National Database of Patients with Atrioventicular Septal Defects

房室间隔缺损是一组儿童心脏疾病，影响心脏的所有四个腔室和两个瓣膜。这些孩子不做手术通常活不过30年。手术提供了生命的机会，但从长远来看，多达四分之一的儿童需要进一步手术。我们正在建立一个澳大利亚数据库，以确定如何最好地减少这些并发症的风险、这些儿童的负担和社会成本。

Atrioventricular septal defects are a group of childhood heart diseases affecting all four chambers of the heart and two of the valves. These children do not normally survive past 30 years without surgery. Surgery offers a chance at life, but in the long term up to a quarter of children need further surgery. We are developing an Australian database to determine how best to reduce the risk of these complications, the burden on these children and the cost to society.