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Faith-Based African American cancer Survivorship Storytelling: A culturally relevant intervention to alleviate psychological stress.

基于信仰的非裔美国人癌症幸存者讲故事：缓解心理压力的文化相关干预措施。

基本信息

批准号：
10023941
负责人：
Jill B Hamilton
金额：
$ 7.8万
依托单位：
EMORY UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2019
资助国家：
美国
起止时间：
2019-09-24 至 2022-06-30
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/10023941
关键词：
Address Adherence Affective African American Anguish Anxiety Appointment Behavioral Belief Body Weight decreased Cancer Family Cancer Patient Cancer Survivor Cancer Survivorship Caregivers Caring Cessation of life Chronic Disease Code Communities Data Depressed mood Development Diagnosis Emotional Enrollment Ethnic group Evaluation Event Family Family Caregiver Family Relationship Feasibility Studies Fright Future Hair Health Health Promotion Healthy Eating Hearing Intervention Intervention Studies Interview Life Life Experience Malignant Neoplasms Mental Health Methods Mothers Multimedia Newly Diagnosed Outcome Patients Population Process Psychological Stress Public Health Quality of life Recording of previous events Religion and Spirituality Religious Belief Research Research Design Science Screening for cancer Self Care Series Spirituality Stress and Coping Supportive care Survivors Target Populations Testing Text Time Transportation Video Recording Weight Woman Work base cancer therapy coping end of life experience faith-based intervention follow-up healthcare community healthy lifestyle improved loved ones member men mortality psychological distress psychological stressor racial and ethnic response social stigma survivorship theories therapy design usability

项目摘要

PROJECT SUMMARY In this study, we plan to develop a culturally relevant supportive care intervention to alleviate high levels of psychological distress experienced among newly diagnosed African American cancer patients and their family caregivers (FCG’s). Storytelling Interventions have been used to promote cancer screening, adherence to follow-up care, and self-care with chronic illness. Interventions that incorporate religious beliefs and spirituality are also emerging and used among African Americans and cancer patients to improve healthy lifestyles (weight loss and healthy eating) and quality of life and end of life experiences among patients and caregivers. However, storytelling and faith-based interventions have not incorporated the rich African American cultural history of turning to the narratives in religious songs to alleviate fears associated with life-threatening illness. Storytelling and faith-based interventions have been shown to promote health outcomes, however, the benefit of combining this rich cultural heritage of storytelling with religious songs and text into interventions has yet to be rigorously evaluated. In the proposed study, we will develop the Faith-Based African American Cancer Survivorship Storytelling Intervention, which is theory-driven, narrative based, and uses a multimedia platform to incorporate religious songs and text into a series of cancer survivorship stories. In our preliminary work, African American cancer survivors were interviewed to capture stories about a stressful diagnosis and treatment, the faith-based coping strategies used, and health outcomes experienced. The PI’s research team has coded this data and identified themes that represent the faith-based coping strategies. In the proposed study, we are requesting support to complete Steps 3 and 4 of this process. In Step 3, concepts from Stress and Coping Theory will guide the process of selecting those video-recorded narratives for professional editing. In Step 4, concepts from Transportation Theory will guide our evaluation of the video recorded narratives for usability and pilot testing for transportation (identification, narrative engagement, and emotional response). Thus, the final product of this study will be those narratives most likely to influence positive affective and behavioral changes among the target population. This pragmatic intervention might be tested in other populations but also readily integrated into healthcare, community, and faith-based settings.

项目总结