Supporting Patients and Family Care Partners to Manage Chronic Kidney Disease Together

支持患者和家庭护理伙伴共同管理慢性肾脏病

• 批准号: 10571812
• 负责人: Nicole DePasquale
• 金额: $ 11.41万
• 依托单位: DUKE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-04-01 至 2026-01-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10571812
• 关键词: Activities of Daily Living; Address; Adult; Affect; Area; Awareness; Board Certification; Cancer Patient; Capsicum; Caring; Chronic Disease; Chronic Kidney Failure; Clinical; Clinical Research; Clinical Trials; Collaborations; Communication; Complex; Data; Data Analyses; Data Collection; Dementia; Deterioration; Development; Dialysis procedure; Disease; Disease Management; Disease Progression; Doctor of Philosophy; Educational Status; Effectiveness; Elderly; Epidemiologist; Family; Family Study; Feasibility Studies; Fostering; Foundations; Funding; Goals; Grant; Health; Health Care Costs; Health Policy; Health Services; Human Development; Individual; Internist; Intervention; Interview; Kidney Failure; Kidney Transplantation; Leadership; Life; Longitudinal Studies; Mentors; Methodology; Methods; Modeling; Modification; Nature; Nephrology; Outcome; Patient Care; Patients; Pattern; Personal Satisfaction; Prevalence; Process; Process Measure; Psychologist; Psychology; Public Health; Qualitative Research; Quasi-experiment; Renal function; Reporting; Research; Research Institute; Research Methodology; Research Personnel; Resources; Science; Self Management; Severity of illness; Sociology; Structure; Teacher Professional Development; Testing; Time; Training; Training Programs; Universities; Work; Writing; burden of illness; career; career development; clinical care; cost; depressive symptoms; effectiveness trial; evidence base; experience; family support; feasibility testing; health related quality of life; human old age (65+); improved; insight; intervention refinement; medical schools; member; multidisciplinary; multiple chronic conditions; novel; older patient; prevent; professor; psychosocial; recruit; social; social science research; societal costs; success; theories; therapy design

PROJECT SUMMARY Candidate: Nicole DePasquale, PhD, MSPH, is an Assistant Professor at the Duke University School of Medicine and is fully committed to becoming an independently-funded investigator at the intersection of family science and disease management. Her long-term career goal is to develop family-centered interventions that optimize individual and dyadic health and well-being among older patients with chronic disease and their family care partners. Dr. DePasquale’s multidisciplinary background makes her an ideal candidate to merge these two largely separate areas of inquiry. Her academic, research, and training experiences to date span the fields of communication, psychology, sociology, public health, and human development and family studies, and her research experiences have been both quantitative and qualitative in nature. Career development and training plan: Dr. DePasquale’s career development and training plan feature a multidisciplinary mentoring team comprising a general internist/clinical epidemiologist, geriatrician, health services researcher, biostatistician, social/health psychologist, and board-certified nephrologist. This team will support her pursuit of activities that address gaps and strengthen under-developed areas in her experience through a training plan focused on: 1) geriatric nephrology, 2) dyadic disease management, 3) advanced quantitative and qualitative research methodology, 4) intervention science, and 5) professional and scholarly development (best research practices, research collaborations, leadership, and grant writing). Additional resources to foster her career development and facilitate achievement of her training goals include Duke’s Claude D. Pepper Center; Edward R. Roybal Center; Offices for Faculty Development, Scientific Integrity, and Research Mentoring; Social Science Research Institute; and Clinical Research Training Program. Research plan: The proposed research will use different methodological to address the overarching objective of understanding the ways in which older patients and their family care partners manage the full course of chronic kidney disease (CKD) together, and how dyadic management affects individual and dyadic health and well-being: 1) quantify associations between care partner help with CKD self-management and patient self- management, depressive symptoms, and health-related quality of life over time (secondary data analysis); 2) investigate the interrelations of dyadic disease appraisal, disease management, and health along the continuum of CKD progression (primary data collection through interviews); and 3) adapt and test the feasibility of SHARE for CKD, a care planning intervention to help patient-care partner dyads work together to manage CKD. The goal of this work is to initiate a shift in focus from individual experiences and outcomes related to CKD self-management to those of both members of the care dyad, which can then be used to assist research, clinical care, and health policies in better supporting patients and care partners alike. Findings will provide Dr. DePasquale with preliminary data to refine her intervention and test its effectiveness in a R01-funded trial.

项目总结 候选人：Nicole DePasquale，博士，MSPH，杜克大学商学院助理教授 医学，并完全致力于成为一名独立资助的调查人员在交叉路口 家庭科学和疾病管理。她的长期职业目标是发展以家庭为中心的干预措施 优化老年慢性病患者和老年人的个人和二元健康和福祉 家庭护理伙伴。DePasquale博士的多学科背景使她成为合并的理想人选 这两个基本不同的调查领域。到目前为止，她的学术、研究和培训经验跨越了 通信、心理学、社会学、公共卫生、人类发展和家庭研究等领域，以及 她的研究经历既有定量的，也有定性的。 职业发展和培训计划：DePasquale博士的职业发展和培训计划的特点是 多学科指导小组，由普通内科医生/临床流行病学家、老年病医生、健康 服务研究员、生物统计学家、社会/健康心理学家和注册肾病学家。这支队伍将 支持她根据自己的经验开展消除差距和加强欠发达地区的活动 通过集中于以下方面的培训计划：1)老年肾病，2)二联症管理，3)高级 定量和定性研究方法，4)干预科学，5)专业和学术 发展(最佳研究实践、研究合作、领导力和赠款撰写)。其他内容 促进她的职业发展和促进实现她的培训目标的资源包括杜克大学的 首页--期刊主要分类--期刊细介绍--期刊题录与文摘--期刊详细文摘内容 研究指导；社会科学研究所；临床研究培训计划。 研究计划：拟议的研究将使用不同的方法来解决以下总体目标 了解老年患者及其家庭护理伙伴管理整个病程的方式 慢性肾脏疾病(CKD)，以及二元管理如何影响个人和二元健康和 幸福感：1)量化护理伙伴对CKD自我管理的帮助和患者自我管理之间的关联 随着时间的推移，管理、抑郁症状和与健康相关的生活质量(二级数据分析)； 沿着连续体调查疾病评估、疾病管理和健康的相互关系 CKD进展情况(通过访谈收集主要数据)；以及3)适应和测试 分享CKD，这是一种护理计划干预措施，帮助患者-护理合作伙伴双方共同管理 CKD。这项工作的目标是开始将重点从与以下方面相关的个人经历和结果转移 CKD自我管理到护理二人组的两个成员的自我管理，然后可以用于辅助研究， 临床护理，以及更好地支持患者和护理合作伙伴的卫生政策。这些发现将为Dr。 DePasquale提供了初步数据，以完善她的干预措施，并在R01资助的试验中测试其有效性。