SLE and Employment: The Impact of Individual and Contextual Factors

拟议的项目“SLE与就业：个人和背景因素的影响”有两个 主要目标：描述系统性红斑狼疮患者从确诊之年起的工作动力(平均 在研究开始前13年)到2010年，并评估患有 系统性红斑狼疮(其系统性红斑狼疮的性质、总体健康状况、人口统计和工作历史)和 工作、居住和宏观经济环境对就业结果的影响。值得注意的是，该项目将 评估特定工作安排对系统性红斑狼疮患者工作成果的影响。 该项目的主要数据来源将是狼疮成果研究(LOS)。在洛杉矶，大约有1175人 系统性红斑狼疮患者正在接受由Traded进行的年度结构化电话采访 调查人员，通过对医疗图表和分析的全面审查获得关于SLE的数据 从口腔DNA和/或血液样本中提取生物材料。LOS数据将通过以下方式扩充 与LOS参与者的当地社区性质相匹配的上下文信息 人口普查组一级的访谈数据，由美国统计局提供的当地劳动力市场数据 劳工统计，以及来自同一来源的关于特定职业的劳动力需求和 整个国家的工业。此外，人口普查局现行的3月份补编 将使用人口调查(CPS)来建立劳动力参与的模型。开发的模型 然后将CPS中的数据应用于LOS数据，以提供对劳动力参与率的估计 有病或无病的系统性红斑狼疮患者。 该项目应对系统性红斑狼疮的工作成果和因素提供最系统的估计。 影响这些结果。这些信息应该帮助SLE患者了解他们的工作预测 并应协助保健提供者和康复专业人员制定策略，以减少 工作残疾的流行率。

The proposed project, "SLE and Employment: The Impact of Individual and Contextual Factors" has two principal aims: to describe the work dynamics of persons with SLE from the year of diagnosis (an average of 13 years before the study began) through 2010 and to assess the impact of characteristics of individuals with SLE (nature of their SLE, overall health status, demographics, and work history) and characteristics of the work, residential, and macroeconomic environment on employment outcomes. Of note, the project will assess the impact of specific job accommodations on the work outcomes of SLE. The principal data source for the project will be the Lupus Outcomes Study (LOS). In the LOS, about 1,175 persons with SLE are being followed through annual structured telephone interviews conducted by trained survey workers, augmented by data on the SLE from a comprehensive review of medical charts and analysis of biological material from buccal DMA and/or blood samples. The LOS data will be augmented by contextual information on the nature of the local communities of the LOS participants matched to the interview data at the level of the Census block group, by data on the local labor market from the Bureau of Labor Statistics, and by data from the same source on the demand for labor in specific occupations and industries in the nation as a whole. In addition, the March Supplement to the Census Bureau's Current Population Survey (CPS) will be used to develop models of labor force participation. The models developed in the CPS will then be applied to the LOS data to provide estimates of the labor force participation of persons with SLE in the presence or absence of their illness. The project should provide the most systematic estimates of the work outcomes of SLE and of the factors affecting those outcomes. The information should help persons with SLE understand their work prognoses and should assist health care providers and rehabilitation professionals in devising strategies to reduce the prevalence of work disability.