
  • 发表时间:
    2016
  • 期刊:
  • 影响因子:
    2.3
  • 作者:
    Noyes,Katia;Baack-Kukreja,Janet;Messing,EdwardM;Schoeniger,Luke;Galka,Eva;Pan,Wei;Xueya,Cai;Fleming,FergalJ;Monson,JohnRt;Mohile,SupriyaG;Francone,Todd
  • 通讯作者:
    Francone,Todd
The effects of high-dose calcitriol and individualized exercise on bone metabolism in breast cancer survivors on hormonal therapy: a phase II feasibility trial.
高剂量骨化三醇和个体化运动对激素治疗乳腺癌幸存者骨代谢的影响:II 期可行性试验。
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KAREN M. MUSTIAN其他文献

KAREN M. MUSTIAN的其他文献

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{{ truncateString('KAREN M. MUSTIAN', 18)}}的其他基金

CANCAN - ROCHESTER
康康 - 罗切斯特
  • 批准号:
    10625145
  • 财政年份:
    2022
  • 资助金额:
    $ 10万
  • 项目类别:
CANCAN - ROCHESTER
康康 - 罗切斯特
  • 批准号:
    10845755
  • 财政年份:
    2022
  • 资助金额:
    $ 10万
  • 项目类别:
RCT for Mechanisms and Management of Sleep Utilizing Multicenter Clinical Oncology Network
利用多中心临床肿瘤学网络进行睡眠机制和管理的随机对照试验
  • 批准号:
    8990467
  • 财政年份:
    2015
  • 资助金额:
    $ 10万
  • 项目类别:
RCT for Mechanisms and Management of Sleep Utilizing Multicenter Clinical Oncology Network
利用多中心临床肿瘤学网络进行睡眠机制和管理的随机对照试验
  • 批准号:
    8831046
  • 财政年份:
    2015
  • 资助金额:
    $ 10万
  • 项目类别:
Yoga Versus CBT-I for Insomnia in Cancer Survivors and Biobehavioral Mechanisms
瑜伽与 CBT-I 治疗癌症幸存者失眠及生物行为机制
  • 批准号:
    8719865
  • 财政年份:
    2014
  • 资助金额:
    $ 10万
  • 项目类别:
URCC NCORP Research Base
URCC NCORP研究基地
  • 批准号:
    10240646
  • 财政年份:
    2014
  • 资助金额:
    $ 10万
  • 项目类别:
University of Rochester-NCORP Research Base
罗切斯特大学-NCORP研究基地
  • 批准号:
    9321863
  • 财政年份:
    2014
  • 资助金额:
    $ 10万
  • 项目类别:
URCC NCORP Research Base
URCC NCORP研究基地
  • 批准号:
    10247205
  • 财政年份:
    2014
  • 资助金额:
    $ 10万
  • 项目类别:
URCC NCORP Research Base
URCC NCORP研究基地
  • 批准号:
    10460279
  • 财政年份:
    2014
  • 资助金额:
    $ 10万
  • 项目类别:
URCC NCORP Research Base
URCC NCORP研究基地
  • 批准号:
    10673773
  • 财政年份:
    2014
  • 资助金额:
    $ 10万
  • 项目类别:

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