Dystonia Coalition- Administrative Core

肌张力障碍联盟 - 行政核心

• 批准号: 10025607
• 负责人: HYDER A JINNAH
• 金额: $ 23.3万
• 依托单位: EMORY UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2009
• 资助国家: 美国
• 起止时间: 2009-09-30 至 2024-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10025607
• 关键词: Accountability; Administrative Coordination; Australia; Biological Markers; Blepharospasm; Canada; Cervical Dystonia; Clinical; Clinical Research; Collaborations; Communication; Dystonia; Ensure; Europe; France; Germany; Goals; Heterogeneity; Individual; Instruction; Israel; Italy; Limb Dystonia; Measures; Meige Syndrome; Monitor; Natural History; North America; Phenotype; Pilot Projects; Primary Dystonias; Research Design; Research Personnel; Resource Allocation; Severities; Spastic Dysphonias; Syndrome; System; Torticollis; Translational Research; Variant; Work; Writer' s cramp neurosis; biobank; career; craniofacial; multidisciplinary; musician; patient advocacy group; potential biomarker; programs; response

ADMINISTRATIVE UNIT PROJECT SUMMARY The main goal of the Dystonia Coalition is to facilitate collaborations that advance the pace of clinical and translational research for isolated dystonia syndromes, previously known as “primary” dystonias. The Dystonia Coalition includes multiple investigators at 49 different centers in North America, Europe, Israel, and Australia. They work together with several patient advocacy groups through the Administrative Unit on 4 main Clinical Projects, a Pilot Projects Program, and a Career Enhancement Program. The main objectives are to delineate the phenotypic heterogeneity and natural history of the isolated dystonia syndromes, to delineate individual temporal variations in response to current treatments, to develop objective measures for monitoring severity, and to establish a biorepository for exploring biomarkers. The Administrative Unit will be responsible for the overall direction and coordination of the program including coordination of its activities, ensuring effective communication among all of its components, monitoring progress towards objectives, and maintaining a system for fiscal accountability and resource allocation.

行政单位项目概述