OUTREACH AND RECRUITMENT ACTIVITIES IN SUPPORT OF THE PREGSOURCE ONLINE REGISTRY PROJECT

尤尼斯·肯尼迪·施莱弗国家儿童健康和人类发展研究所 (NICHD)，美国国立卫生研究院(NIH)的27个研究所和中心之一，领先于 联邦政府在开展和支持关于怀孕各个方面的研究方面， 包括妊娠的短期和长期健康后果和妊娠并发症。 即使妇女几千年来一直在怀孕和生孩子，仍然有一个 很多关于怀孕和分娩的事我们都不知道。而我们所知道的往往不足以 改善母亲、婴儿和家庭的结局。请考虑以下事项： ·美国的产妇死亡率1是发达国家中最高的。 世界上，相当于或比一些发展中国家的利率更低。 ·根据疾病控制和预防中心(CDC)的数据，与怀孕有关 死亡2，定义为在怀孕或分娩后一年或以下发生的死亡， 基本上都是可以预防的。 ·美国孕产妇死亡率持续存在相当大的种族和族裔差异3， 非西班牙裔黑人女性的死亡率是白人女性的三倍多。 产妇发病率方面也存在类似的差异。 ·NICHD资助的研究表明，已知的风险因素只占部分 美国危及生命分娩并发症增加以及这些并发症的比率 在某些种族和族裔群体中，并发症急剧增加。 ·已知某些妊娠并发症和情况会影响妇女以后的健康 母亲。例如，怀孕期间患有先兆子痫的妇女在 晚年患心血管疾病的风险增加，包括高血压。 患有妊娠期糖尿病的妇女患2型糖尿病的风险几乎是女性的两倍 他们的一生。 ·某些妊娠并发症和情况也可能有短期和长期 对后代健康的影响。例如，妇女的孩子 妊娠期糖尿病患2型糖尿病的终生风险高于 母亲们没有患妊娠期糖尿病。还有，母亲生下的孩子们 妊娠期糖尿病更有可能在怀孕时患上2型糖尿病 比母亲没有患上这种疾病的同龄人更年轻。 ·我们才刚刚开始了解人类胎盘，它的整体功能，以及 它如何保护胎儿免受感染和毒素的机制。 这些和其他研究结果以及健康统计数据构成了PregSource®的基本原理： 众包以了解怀孕。PregSource旨在收集有关以下方面的规范数据 通过在线平台直接从孕妇那里怀孕。女性可以完成 从任何提供互联网连接的位置全天候在线调查。参与者可以 在线完成各种健康调查问卷，可以跟踪她们的怀孕进度(例如，体重， 体力活动、情绪、体力活动和恶心)，并可以获得怀孕健康 来自PregSource合作伙伴的信息-大约20家领先的怀孕和健康合作伙伴 组织，包括美国妇产科医生学会，拉马泽 《国际》和《迪梅斯进行曲》。 NICHD及其合作伙伴在2017年10月至12月期间软启动了PregSource， 随后将于2018年1月正式推出。尽管初步统计数据显示 演出期间软上线并开始正式上线，招生速度较快 谢绝了。在2018年的几个月里，NICHD与BabyCenter.com合作投放广告并筹集资金 了解PregSource；在参与度方面结果是积极的，但不是 生成所希望的注册。NICHD创建了社交媒体内容和图形 与PregSource相关，并已与合作伙伴共享这些材料，以供他们与其 观众。NICHD每个月都会在社交媒体上多次发帖，传播关于 注册表。我们还制作了一段宣传视频，以帮助提高人们的兴趣。 NICHD还一直在努力翻译PregSource网站、宣传材料和 对西班牙语进行调查，并确定西班牙与当前 PregSource资源库，以适应西班牙语版本的PregSource。这一努力 包括专题小组、文献搜索和环境扫描以及其他相关活动 了解说西班牙语的人的需求/规范。与此同时，NICHD一直在 继续开发PregSource的精简应用程序版本，将首先提供 用英语，后来又用西班牙语。 尽管NICHD及其合作伙伴有专门的时间和资源来提高认识和 在鼓励招生的同时，招生人数仍然很低。另外，它的特点是 PregSource的注册人数是不对称的，其中有受过高等教育的中上阶层白人女性 包括最大的加入者群体。 我们相信，PregSource将受益于专门针对以下方面的关注和资源 面向不同受众的招聘沟通。这份合同将使NICHD 为专门的任务和努力提供资金，以增加PregSource的注册人数，并改善 其参与者的多样性(这里指的是“PregSource的多样性不断增加”)。 NICHD需要一名具有适当通信专业知识和先前经验的承包商 以增加PregSource的注册人数和多样性。一些沟通将集中在提高 了解PregSource并围绕PregSource建立社区信任，尤其是 在不同的受众中，但此SOW的首要目标是增加 PregSource.

The Eunice Kennedy Shriver National Institute of Child Health and Human development (NICHD), one of the 27 Institutes and Centers of the National Institutes of Health (NIH), leads the federal government in conducting and supporting research on all aspects of pregnancy, including short- and long-term health outcomes of pregnancy and pregnancy complications. Even though women have been getting pregnant and having babies for millennia, there is still a lot we don’t know about pregnancy and childbirth. And what we do know is often not enough to improve outcomes for mothers, infants, and families. Consider the following: • Maternal mortality rates in the United States1 are among the highest in the developed world, equal to or worse than rates in some developing countries. • According to the Centers for Disease Control and Prevention (CDC), pregnancy-related deaths2, defined as deaths that occur during or up to a year after pregnancy or delivery, are mostly preventable. • Considerable racial and ethnic disparities persist in U.S. maternal mortality rates3, with non-Hispanic black women dying at rates more than three times that of white women. Similar disparities are present in rates of maternal morbidity. • NICHD-funded research shows that known risk factors account4 for only part of the United States’ increase in life-threatening childbirth complications and that rates of these complications have increased5 dramatically in certain racial and ethnic groups. • Certain pregnancy complications and conditions are known to influence the later health of the mother. For example, women who have preeclampsia during pregnancy are at increased risk for cardiovascular disease, including high blood pressure, later in life. Women who had gestational diabetes are at nearly double the risk for type 2 diabetes in their lifetimes. • Certain pregnancy complications and conditions can also have short-and long-term effects on the health of the offspring. For instance, the children of women who had gestational diabetes are at higher lifetime risk for type 2 diabetes than children whose mothers did not have gestational diabetes. And, the children whose mothers had gestational diabetes during their pregnancy are more likely to develop type 2 diabetes at younger ages than their peers whose mothers did not have the condition. • We are only just beginning to understand the human placenta, its overall functions, and the mechanisms of how it protects the fetus from infection and toxins. These and other research findings and health statistics formed the rationale for PregSource®: Crowdsourcing to Understand Pregnancy. PregSource aims to collect normative data about pregnancy directly from pregnant women through an online platform. Women can complete the online surveys 24/7, from any location that offers Internet connectivity. Participants can complete various health questionnaires online, can track their pregnancy progress (e.g., weight, physical activity, mood, physical activity, and nausea), and can access pregnancy health information from PregSource partners—about 20 of the leading pregnancy and health-focused organizations, including the American College of Obstetricians and Gynecologists, Lamaze International, and the March of Dimes. NICHD and its partners did a soft launch of PregSource from October through December 2017, followed by a formal launch starting in January 2018. Although initial statistics showed solid performance during the soft launch and the beginning of the formal launch, enrollment quickly declined. For several months in 2018, NICHD worked with BabyCenter.com to run ads and raise awareness about PregSource; the results were positive in terms of engagement, but did not generate the enrollment that was hoped. NICHD has created social media content and graphics related to PregSource and has shared these materials with partners for them to share with their audiences. NICHD posts multiple times on social media each month to spread the word about the registry. We also created a promotional video to help increase interest. NICHD has also been working to translate the PregSource website, promotional materials, and surveys into Spanish, and to identify Spanish equivalents of partner items in the current PregSource Resource Library to accommodate a Spanish version of PregSource. This effort included focus groups, literature searches and environmental scans, and other activities related to understanding the needs/norms of Spanish speakers. At the same time, NICHD has been moving forward with developing a scaled-down app version of PregSource, to be available first in English and, later, in Spanish. Although NICHD and its partners have dedicated time and resources to raising awareness and encouraging enrollment, the enrollment numbers remain low. In addition, the characteristics of PregSource enrollees is skewed, with highly educated middle- to upper-class white women comprising the largest group of enrollees. We believe that PregSource would benefit from dedicated attention and resources specific to recruitment communications geared toward diverse audiences. This contract will enable NICHD to fund dedicated tasks and efforts to increase enrollment in PregSource, as well as improve the diversity of its participants (herein referred to as “increasing diversity in PregSource). NICHD needs a contractor with the appropriate communications expertise and prior experience to increase enrollment and diversity in PregSource. Some communications will focus on raising awareness about PregSource and building community trust surrounding PregSource, especially among diverse audiences, but the overarching goal of this SOW is to increase enrollment in PregSource.