300.11-PEDI GENETIC COND- 25TH ANNUAL CONF ON MARFAN SYNDROME & RELATED DISORDERS

一页，并必须包含适合分发给 公开的。它应该是对项目的独立描述，并应包含将采用的目标和方法的说明。 它应该对在相同或相关领域工作的其他人提供信息，并在可能的情况下为技术人员所理解- 我吃了通俗读物。本摘要不得包含任何专有/机密信息。 *请单击添加附件按钮以完成此条目。 8372-MayoAbstract.pdf 追踪编号：GRANT00424580 附件 项目抽象添加附件 文件名Mime类型 8372-MayoAbstract.pdf应用程序/pdf 追踪编号：GRANT00424580 项目摘要 第25届马凡综合征及相关疾病年会将举行 2009年8月6日至9日在明尼苏达州罗切斯特市的梅奥诊所与 国家马凡基金会(NMF)。这次会议为期四天，内容包括 60多个医学和心理社会讲习班和教育方案 成人、青少年和儿童；医疗专业人员继续医学教育；以及 NMF专业顾问委员会(PAB)。梅奥马凡诊所的医生 罗切斯特诊所、PAB成员和特邀嘉宾将介绍项目和工作人员 8月7日星期五，在罗切斯特梅奥诊所举行的为期一天的患者健康评估交易会， 2009年。梅奥诊所罗切斯特是美国和加拿大参加 阿替洛尔与氯沙坦对马凡大鼠主动脉生长影响的临床研究 病人。这项研究由国家心肺血液研究所资助， 由儿科心脏网络在国家马凡的支持下管理 基金会，并向6个月至25岁的主动脉病变患者开放 扩张。此外，梅奥诊所罗切斯特是美国、欧洲、 加拿大和拉丁美洲参与了一项前瞻性观察性研究 比较马凡综合征患者行主动脉瓣手术的结果。 这项研究由国家马凡基金会和贝勒学院赞助 医疗中心，后者也是数据协调中心。 项目叙事档案(S) 文件名MimeType 6266-Mandatory_MayoProjectNarative.pdf应用程序/pdf 2751-Workshop s.pdf应用程序/pdf 追踪编号：GRANT00424580

one page and must contain a summary of the proposed activity suitable for dissemination to the public. It should be a self-contained description of the project and should contain a statement of objectives and methods to be employed. It should be informative to other persons working in the same or related fields and insofar as possible understandable to a technically liter- ate lay reader. This Abstract must not include any proprietary/confidential information. * Please click the add attachment button to complete this entry. 8372-MayoAbstract.pdf Tracking Number: GRANT00424580 Attachments ProjectAbstractAddAttachment File Name Mime Type 8372-MayoAbstract.pdf application/pdf Tracking Number: GRANT00424580 PROJECT ABSTRACT The 25th Annual Conference on Marfan Syndrome and Related Disorders will be held August 6-9, 2009 at the Mayo Clinic in Rochester, Minnesota in collaboration with the National Marfan Foundation (NMF). The conference is a four-day event that includes more than sixty medical and psychosocial workshops and educational programs for adults, teens and children; a CME for medical professionals; and a formal meeting of the NMF Professional Advisory Board (PAB). Physicians from the Marfan Clinic at Mayo Clinic Rochester, PAB members and invited guests will present the programs and staff a one-day health fair for patient assessment at Mayo Clinic Rochester on Friday, August 7, 2009. Mayo Clinic Rochester is one of 18 sites in the U.S. and Canada participating in a clinical trial studying the effects of atenolol vs. losartan on aortic growth in Marfan patients. The study is being funded by the National Heart, Lung and Blood Institute and managed by the Pediatric Heart Network with support from the National Marfan Foundation and is open to affected individuals ages 6 months to 25 years with aortic dilation. In addition, Mayo Clinic Rochester is one of 20 study sites in the U.S., Europe, Canada and Latin America participating in a prospective observational study that compares the outcomes of the aortic valve surgeries in patients with Marfan syndrome. The study is sponsored by the National Marfan Foundation and Baylor College of Medicine, the latter also serving as the Data Coordination Center. Project Narrative File(s) FileName MimeType 6266-Mandatory_MayoProjectNarrative.pdf application/pdf 2751-Workshops.pdf application/pdf Tracking Number: GRANT00424580