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中文摘要
翻译
美洲印第安人(Al)在美国遭受一些与癌症相关的最大健康差异,并且是最不可能参与医学研究的人之一。参与的障碍包括对医疗系统的不信任,获得护理的机会有限,以及文化上适当的资源有限。人工智能社区中有效的研究项目通常依赖于社区和学术组织的协作网络,使用基于社区的参与式研究(CBPR)方法。过去已经建立了一个强大的以人工智能社区为基础的CBPR团队,致力于减轻他们不成比例的疾病负担
英文摘要
American Indians (Al) suffer some of the greatest cancer-related health disparities in the United States and are some of the least likely to participate in medical research. Barriers to participation include mistrust of the medical system, limited access to care, and limited culturally-appropriate resources. Effective research programs in Al communities often rely on a collaborative network of community and academic organizations, using community-based participatory research (CBPR) methods. A strong CBPR team based in the Al community and focused on reducing their disproportionate burden of disease has developed over the past four years at the University of Kansas Medical Center, the Program in American Indian Community Health. Our partnership with community organizations has been so successful that we have now formally created an alliance of partners, including tribes, community organizations, academic institutions, and corporations/government agencies, the American Indian Health Research and Education Alliance (AIHREA). We share a long-term goal of reducing health disparities in Al communities through quality participatory research. The primary goals of the Community Engagement Core are to ensure fidelity to the principles of CBPR and to ensure the rigor and validity of the qualitative research conducted through the CPC-AIHD. Our secondary goal is to ensure dissemination of research results, both positive and negative, to the community. The Community Engagement Core will address the following specific aims: 1) To monitor research conducted within the CPC-AIHD for adherence to the principles of CBPR; 2) To maintain longitudinal CABs to guide center activities; 3) To create a newsletter and an interactive web site for community members and researchers to communicate, disseminate information, and aid in recruitment; 4) To hold community research forums annually to bring researchers and community members together; 5) To bring 4 high school students, 4 undergraduate college students, and 4 graduate/medical students into research through our youth ambassadors programs in each year; 6) To provide rigorous qualitative data collection and analysis for all studies conducted in the AlHREA-CCR; and 7) To provide guidance on qualitative and formative research techniques and study design to all researchers associated with the CPC-AIHD.
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Assessing Telephone All Nations Breath of Life for Efficacy
  • 批准号:
    10205860
  • 项目类别:
  • 资助金额:
    $71.11万
  • 财政年份:
    2020
  • 负责人:
    CHRISTINE Makosky DALEY
  • 依托单位:
Assessing Telephone All Nations Breath of Life for Efficacy
  • 批准号:
    10668295
  • 项目类别:
  • 资助金额:
    $64.73万
  • 财政年份:
    2020
  • 负责人:
    CHRISTINE Makosky DALEY
  • 依托单位:
Assessing Telephone All Nations Breath of Life for Efficacy
  • 批准号:
    10240739
  • 项目类别:
  • 资助金额:
    $67.02万
  • 财政年份:
    2020
  • 负责人:
    CHRISTINE Makosky DALEY
  • 依托单位:
Assessing Telephone All Nations Breath of Life for Efficacy
  • 批准号:
    10450155
  • 项目类别:
  • 资助金额:
    $65.94万
  • 财政年份:
    2020
  • 负责人:
    CHRISTINE Makosky DALEY
  • 依托单位:
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