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Administrative Data Transfer Masking, Access, and Ethics Core

管理数据传输屏蔽、访问和道德核心

基本信息

批准号：
10774554
负责人：
STEVEN C MARCUS
金额：
$ 89.81万
依托单位：
UNIVERSITY OF MICHIGAN AT ANN ARBOR
依托单位国家：
美国
项目类别：
财政年份：
2023
资助国家：
美国
起止时间：
2023-09-30 至 2028-08-31
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/10774554
关键词：
Aging Alzheimer&apos s disease related dementia Area Assisted Living Facilities Automobile Driving Caring Censuses Certification Cessation of life Characteristics Clinical Collaborations Communities Data Data Collection Data Linkages Data Security Data Set Data Sources Dementia Discipline of Nursing Electronic Health Record Ensure Environment Ethics Family Goals Guidelines Health Personnel Health Resources Health Services Accessibility Health Status Healthcare Home Hospitals Individual Institution Investments Leadership Licensing Link Long-Term Care Measures Medicaid Medicare Medicare/Medicaid Nurses Nursing Homes Outcome Patient-Focused Outcomes Patients Persons Physicians Policies Policy Maker Population Privacy Process Process Assessment Provider Public Health Quality of Care Research Research Personnel Resources Respondent Role Source Spouses Surveys Training Variant Work care delivery care outcomes care providers clinical care community based service community setting data access data exchange data infrastructure data privacy data resource dementia care demographics health care service utilization improved insight insurance claims patient home care practice setting preservation privacy protection

项目摘要

ABSTRACT: Administrative Data Transfer, Masking, Access, and Ethics Core The National Dementia Workforce Study (NDWS) will be launched by a national team of experts in clinical care of persons living with dementia, survey research, and health workforce research. The goal of the NDWS data infrastructure is to allow researchers and policymakers to ask and answer scientific questions to help build the workforce of clinicians and other professional care providers required by the growing population of persons living with dementia in the U.S. The Administrative Data Transfer, Masking, Access, and Ethics Core will oversee linking of the NDWS survey data with other sources of administrative and secondary data in combinations that can maximize scientific insights while still preserving respondent and facility privacy. Specifically, the Administrative Data Transfer, Masking, Access, and Ethics Core will: 1) Use Medicare, Medicaid, and assessment data to derive process and quality outcomes to characterize care delivery to PLWD for the clinicians, facilities, and agencies in each survey of the NDWS; 2) Prepare administrative and other secondary information sources in data sets that can be linked with NDWS respondent survey data to gain further insights into factors that influence the workforce as well as PLWD care outcomes; 3) Establish guidelines for restricted data access to safeguard respondent privacy.

摘要：管理数据传输、屏蔽、访问和道德核心全国痴呆症劳动力研究(NDWS)将由一个国家临床护理专家团队发起对痴呆症患者的研究、调查研究和卫生人力研究。NDWS数据的目标是基础设施是允许研究人员和政策制定者提出和回答科学问题，以帮助建设不断增长的人口所需的临床医生和其他专业护理人员队伍美国痴呆症患者的生活管理数据传输、屏蔽、访问和伦理核心将监督NDWS调查数据与其他行政和次要数据来源之间的联系可以最大限度地提高科学洞察力的组合，同时仍能保护被调查者和设施的隐私。具体地说，管理数据传输、屏蔽、访问和道德核心将：1)使用Medicare，医疗补助和评估数据，以得出过程和质量结果，以表征向PLWD提供的护理在NDWS的每次调查中为临床医生、设施和机构；2)准备行政和其他数据集中的次要信息源，可与NDWS受访者调查数据相关联以获得对影响劳动力和PLWD护理结果的因素的进一步洞察；3)建立关于限制数据访问以保护受访者隐私的指导方针。