SLE and Employment: The Impact of Individual and Contextual Factors

拟议的项目，“SLE和就业：个人和背景因素的影响”有两个 主要目的：描述SLE患者自诊断之年起的工作动态（平均 研究开始前13年）至2010年，并评估个人特征的影响， SLE（SLE的性质、总体健康状况、人口统计学和工作史）和患者的特征 工作、居住和宏观经济环境对就业结果的影响。值得注意的是，该项目将 评估特定工作便利对SLE工作成果的影响。 该项目的主要数据来源将是狼疮结局研究（LOS）。在洛杉矶，大约1，175 SLE患者正在通过由训练有素的 调查工作者，通过对医疗图表和分析的全面审查， 口腔DMA和/或血液样本中的生物材料。LOS数据将通过以下方式得到增强： 关于LOS参与者当地社区性质的背景信息， 在人口普查区组一级的访谈数据，由当地劳动力市场的数据，从人口普查局 劳工统计，以及来自同一来源的关于特定职业和 在整个国家的工业。此外，人口普查局目前的三月补充报告 人口调查将用于制定劳动力参与模型。开发的模型 然后将CPS中的数据应用于服务水平数据，以提供 SLE患者在存在或不存在疾病的情况下。 该项目应提供最系统的估计SLE的工作成果和因素 影响这些结果。这些信息应有助于SLE患者了解他们的工作经历 并应协助卫生保健提供者和康复专业人员制定战略， 工作残疾率。

The proposed project, "SLE and Employment: The Impact of Individual and Contextual Factors" has two principal aims: to describe the work dynamics of persons with SLE from the year of diagnosis (an average of 13 years before the study began) through 2010 and to assess the impact of characteristics of individuals with SLE (nature of their SLE, overall health status, demographics, and work history) and characteristics of the work, residential, and macroeconomic environment on employment outcomes. Of note, the project will assess the impact of specific job accommodations on the work outcomes of SLE. The principal data source for the project will be the Lupus Outcomes Study (LOS). In the LOS, about 1,175 persons with SLE are being followed through annual structured telephone interviews conducted by trained survey workers, augmented by data on the SLE from a comprehensive review of medical charts and analysis of biological material from buccal DMA and/or blood samples. The LOS data will be augmented by contextual information on the nature of the local communities of the LOS participants matched to the interview data at the level of the Census block group, by data on the local labor market from the Bureau of Labor Statistics, and by data from the same source on the demand for labor in specific occupations and industries in the nation as a whole. In addition, the March Supplement to the Census Bureau's Current Population Survey (CPS) will be used to develop models of labor force participation. The models developed in the CPS will then be applied to the LOS data to provide estimates of the labor force participation of persons with SLE in the presence or absence of their illness. The project should provide the most systematic estimates of the work outcomes of SLE and of the factors affecting those outcomes. The information should help persons with SLE understand their work prognoses and should assist health care providers and rehabilitation professionals in devising strategies to reduce the prevalence of work disability.