Strategies for Effective Caregiver Communication with Persons with Alzheimer's Disease and Other Dementias (SECC-AD)

护理人员与阿尔茨海默病和其他痴呆症患者有效沟通的策略 (SECC-AD)

• 批准号: 10088364
• 负责人: Carissa K Coleman
• 金额: $ 22.95万
• 依托单位: UNIVERSITY OF KANSAS MEDICAL CENTER
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-02-01 至 2023-01-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10088364
• 关键词: Activities of Daily Living; Address; Age; Alzheimer' s Disease; Alzheimer' s disease related dementia; Americas; Behavioral; Behavioral Symptoms; Caregivers; Caring; Characteristics; Code; Communication; Complex; Data Reporting; Dementia; Dementia caregivers; Diagnosis; Effectiveness; Evidence based intervention; Evidence based program; Family; Family Caregiver; Feedback; Feeling; Formal caregiver; Frequencies; Gender; Goals; Healthcare Systems; Home; Impaired cognition; Impairment; Instinct; Interpersonal Relations; Intervention; Knowledge; Language; Linear Regressions; Measures; Mental Depression; Morbidity - disease rate; Nonverbal Communication; Nursing Homes; Outcome; Persons; Population; Prevalence; Prevention; Process; Quality of life; Regression Analysis; Research; Resolution; Savings; Severities; Sleeplessness; Source; Speech; Stress; Subgroup; Targeted Research; Technology; Training; Variant; Video Recording; base; care episode; care giving burden; caregiver education; caregiving; communication behavior; dementia care; effective intervention; evidence base; family support; group intervention; improved; in-home care; innovation; mortality; patient home care; prevent; psychological symptom; repair model; repaired; response; secondary analysis; skills; statistics; success; telehealth

PROJECT ABSTRACT As the population ages, the prevalence of Alzheimer’s disease and other dementias is increasing as is the need for caregivers to assist persons with dementia to complete activities of daily living. Families provide care at home for most persons with dementia. However the stress of caregiving leads to negative caregiver outcomes including depression and increased morbidity and mortality. One of the greatest challenges for caregivers relates to loss of communication abilities in the person with dementia that progress along with cognitive decline. Communication breakdown effects all aspects of providing care as well as relating to a person with dementia. Current communication knowledge and dementia caregiver training is primarily anecdotal and focused on institutional (formal) caregivers. Evidence-based knowledge is needed to inform effective interventions for family caregivers to support successful communication that facilitates care and maintains interpersonal relationships. The goal of this research is to identify evidence-based caregiver communication behaviors and strategies that prevent and successfully resolve communication breakdown. We will complete a secondary analysis of over 200 video recordings captured at home by fifty-one family caregivers. These unscripted, spontaneous care episodes were recorded in our recently completed Supporting Family Caregivers with Technology for Dementia Home Care (FamTechCare) telehealth trial (R01NR014737). We will adapt validated measures of caregiver communication behaviors (based on the Verbal and Nonverbal Interaction Scale, Caregiver version) and indicators of communication breakdown and successful versus unsuccessful repair (based on the Trouble Source Repair Model) to frame-by-frame behavioral coding analyses. We will use sequential and linear regression analyses to identify what communication strategies are associated with successful communication (prevention and successful resolution of communication breakdown) within and between dyads. We will evaluate covariate factors to identify strategies with differential effects based on dyad characteristics such as relationship and type and severity of dementia diagnosis. These findings will be used to develop caregiver communication interventions. Because communication is critical to all aspects of dementia care, increasing caregiver communication skills can facilitate care, reduce the stress and burden of caregiving, and support interpersonal relationships so families can continue dementia home care. This research targets the National Plan to Address Alzheimer’s Disease goal to expand support for people with Alzheimer’s disease and related dementias and their families.

项目摘要 随着人口老龄化，阿尔茨海默病和其他痴呆症的患病率也在增加， 照顾者需要帮助痴呆症患者完成日常生活活动。家庭提供 对大多数老年痴呆症患者进行家庭护理。然而，工作压力会导致消极的照顾者 结果包括抑郁症和发病率和死亡率增加。面临的最大挑战之一 照顾者与痴呆症患者的沟通能力丧失有关， 认知能力下降沟通障碍影响到提供护理的各个方面， 痴呆症患者。目前的沟通知识和痴呆症护理人员培训主要是 轶事，并侧重于机构（正式）照顾者。需要基于证据的知识来告知 对家庭照料者采取有效的干预措施，以支持成功的沟通， 保持人际关系。 本研究的目的是确定基于证据的照顾者沟通行为， 预防和成功解决沟通障碍的策略。我们将完成第二次 分析了51名家庭护理人员在家中拍摄的200多个视频记录。这些没有剧本的， 自发护理事件记录在我们最近完成的支持家庭照顾者， 痴呆症家庭护理技术（FamTechCare）远程医疗试验（R01NR014737）。我们将适应验证 护理者沟通行为的测量（基于语言和非语言互动量表， 护理人员版本）和通信故障以及成功与不成功修复的指标 （基于故障源修复模型）逐帧行为编码分析。 我们将使用序贯和线性回归分析来确定什么是沟通策略 与成功沟通相关（预防和成功解决沟通 在二分体内和二分体之间。我们将评估协变量因素，以确定具有差异的策略， 基于二分体特征的影响，例如痴呆诊断的关系、类型和严重程度。这些 调查结果将用于制定护理人员沟通干预措施。因为沟通对于 痴呆症护理的各个方面，增加护理人员的沟通技能可以促进护理，减轻压力 和负担，并支持人际关系，使家庭可以继续痴呆症回家 在乎这项研究的目标是国家计划解决阿尔茨海默病的目标，以扩大对人们的支持， 阿尔茨海默氏症和相关痴呆症患者及其家人。

项目成果

Determining Evidence for Family Caregiver Communication: Associating Communication Behaviors With Breakdown and Repair.

确定家庭护理人员沟通的证据：将沟通行为与崩溃和修复联系起来。

• DOI: 10.1093/geront/gnac193
• 发表时间: 2023
• 期刊: The Gerontologist
• 作者: Williams,KristineN;Coleman,CarissaK;Hu,Jinxiang
• 通讯作者: Hu,Jinxiang

Developing Behavioral Coding to Understand Family Communication Breakdown in Dementia Care.

• DOI: 10.1177/01939459211062957
• 发表时间: 2022-03
• 期刊: Western journal of nursing research
• 影响因子: 1.8
• 作者: Coleman CK;Aly IM;Dunham A;Inderhees K;Richardson M;Wilson P;Berkley A;Savundranayagam M;Williams K
• 通讯作者: Williams K