Meals at home for persons with late-stage dementia
晚期痴呆症患者的在家用餐
基本信息
- 批准号:6595101
- 负责人:
- 金额:$ 14.6万
- 依托单位:
- 依托单位国家:美国
- 项目类别:
- 财政年份:2003
- 资助国家:美国
- 起止时间:2003-04-01 至 2007-03-31
- 项目状态:已结题
- 来源:
- 关键词:aging behavioral /social science research tag body composition caregivers clinical research cognition dementia eating family nursing functional ability home health care human old age (65+) human subject longitudinal human study memory disorders nursing research nutrient intake activity quality of life videotape /videodisc
项目摘要
DESCRIPTION (provided by applicant): Dementia, an irreversible and progressive loss of memory and function, afflicts over 4 million Americans, is the 7th leading cause of death in those over age 65, and is a terminal illness with a survival time from diagnosis to death of 3.1 to 3.5 years. Late-stage care reflects palliative end-of-life strategies as persons lose all abilities. The last loss is the ability to self-feed; this responsibility must be assumed by a caregiver or the person with dementia would starve. However, the majority of persons with dementia receive care in the home (75%) from a caregiver who may not be prepared for this responsibility. Related to intrinsic and extrinsic changes seen as the disease progresses, an inability to adjust to either excessive or inadequate levels of stimuli at meals results in disruptive behaviors by the person with dementia that inhibit the caregiver's ability to assist and subsequently diminishes intake. Thus, the possibility of nutritional decline is very real with subsequent morbidity and premature mortality. Although description and testing of nutritional interventions occurred in nursing homes, no study could be found that described an intervention for in-home mealtime care. The proposed pilot study tests the efficacy and feasibility of a mealtime intervention-a training video with pamphlet-that can be used by in-home caregivers to accomplish two specific aims (outcomes): 1) decrease mealtime disruptive behaviors and 2) maintain or increase food intake. Mealtime behaviors will be measured using the EdFED-Q and nutritional status will be measured using BMI and a Three-Day Diet Recall. Using two groups of 20 dyads (caregivers and persons with late-stage dementia) (N=40), a 2 x 4 (treatment x time) randomized, controlled, between-group, repeated measure design will be used at 4 data points over 12 weeks (initial, 4, 8, and 12 weeks) to pilot test the intervention. Alpha will be set at .05 and hypotheses will be tested using ANOVA and MANOVA. Research assistants (undergraduate students) who will collect data at weeks 4, 8, and 12 will be blinded to treatment. This study has relevance for home health care providers, hospice staff, and support groups leaders as it may improve the quality of end-of-life care for persons with dementia. Findings from this pilot will be used to support the submission of an R01 concerning end-of-life dementia care at home.
描述(由申请人提供):痴呆症是一种不可逆转的、进行性的记忆和功能丧失,折磨着400多万美国人,是65岁以上人群的第七大死因,是一种终末期疾病,从诊断到死亡的生存时间为3.1至3.5年。当患者丧失所有能力时,晚期护理反映了临终关怀策略。最后丧失的是自我滋养的能力;这一责任必须由护理人员承担,否则痴呆症患者将会挨饿。然而,大多数痴呆症患者(75%)在家中接受照顾者的照顾,而照顾者可能没有准备好承担这一责任。随着疾病的进展,与内在和外在变化相关的是,无法适应饮食中过多或不足的刺激水平,导致痴呆症患者产生破坏性行为,抑制照顾者的帮助能力,随后减少摄入。因此,营养下降的可能性与随后的发病率和过早死亡是非常真实的。虽然营养干预的描述和测试发生在养老院,但没有研究发现描述了家庭用餐时间护理的干预。拟议的试点研究测试了一种用餐时间干预的有效性和可行性——一种带有小册子的培训视频——家庭护理人员可以使用它来实现两个具体目标(结果):1)减少用餐时间破坏行为;2)保持或增加食物摄入量。用餐时间行为将使用EdFED-Q来测量,营养状况将使用BMI和三天饮食回顾来测量。采用两组20人(护理者和晚期痴呆患者)(N=40),采用2 x 4(治疗x时间)随机、对照、组间、重复测量设计,在12周(初始、4、8和12周)的4个数据点对干预进行先导测试。Alpha值设为。05和假设将使用方差分析和方差分析进行检验。在第4、8和12周收集数据的研究助理(本科生)将对治疗进行盲法。本研究对家庭健康照护提供者、安宁疗护人员及支持团体领袖具有相关性,因为它可能改善失智症患者的临终照护品质。该试点的结果将用于支持提交关于居家临终痴呆症护理的R01。
项目成果
期刊论文数量(1)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)
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{{ truncateString('ELAINE J AMELLA', 18)}}的其他基金
Mealtime Partnerships for People with Dementia in Respite Centers and at Home
在暂托中心和家里为痴呆症患者提供进餐合作
- 批准号:
9311407 - 财政年份:2017
- 资助金额:
$ 14.6万 - 项目类别:
Feeding in Elderly Late-Stage Dementia: The FIELD Trial
老年晚期痴呆症的喂养:现场试验
- 批准号:
7846804 - 财政年份:2009
- 资助金额:
$ 14.6万 - 项目类别: