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中文摘要
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芯A 行政和生物统计核心(核心A)的总体目标是提供行政和生物统计核心(核心B)。 为DAB MRRC的研究人员提供支持服务,包括: 管理实现千年发展目标所需的财政和人事活动, MRRC和研究核心;外部科学咨询委员会,为 MRRC;在亚拉巴马开展MRDD监测研究的生物统计学支持,包括 为进一步的遗传学研究确定家族簇,并为MRRC提供生物统计学支持 核心用户;促进中心范围内的合作,旨在提高MRRC的身份; 维持一个有效的网站,以促进与有关方面更广泛地交流想法和调查结果 从业人员和服务提供者、倡导者和消费者、政策制定者和决策者群体, 公众;向调查人员提供高质量的媒体支助服务,主要是介绍调查结果 在科学会议和期刊上发表;支持对确定 该委员会的未来方向,以及提高调查人员对外部资金的竞争力; 技术援助和其他支助服务, 资助MRDD研究和培训,包括协助规划和准备赠款;吸引 新的研究人员到MRRC和精神发育迟滞和神经发育障碍领域, 包括与相关部门联合招聘;以及与其他部门的数据共享和通信链接 MRRC、MRRC网络之外的其他机构的其他研究人员以及NICHD 社区
英文摘要
Core A The overall objective of the Administrative and Biostatistics Core (Core A) is to provide administrative support services to investigators at the DAB MRRC including: scientific and administrative leadership for the MRRC as a whole; management of the fiscal and personnel activities necessary to achieve the objectives of the MRRC and the research cores; an external Scientific Advisory Committee to provide scientific advice for the MRRC; development of Biostatistics support for MRDD surveillance studies within Alabama including the identification of familial clusters for further genetic study and providing biostatistical support to MRRC Core users; facilitation of center-wide collaborations designed to increase the identity of the MRRC; maintenance of an effective website to facilitate sharing of ideas and findings more generally with relevant groups of practitioners and service providers, advocates and consumers, policy- and decision-makers, and the general public; high quality, media support services to investigators primarily for presentation of findings at scientific meetings and in journals; support for pilot research and feasibility studies critical for determining the MRRC's future direction and for increasing competitiveness of investigators for outside funding; technical assistance and other support services to collaborative teams of MRRC investigators seeking funding for MRDD research and training, including assistance in planning and preparing grants; attraction of new investigators to the MRRC and to the field of mental retardation and neurodevelopmental disabilities, including joint recruitment with relevant departments; and data sharing and communications links to other MRRC's, other investigators at other institutions outside the MRRC network and with the NICHD community.
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Rett Syndrome (RTT)
Angelman Syndrome (AS)
Training and Career Development Component
RDCRC Administrative Unit
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