Empowering Women and Providers for Improved Care of Urinary Incontinence: EMPOWER Study

赋予妇女和医疗服务提供者权力，以改善尿失禁的护理：EMPOWER 研究

• 批准号: 10796583
• 负责人: Adonis K Hijaz
• 金额: $ 15.6万
• 依托单位: UNIVERSITY HOSPITALS OF CLEVELAND
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-02-01 至 2025-01-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10796583
• 关键词: Empowering; Women; Providers; Improved; Care

Urinary incontinence is a chronic and serious condition with a high rate of incidence that is associated with poor sleep quality, depression, social isolation, and neurological or cognitive problems. Urinary incontinence is common among women, effecting over 25% of all adult women globally, but it is often underdiagnosed. Researchers suspect that urinary incontinence prevalence rates are difficult to capture due to cultural perceptions of urinary incontinence, methodological differences, survey items that yield differential responses due to wording, differences in case definitions and having access to validated measures. While the consequences of urinary incontinence (UI) are not fatal, the burden on individuals with UI is significant and has a profound effect on quality of life. Research has concluded that while there are many effective interventions for urinary incontinence, methods to diagnose and treat urinary incontinence lack sensitivity to adequately identify all who suffer with this condition. We seek to increase awareness of this problem. Moreover, because racial disparities in the diagnosis and treatment of chronic medical conditions are common, it is suspected that there may also be a diagnosis and treatment disparity for urinary incontinence among African American (AA) women. There is a gap in the existing literature and we do not know if AA women are diagnosed and treated less frequently for urinary incontinence compared to other women. Our goal is to understand the diagnosis and management of urinary incontinence in African American women, both from the standpoint of incidence and treatment rates, and from the standpoint of the illness experience of affected women. In this study, we will develop, apply and refine a search criteria to identify urinary incontinence in AA women from EHR data. We will utilize this criteria to evaluate and identify any racial disparities in the diagnosis of urinary incontinence in AA women and racial disparities in the treatment rates and types of treatment provided. We will also interview African American women who are affected by urinary incontinence and who participated in the AHRQ funded “Empowering Women and Providers for Improved Care of Urinary Incontinence: EMPOWER Study”. Focused interviews will characterize the experience of illness, diagnosis and treatment of the problem. We will code the data to identify themes in the responses and interpret these themes with EHR data findings to provide empirically informed guidance and a deeper understanding of addressing UI in African American women.

尿失禁是一种慢性和严重的疾病，发病率很高， 睡眠质量差、抑郁、社交孤立以及神经或认知问题。尿失禁是 在女性中很常见，影响全球25%以上的成年女性，但往往诊断不足。 研究人员怀疑，由于文化因素，尿失禁的患病率很难获得。 对尿失禁的认识，方法学差异，产生不同反应的调查项目 由于措辞、案例定义的差异以及获得有效措施的机会。而 尿失禁（UI）的后果不是致命的，UI患者的负担是显著的， 对生活质量的深远影响。研究表明，虽然有许多有效的干预措施， 对于尿失禁，诊断和治疗尿失禁的方法缺乏对尿失禁的充分敏感性， 找出所有患有这种疾病的人。我们力求提高对这一问题的认识。而且由于 在诊断和治疗慢性病方面的种族差异很普遍，人们怀疑， 在非洲裔美国人（AA）中，尿失禁的诊断和治疗也可能存在差异 妇女在现有的文献中有一个空白，我们不知道AA妇女是否得到诊断和治疗 与其他女性相比，尿失禁的发生率较低。我们的目标是了解诊断， 非裔美国妇女尿失禁的管理，无论是从发病率的角度来看， 治疗率，并从受影响妇女的患病经历来看。在这项研究中，我们将 制定、应用和完善检索标准，从EHR数据中识别AA女性的尿失禁。我们 将利用这一标准，以评估和确定任何种族差异的尿失禁的诊断， AA妇女和种族差异的治疗率和提供的治疗类型。我们还将采访 受尿失禁影响并参加AHRQ资助的非裔美国妇女 “赋权妇女和提供者改善泌尿系统疾病的护理：赋权研究”。集中 访谈将描述疾病、诊断和治疗问题的经历。我们将对 数据，以确定主题的反应，并解释这些主题与EHR数据的结果，以提供 经验指导和解决非裔美国妇女UI的更深入的理解。