Outreach, Recruitment, and Engagement Core

外展、招聘和参与核心

• 批准号: 10661543
• 负责人: Linda K. Ko
• 金额: $ 49.98万
• 依托单位: UNIVERSITY OF WASHINGTON
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-06-01 至 2025-04-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10661543
• 关键词: Address; Advocate; Age; Alaska Native; Alzheimer' s Disease; Alzheimer' s disease related dementia; American; American Indians; Area; Articulation; Awareness; Brain; Caregivers; Caring; Characteristics; Clinic; Clinical; Clinical Trials; Cognitive; Collaborations; Color; Communities; County; Dementia; Diagnosis; Dimensions; Disease; Disparity; Education; Education and Outreach; Ensure; Equitable healthcare; Ethnic Origin; Ethnic Population; Event; Friends; General Population; Geography; Goals; HIV; Health; Health Promotion; Impaired cognition; Incidence; Individual; Journals; Knowledge; Latinx; Learning; Malignant Neoplasms; Medical center; Memory; Mental Health; Minority; Mission; Modeling; Native-Born; Neighborhoods; Newsletter; Nonprofit Organizations; Not Hispanic or Latino; Participant; Patients; Persons; Population; Prevalence; Process; Provider; Publications; Race; Readiness; Recommendation; Research; Research Personnel; Resources; Risk Factors; Science; Social Functioning; Stigmatization; Subgroup; Surveys; Target Populations; Tribes; Underrepresented Populations; Universities; Vietnamese; Washington; Wellness Center; Work; biological heterogeneity; care seeking; clinical heterogeneity; cognitive function; cohort; community organizations; dementia risk; eligible participant; experience; improved; innovation; low socioeconomic status; metropolitan; native elder; novel strategies; outreach; prevent; programs; racial population; recruit; sex; social; social stigma; urban Native American; volunteer; web site

(ADRD); however, incidence, prevalence, risk factors, and clinical features can vary by race and ethnicity. Evaluating and addressing these disparities is urgent since non-Caucasian racial or ethnic groups will make up 45% of Americans ages 65+ by the year 2060. Ensuring recruitment of appropriately diverse research participants is a formidable challenge, and ADRD studies often lag behind such goals. These shortfalls are likely due to a confluence of barriers, including “research readiness” of target populations, lack of ADRD knowledge, and associated stigma. In the Outreach Recruitment and Engagement (ORE) Core, we apply innovative strategies to achieve three overarching goals centered on (1) recruiting and retaining a well-defined cohort of research participants; (2) serving as the primary regional resource for consumable, accurate, and culturally-informed information on ADRD diagnosis, management, and research opportunities; and (3) increasing research readiness of underrepresented groups (URGs) through evidence- and experienced-based outreach and education. We share ADRD educational information and resources via our website (www.uwadrc.org), bi-annual magazine Dimensions, and monthly e-Newsletter. At the University of Washington Alzheimer’s Disease Research Center, we have a special focus on American Indian / Alaska Native (AI/AN) engagement, a historically gravely overlooked URG in ADRD research efforts. Through a highly successful collaboration with Partnerships for Native Health (P4NH) at Washington State University, we will continue to improve research readiness among AI/AN elders, with emphasis on promoting brain donation. We will expand these efforts to other URGs in order to engage the local communities of color. We emphasize respectful, bidirectional relationships with our community partners while conducting the most rigorous science aligned with their priorities and comfort with research. We operate on the model of knowledge exchange, and advocate a strength-based reframing perspective to counter stigma by emphasizing social and cognitive functions that are spared in ADRD.

（ADRD）;然而，发病率、患病率、风险因素和临床特征可能因人种和种族而异。 评估和解决这些差距是紧迫的，因为非高加索种族或族裔群体将构成 到2060年，45%的美国人年龄在65岁以上。确保招聘适当多样化的研究人员 参与者是一个艰巨的挑战，ADRD研究往往落后于这些目标。这些不足之处是 可能是由于各种障碍，包括目标人群的“研究准备”，缺乏ADRD 知识和相关的耻辱。在外联招聘和参与（ORE）核心中，我们申请 创新的战略，以实现三个首要目标为中心（1）招聘和保留一个明确的 研究参与者的队列;（2）作为主要的区域资源，用于消费，准确， 关于ADRD诊断、管理和研究机会的文化信息;以及（3） 通过基于证据和经验的研究，提高代表性不足群体的研究准备程度 推广和教育。我们通过我们的网站分享ADRD教育信息和资源 （www.uwadrc.org）、一年两次的杂志Dimensions和每月的电子通讯。大学的 华盛顿老年痴呆症研究中心，我们特别关注美国印第安人/阿拉斯加州 本地（AI/AN）参与，这是ADRD研究工作中历史上被严重忽视的URG。通过一个高度 与华盛顿州立大学的土著健康伙伴关系（P4 NH）成功合作，我们将 继续提高人工智能/人工智能长者的研究准备，重点是促进大脑捐赠。我们 将这些努力扩大到其他URG，以吸引当地的有色人种社区。我们强调 与我们的社区合作伙伴建立相互尊重的双向关系，同时进行最严格的科学研究 与他们的优先事项和研究舒适度保持一致。我们以知识交流的模式运作， 倡导以力量为基础的重构观点，通过强调社会和认知， 在ADRD中保留的功能。