Roybal Translational Research Center to Promote Context-Specific Caregiving of Community-Dwelling Persons Living with Alzheimer's Disease or Related Disorders

皇家转化研究中心将促进对患有阿尔茨海默病或相关疾病的社区居民进行具体护理

• 批准号: 9810877
• 负责人: Ken W Hepburn
• 金额: $ 34.15万
• 依托单位: EMORY UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-09-15 至 2024-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9810877
• 关键词: Address; Alzheimer' s Disease; Award; Basic Science; Caregiver support; Caregivers; Center for Translational Science Activities; Clinical; Collaborations; Communities; Consumer Participation; Contracts; Country; Creativeness; Development; Discipline of Nursing; Disease; Documentation; Education; Educational workshop; Elderly; Ensure; Evaluation; Gap Junctions; Goals; Hand; Heterogeneity; Human Resources; Institution; Interest Group; Intervention; Leadership; Letters; Link; Mentors; Modeling; National Institute on Aging; Newsletter; Outcome; Output; Paper; Persons; Pilot Projects; Play; Process; Reporting; Research; Research Personnel; Role; Schedule; School Nursing; Science; Services; Structure; Testing; Time; Travel; United States National Institutes of Health; Valverde; Voice; Work; base; care recipients; caregiving; design; dissemination research; effective intervention; experience; informal caregiver; informal caregiving; innovation; interest; intervention program; meetings; member; public health research; research data dissemination; senior faculty; success; successful intervention; symposium; therapy development; webinar

Abstract. The goal of our proposed Roybal Center for Translational Research to Promote Context-Specific Caregiving Mastery for Informal Caregivers of Community-Dwelling Persons Living with Alzheimer's Disease or Related Disorders is to identify, support, and advance intervention programs that effectively address caregiving challenges across a broad range of heterogeneous caregiving contexts and to strengthen informal caregiving mastery within these contexts. The Administrative Core will play three key roles. It will play a development role in implementing and managing structures and processes that ensure an ample flow of pilot intervention proposals grounded in genuine participatory dialogue with caregiver and care recipient consumers, the effective selection support, oversight, and stage advancement of pilot interventions, and the advancement of the science of intervention development. The Core will coordinate the activities of the two national Research Interest Groups (RIG) that will be pivotal in stimulating pilot ideas and drawing interest to the Center's theme of the need to develop interventions targeted to the heterogeneity of caregiving contexts. It will be responsible for quarterly newsletters and webinars highlighting Center pilots and the discourse emanating from the RIGs and the implementation of the pilots. The Core will also be the nexus for all of the linkages the Center will maintain and expand over the course of the project, building on the Dual-PI's linkages with the NIA Alzheimer's Disease Centers and the VA Geriatric Research, Education, and Clinical Centers as well as the documented links to other national centers from which ideas and pilot researchers are expected to be drawn. The Core will play a management role. Supported by the pre- and post-award capabilities of Emory's Nursing and Public Health Research Administration Service, the Core will assume the central management role in the Center, providing administrative and financial oversight to the Pilot Core and the Center's pilot projects to enable pilot project investigators to advance successful interventions to the next stage of development. It will coordinate the activities of the Consumer, External, and Local Advisory Boards and the Center's Design Studio, and it will be responsible for the scheduling, conduct, and documentation of the variety of meetings, including an Annual Meeting, meant to keep the Center and the pilots on track. In this role, the Administrative Core will also provide linkage and coordination with the National Institute on Aging and with the Roybal Coordinating Center, ensuring timely reports, collaboration, and participation in Roybal Center national meetings. The Administrative Core will play a key role in activities designed to promote the sustainability of the Center. It will be responsible for the conduct and analysis of the Center's evaluation plan and for taking any steps identified by the evaluation to advance Center success. Finally, the Administrative Core will drive Center dissemination activities, organizing pre-conference workshops at national meetings, promoting reports of pilot findings, and developing annual White Papers on the advancement of the science of intervention development.

抽象的。我们提议的罗伊巴尔翻译研究中心的目标是促进特定于语境的 阿尔茨海默病或阿尔茨海默病社区居民非正式照顾者的护理掌握 相关障碍是识别、支持和推进有效解决照看问题的干预计划 跨越各种不同照料环境的挑战，并加强非正式照料 在这些背景下掌握。行政核心将发挥三个关键作用。它将扮演一个发展的角色 在实施和管理确保试点干预充分流动的结构和流程方面的作用 建议的基础是与照顾者和受照顾者消费者进行真正的参与性对话， 对试点干预措施的有效选择、支持、监督和阶段推进，以及推进 干预发展的科学。该中心将协调两个国家研究中心的活动 利益集团(RIG)将在激发试点想法和吸引对中心主题的兴趣方面发挥关键作用 需要针对照料环境的异质性制定干预措施。它将负责 季度通讯和网络研讨会强调中心飞行员和来自钻井平台和 试点工作的实施。核心也将是中心将保持的所有联系的纽带 并在项目过程中扩大，建立在双重PI与NIA阿尔茨海默病的联系上 中心和退伍军人事务部老年研究、教育和临床中心，以及到 其他国家中心，预计将从这些中心获得想法和试点研究人员。核心将扮演一个 管理角色。由埃默里的护理和公共卫生获奖前和获奖后能力支持 研究管理服务，核心将承担中心的中央管理角色，提供 对试点核心和中心的试点项目进行行政和财务监督，以使试点项目成为可能 研究人员将成功的干预措施推进到下一个开发阶段。它将协调 消费者、外部和地方咨询委员会以及中心的设计工作室的活动，它将是 负责各种会议的安排、实施和记录，包括年度会议 会议，意在让中心和飞行员保持在正轨上。在这一角色中，行政核心还将 与国家老龄问题研究所和罗伊巴尔协调中心建立联系和协调， 确保及时报告、协作和参与罗伊巴尔中心的全国会议。行政部门 CORE将在旨在促进中心可持续性的活动中发挥关键作用。它将对此负责 进行和分析该中心的评价计划，并采取 评估以促进中心的成功。最后，行政核心将推动中心传播 活动，在国家会议上组织会前讲习班，促进试点结果报告，以及 制定关于干预发展科学进展的年度白皮书。