Core A-ADMINISTRATIVE AND CLINICAL ACQUISITION CORE

该核心单位位于血液研究所的行政办公室内，该研究所是 威斯康星州东南部血液中心BRI包括儿科的办公室和实验室， MCW儿科系血液学系，是综合中心的所在地 治疗出血性疾病这个行政核心将协调这一多方面的方案，包括 两个主要组成部分。 一是为项目负责人及其合作研究者提供行政协调和科学领导。 它将利用一个执行委员会和一个外部咨询委员会来指导这项工作。 如在本程序项目的介绍中更详细地描述的功能。一年两次会议， 为Pi's和co-Pi's以及主要临床中心的主任组织。其中之一将是 一个简短的半天会议，与美国血液学会会议一起举行， 每年12月，第二次将在密尔沃基举行为期两天的研究者小组会议 这个PPG。 该管理核心的第二个主要任务是提供一个中心站点，用于接收来自 主要临床中心及其数据录入表。核心A将监督数据录入、质量控制 以及验证来自主要（和次要）临床中心的数据。这些将单独描述。

This core unit is located within the administrative offices at the Blood Research Institute, the research arm of the Blood Center of Southeastern Wisconsin. The BRI includes the offices and laboratories of the pediatric hematology faculty of the Department of Pediatrics at MCW, and is the location of the Comprehensive Center for Bleeding Disorders. This administrative core will coordinate this multifaceted program and consists of two major components. The first is providing the administrative coordination scientific leadership to the project leaders and their coinvestigators. It will utilize both an Executive Committee and an External Advisory Committee to guide this function as described in greater detail in the introduction to this program project. Two meetings a year will be organized for the Pi's and co-Pi's as well as the Directors of the primary clinical centers. One of these will be a brief one half-day meeting held in conjunction with the American Society of Hematology meeting in December of each year and the second will be a two day meeting held in Milwaukee for the investigator group of this PPG. A second major task of this administrative core is to provide a central site for receiving patient samples from the Primary Clinical Centers as well as their data entry forms. Core A will oversee data entry, quality control and validation of data from the primary (and secondary) clinical centers. These will be described separately.