CLINICAL OUTCOME MEASURES IN FRIEDREICH'S ATAXIA

弗里德赖希共济失调的临床结果测量

• 批准号: 7604880
• 负责人: Katherine Dianne Mathews
• 金额: $ 0.07万
• 依托单位: UNIVERSITY OF IOWA
• 依托单位国家: 美国
• 财政年份: 2007
• 资助国家: 美国
• 起止时间: 2007-03-01 至 2007-09-16
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7604880
• 关键词: Clinical; Computer Retrieval of Information on Scientific Projects Database; Disease; Friedreich Ataxia; Funding; Grant; Impairment; Individual; Institution; Measures; Neurologic; Outcome Measure; Patients; Performance; Purpose; Research; Research Personnel; Resources; Source; Therapy Clinical Trials; Time; United States National Institutes of Health; design; health related quality of life

This subproject is one of many research subprojects utilizing the resources provided by a Center grant funded by NIH/NCRR. The subproject and investigator (PI) may have received primary funding from another NIH source, and thus could be represented in other CRISP entries. The institution listed is for the Center, which is not necessarily the institution for the investigator. The purpose of this study is to validate clinical outcome measures in individuals with Friedreich Ataxia (FA). The lack of reliable and sensitive measures is the limiting factor in initiation of therapeutic trials in FA. The aims of the study are: 1) neurologic impairment in FA can be measured through quantitative performance measures; 2) health-related quality of life measures will correlate significantly with clinical measures of disease activity designed in Aim 1; 3) simple performance measures of neurologic impairments will be responsive to change over time in patients with FA.

这个子项目是众多研究子项目之一