Caring for BRAIN pioneers: Understanding and enhancing family and researcher support in neural device trials

关爱 BRAIN 先驱：了解并加强家庭和研究人员对神经设备试验的支持

• 批准号: 10791649
• 负责人: Sara Goering
• 金额: $ 18.18万
• 依托单位: UNIVERSITY OF WASHINGTON
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-07-01 至 2026-05-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10791649
• 关键词: Advocacy; Advocate; Attention; Bioethics; Caring; Collaborations; Communities; Data; Data Analyses; Devices; Equity; Family; Funding; Future; Grant; Hearing; Implant; Interview; Israel; Knowledge; Learning; Methods; Participant; Persons; Phase; Process; Publications; Relationship-Building; Reporting; Research; Research Methodology; Research Personnel; Resources; Structure; Support Groups; United States National Institutes of Health; Work; brain research; community based participatory research; community engagement; design; experience; first-in-human; interest; meetings; member; neural; neuroethics; neurotechnology; patient engagement; peer support; web site

Abstract The objective of this supplement is to work with members of the BCI Pioneers Coalition, led by the first implantable BCI study participants, to better understand and promote peer support structures for BRAIN Pioneers. This proposal expands the neuroethics work being done in grant 1R01MH130457-01, which only looks at support provided by (1) family/care partners and (2) support provided by researchers. This supplement fills a potential gap in the current R01: How do research participants support each other? In this study, we: (1) engage with members of the BCI Pioneers Coalition about best practices to promote peer support for BRAIN Pioneers, using the World Cafe approach; (2) Jointly synthesize results from World Café meeting with participants to co-create a set of best practices that promote peer support for BRAIN Pioneers. This is bioethics research, and also provides capacity building for the MSU junior scholar.

摘要

项目成果

Ambiguous Agency as a Frame on Neural Device User Experience.

作为神经设备用户体验框架的模糊代理。

• DOI: 10.1080/21507740.2022.2150716
• 发表时间: 2023
• 期刊: AJOB neuroscience
• 作者: Goering,Sara;Versalovic,Erika;Brown,Timothy
• 通讯作者: Brown,Timothy

Why Taking Psychosocial Effects of Neurotechnology Seriously Matters.

为什么认真对待神经技术的心理社会影响很重要。

• DOI: 10.1080/21507740.2023.2243886
• 发表时间: 2023
• 期刊: AJOB neuroscience
• 作者: Goering,Sara;Klein,Eran
• 通讯作者: Klein,Eran