OUTREACH AND RECRUITMENT ACTIVITIES IN SUPPORT OF THE PREGSOURCE ONLINE REGISTRY PROJECT

支持 PREGSOURCE 在线注册项目的外展和招聘活动

• 批准号: 10045622
• 负责人: NICHOLE SORHAINDO
• 金额: $ 25万
• 依托单位: PALLADIAN PARTNERS, INC.
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-09-27 至 2020-09-26
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10045622
• 关键词: Age; American College of Obstetricians and Gynecologists; Attention; Awareness; Caring; Centers for Disease Control and Prevention (U.S.); Cessation of life; Characteristics; Child; Childbirth; Communication; Communities; Community Health; Contractor; Contracts; Data; Developing Countries; Enrollment; Ethnic group; Family; Federal Government; Fetus; Focus Groups; Funding; Gestational Diabetes; Goals; Health; Human; Hypertension; Infant; Infection; Institutes; International; Internet; Libraries; Life; Literature; Location; Long-Term Effects; Maternal Mortality; Maternal and Child Health; Moods; Mothers; National Institute of Child Health and Human Development; Nausea; Non-Insulin-Dependent Diabetes Mellitus; Not Hispanic or Latino; Participant; Performance; Physical activity; Placenta; Pre-Eclampsia; Pregnancy; Pregnancy Complications; Pregnancy Outcome; Pregnant Women; Provider; Questionnaires; Race; Recruitment Activity; Registries; Research; Research Project Grants; Research Support; Resources; Risk; Risk Factors; Running; Scanning; Solid; Surveys; Time; Toxin; Translating; Trust; United States; United States National Institutes of Health; Weight; Woman; Work; cardiovascular disorder risk; community building; crowdsourcing; experience; health of the mother; improved; improved outcome; interest; lifetime risk; maternal morbidity; offspring; online registry; outreach; peer; pregnant; racial and ethnic disparities; recruit; social media; statistics; web site

The Eunice Kennedy Shriver National Institute of Child Health and Human development (NICHD), one of the 27 Institutes and Centers of the National Institutes of Health (NIH), leads the federal government in conducting and supporting research on all aspects of pregnancy, including short- and long-term health outcomes of pregnancy and pregnancy complications. Even though women have been getting pregnant and having babies for millennia, there is still a lot we don’t know about pregnancy and childbirth. And what we do know is often not enough to improve outcomes for mothers, infants, and families. Consider the following: • Maternal mortality rates in the United States1 are among the highest in the developed world, equal to or worse than rates in some developing countries. • According to the Centers for Disease Control and Prevention (CDC), pregnancy-related deaths2, defined as deaths that occur during or up to a year after pregnancy or delivery, are mostly preventable. • Considerable racial and ethnic disparities persist in U.S. maternal mortality rates3, with non-Hispanic black women dying at rates more than three times that of white women. Similar disparities are present in rates of maternal morbidity. • NICHD-funded research shows that known risk factors account4 for only part of the United States’ increase in life-threatening childbirth complications and that rates of these complications have increased5 dramatically in certain racial and ethnic groups. • Certain pregnancy complications and conditions are known to influence the later health of the mother. For example, women who have preeclampsia during pregnancy are at increased risk for cardiovascular disease, including high blood pressure, later in life. Women who had gestational diabetes are at nearly double the risk for type 2 diabetes in their lifetimes. • Certain pregnancy complications and conditions can also have short-and long-term effects on the health of the offspring. For instance, the children of women who had gestational diabetes are at higher lifetime risk for type 2 diabetes than children whose mothers did not have gestational diabetes. And, the children whose mothers had gestational diabetes during their pregnancy are more likely to develop type 2 diabetes at younger ages than their peers whose mothers did not have the condition. • We are only just beginning to understand the human placenta, its overall functions, and the mechanisms of how it protects the fetus from infection and toxins. These and other research findings and health statistics formed the rationale for PregSource®: Crowdsourcing to Understand Pregnancy. PregSource aims to collect normative data about pregnancy directly from pregnant women through an online platform. Women can complete the online surveys 24/7, from any location that offers Internet connectivity. Participants can complete various health questionnaires online, can track their pregnancy progress (e.g., weight, physical activity, mood, physical activity, and nausea), and can access pregnancy health information from PregSource partners—about 20 of the leading pregnancy and health-focused organizations, including the American College of Obstetricians and Gynecologists, Lamaze International, and the March of Dimes. NICHD and its partners did a soft launch of PregSource from October through December 2017, followed by a formal launch starting in January 2018. Although initial statistics showed solid performance during the soft launch and the beginning of the formal launch, enrollment quickly declined. For several months in 2018, NICHD worked with BabyCenter.com to run ads and raise awareness about PregSource; the results were positive in terms of engagement, but did not generate the enrollment that was hoped. NICHD has created social media content and graphics related to PregSource and has shared these materials with partners for them to share with their audiences. NICHD posts multiple times on social media each month to spread the word about the registry. We also created a promotional video to help increase interest. NICHD has also been working to translate the PregSource website, promotional materials, and surveys into Spanish, and to identify Spanish equivalents of partner items in the current PregSource Resource Library to accommodate a Spanish version of PregSource. This effort included focus groups, literature searches and environmental scans, and other activities related to understanding the needs/norms of Spanish speakers. At the same time, NICHD has been moving forward with developing a scaled-down app version of PregSource, to be available first in English and, later, in Spanish. Although NICHD and its partners have dedicated time and resources to raising awareness and encouraging enrollment, the enrollment numbers remain low. In addition, the characteristics of PregSource enrollees is skewed, with highly educated middle- to upper-class white women comprising the largest group of enrollees. We believe that PregSource would benefit from dedicated attention and resources specific to recruitment communications geared toward diverse audiences. This contract will enable NICHD to fund dedicated tasks and efforts to increase enrollment in PregSource, as well as improve the diversity of its participants (herein referred to as “increasing diversity in PregSource). NICHD needs a contractor with the appropriate communications expertise and prior experience to increase enrollment and diversity in PregSource. Some communications will focus on raising awareness about PregSource and building community trust surrounding PregSource, especially among diverse audiences, but the overarching goal of this SOW is to increase enrollment in PregSource.

尤尼斯·肯尼迪·施赖弗国家儿童健康和人类发展研究所 (NICHD) 是美国国立卫生研究院 (NIH) 的 27 个研究所和中心之一， 联邦政府开展和支持有关怀孕各个方面的研究， 包括妊娠和妊娠并发症的短期和长期健康结果。 尽管女性怀孕生子已有数千年历史，但仍然存在 关于怀孕和分娩，我们有很多不知道的事情。而我们所知道的往往不足以 改善母亲、婴儿和家庭的结果。考虑以下几点： • 美国1的孕产妇死亡率是发达国家中最高的 世界范围内，等于或低于一些发展中国家的比率。 • 根据美国疾病控制与预防中心 (CDC) 的数据，与怀孕相关的 死亡2，定义为怀孕或分娩期间或之后一年内发生的死亡， 大多是可以预防的。 • 美国孕产妇死亡率3 仍然存在相当大的种族和民族差异，其中 非西班牙裔黑人女性的死亡率是白人女性的三倍多。 孕产妇发病率也存在类似差异。 • NICHD 资助的研究表明，已知的风险因素仅占部分风险因素 美国危及生命的分娩并发症的增加及其发生率 在某些种族和族裔群体中，并发症急剧增加。 • 已知某些妊娠并发症和状况会影响以后的健康 母亲。例如，怀孕期间患有先兆子痫的女性 晚年患心血管疾病（包括高血压）的风险增加。 患有妊娠期糖尿病的女性患 2 型糖尿病的风险几乎是女性的两倍 他们的一生。 • 某些妊娠并发症和病症也可能会产生短期和长期的影响。 对后代健康的影响。例如，妇女的孩子 妊娠期糖尿病患者终生罹患 2 型糖尿病的风险高于妊娠期糖尿病患者的儿童 母亲没有妊娠糖尿病。而且，那些母亲的孩子 怀孕期间患妊娠糖尿病的人更有可能患上 2 型糖尿病 比母亲没有患有这种疾病的同龄人更年轻。 • 我们才刚刚开始了解人类胎盘、其整体功能以及 它如何保护胎儿免受感染和毒素的机制。 这些和其他研究结果以及健康统计数据构成了 PregSource® 的基本原理： 众包了解怀孕。 PregSource 旨在收集有关以下方面的规范数据 孕妇通过在线平台直接怀孕。女性可以完成 从任何提供互联网连接的位置进行 24/7 在线调查。参与者可以 在线填写各种健康调查问卷，可以跟踪怀孕进度（例如体重、 身体活动、情绪、身体活动和恶心），并且可以获得怀孕健康 来自 PregSource 合作伙伴的信息——大约 20 个专注于怀孕和健康的领先合作伙伴 组织，包括美国妇产科医师学会、Lamaze 国际和一毛钱游行。 NICHD 及其合作伙伴于 2017 年 10 月至 12 月试行推出 PregSource， 随后于 2018 年 1 月开始正式启动。尽管初步统计数据显示可靠 软启动期间和正式启动之初的表现，招生迅速 拒绝了。 2018 年的几个月里，NICHD 与 BabyCenter.com 合作投放广告并筹集资金 对 PregSource 的认识；就参与度而言，结果是积极的，但并没有 产生希望的入学人数。 NICHD 创建了社交媒体内容和图形 与 PregSource 相关，并已与合作伙伴共享这些材料，供他们与他们的人分享 观众。 NICHD 每个月都会在社交媒体上多次发帖，以传播相关信息 注册表。我们还制作了宣传视频来帮助提高兴趣。 NICHD 还一直致力于翻译 PregSource 网站、宣传材料和 调查西班牙语，并确定当前合作伙伴项目的西班牙语对应项 PregSource 资源库可容纳西班牙语版本的 PregSource。这个努力 包括焦点小组、文献检索和环境扫描以及其他相关活动 了解西班牙语使用者的需求/规范。与此同时，NICHD 继续开发 PregSource 的缩小版应用程序，并将首先推出 英语，后来又西班牙语。 尽管 NICHD 及其合作伙伴投入了时间和资源来提高认识和 鼓励入学，但入学人数仍然较低。此外，特点 PregSource 的参与者存在倾斜，其中包括受过高等教育的中上层白人女性 包括最大的注册者群体。 我们相信 PregSource 将从专门的关注和资源中受益 针对不同受众的招聘沟通。该合同将使 NICHD 资助专门的任务和努力，以增加 PregSource 的入学人数，并改善 参与者的多样性（本文称为“PregSource 中不断增加的多样性”）。 NICHD 需要一名具有适当沟通专业知识和先前经验的承包商 增加 PregSource 的入学率和多样性。一些沟通将侧重于提高 对 PregSource 的认识并建立围绕 PregSource 的社区信任，尤其是 不同的受众群体，但本 SOW 的总体目标是增加 预源。