DiaBetter Together: A Strengths-Based Peer Mentor Program to Support Young Adults with Type 1 Diabetes During the Transition from Pediatrics to Adult Care
DiaBetter Together: A Strengths-Based Peer Mentor Program to Support Young Adults with Type 1 Diabetes During the Transition from Pediatrics to Adult Care
批准号:
10015263
负责人:
Marisa Ellen Hilliard
金额:
$48.25万
依托单位国家:
美国
项目类别:
财政年份:
2019
资助国家:
美国
项目状态:
已结题
起止时间:
2019-09-10 至 2024-06-30
关键词:
AccountabilityAdherenceAdolescenceAdultAgeAge-YearsAppointmentBehavioralBiological MarkersCaringChildhoodClinicClinicalCognitiveDangerousnessDataDevelopmentDiabetes MellitusDistressEvidence based programFamilyFamily RelationshipFeelingFriendsGlycosylated hemoglobin AGoalsHealthHealthcareHealthcare SystemsHospitalizationInfrastructureInsulin-Dependent Diabetes MellitusInterpersonal RelationsInterventionLogisticsMediatingMediationMethodsModelingOccupationalOutcomeParentsParticipantPatient-Focused OutcomesPatientsPediatric HospitalsPediatricsPersonal SatisfactionPersonsProblem SolvingProviderPsychological reinforcementQuality of lifeQuestionnairesRandomizedReadinessRecommendationRegimenReportingResearchResourcesRiskRoleSchoolsSelf CareSelf ManagementSocial WorkersSocial supportSourceSupervisionSupport SystemTechniquesTestingTexasTimeTime ManagementTrainingUncertaintyVisitWorkarmbasecare providerscollegedepressive symptomsdiabetes distressdiabetes managementdiabetes self-managementemerging adultexperiencefollow-upglycemic controlgroup interventionhealth care settingshigh riskimprovedintervention participantsmedical appointmentnovelnovel strategiespeerpeer coachingpeer supportpreventprimary outcomeprogramspsychoeducationalpsychosocialresiliencerole modelsecondary outcomeskillsskills trainingsocialsocial modelsocial situationstress managementtreatment adherencetreatment as usualyoung adult
中文摘要
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英文摘要
PROJECT SUMMARY/ABSTRACT
Type 1 diabetes (T1D) management is challenging for young adults, who assume responsibility for self-
management and transfer T1D care from the pediatric to adult healthcare system as they also manage typical
developmental demands (e.g., social, financial, work/school, residential). Many young adults have extended
(>6 months) gaps before following up in adult care, which increase their risk for poor health outcomes and
serious health complications. There are few evidence-based programs to support young adults with T1D during
the transfer period between pediatric and adult care. Novel, developmentally appropriate approaches are
needed to help young adults negotiate the challenges of living with T1D and complete a timely transition to
adult care. The goal of the proposed study is to evaluate a new intervention for young adults with T1D that
maximizes diabetes-related social support. The proposed transition intervention builds on young adults' social
support network and provides them access to relevant information about T1D care in adulthood. Around the
time they leave pediatric T1D care, young adults with T1D will be paired with a trained “Peer Mentor,” an
experienced, slightly older young adult with T1D, who will meet with them in-person and have frequent (weekly,
then monthly) contact for 12 months. During the contacts, the Peer Mentor will use strengths-based
psychoeducational strategies to teach and model problem-solving and stress-management skills, encourage
the young adult to seek support from their existing social support network (e.g., family, friends) and identify
new sources of diabetes-related support, help the young adult prioritize T1D self-care during the very
demanding young adult period, share his/her transition experiences and strategies for successfully navigating
the adult healthcare system, and prepare for the first adult care visit. The Peer Mentor will be a positive role
model and source of help, encouragement, and accountability around transition, with the goal of reducing
isolation, promoting self-management, and preventing gaps in care. We will test this intervention with 150
young adults randomly assigned to the intervention or usual care. Our main goal is to evaluate the
intervention's impact on important T1D outcomes, such as glycemic control, time to adult care, treatment
adherence, and psychosocial well-being. Clinic appointment information, questionnaires, adherence data, and
glycemic control biomarkers will be collected at baseline and 6 and 12 months later. The ultimate goal of this
research is to validate a supportive intervention that can facilitate T1D self-management and transfer of care
during the difficult young adult years and promote optimal T1D health outcomes.
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Behavioral Research Mentorship in Diabetes for Early Career Scientists from Diverse and Underrepresented Groups.
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批准号:10795522
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项目类别:
-
资助金额:$9.66万
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财政年份:2023
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负责人:Marisa Ellen Hilliard
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依托单位:
Strengths-Based Multi-Level Behavioral Intervention to Promote Resilience and Self-Management in Youth with Type 1 Diabetes
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批准号:10522297
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项目类别:
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资助金额:$78.05万
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财政年份:2022
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负责人:Marisa Ellen Hilliard
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依托单位:
Strengths-Based Multi-Level Behavioral Intervention to Promote Resilience and Self-Management in Youth with Type 1 Diabetes
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批准号:10667615
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项目类别:
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资助金额:$73.94万
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财政年份:2022
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负责人:Marisa Ellen Hilliard
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依托单位:
DiaBetter Together: A Strengths-Based Peer Mentor Program to Support Young Adults with Type 1 Diabetes During the Transition from Pediatrics to Adult Care
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批准号:10646266
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项目类别:
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资助金额:$44.63万
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财政年份:2019
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负责人:Marisa Ellen Hilliard
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依托单位:
DiaBetter Together: A Strengths-Based Peer Mentor Program to Support Young Adults with Type 1 Diabetes During the Transition from Pediatrics to Adult Care
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批准号:10439635
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项目类别:
-
资助金额:$46.27万
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财政年份:2019
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负责人:Marisa Ellen Hilliard
-
依托单位:
DiaBetter Together: A Strengths-Based Peer Mentor Program to Support Young Adults with Type 1 Diabetes During the Transition from Pediatrics to Adult Care
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批准号:10215495
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项目类别:
-
资助金额:$49.33万
-
财政年份:2019
-
负责人:Marisa Ellen Hilliard
-
依托单位:
DiaBetter Together: A Strengths-Based Peer Mentor Program to Support Young Adults with Type 1 Diabetes During the Transition from Pediatrics to Adult Care
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批准号:10502760
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项目类别:
-
资助金额:$12.94万
-
财政年份:2019
-
负责人:Marisa Ellen Hilliard
-
依托单位:
DiaBetter Together: A Strengths-Based Peer Mentor Program to Support Young Adults with Type 1 Diabetes During the Transition from Pediatrics to Adult Care
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批准号:9816898
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项目类别:
-
资助金额:$41.88万
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财政年份:2019
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负责人:Marisa Ellen Hilliard
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依托单位:
Mixed-Methods Study of Sleep in Diverse Young Adults with T1D During and After the Transition from Pediatric to Adult Care.
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批准号:10378911
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项目类别:
-
资助金额:$10.78万
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财政年份:2019
-
负责人:Marisa Ellen Hilliard
-
依托单位:
DiaBetter Together: A Strengths-Based Peer Mentor Program to Support Young Adults with Type 1 Diabetes During the Transition from Pediatrics to Adult Care
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批准号:10713359
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项目类别:
-
资助金额:$2.16万
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财政年份:2019
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负责人:Marisa Ellen Hilliard
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依托单位:
Development and Pilot of a Strengths-Based Behavioral mHealth Intervention to Promote Resilience in Adolescents with Type 1 Diabetes
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批准号:9315813
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项目类别:
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资助金额:$19.79万
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财政年份:2016
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负责人:Marisa Ellen Hilliard
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依托单位:
海外基金