Supporting Patients and Family Care Partners to Manage Chronic Kidney Disease Together

支持患者和家庭护理伙伴共同管理慢性肾脏病

• 批准号: 10571812
• 负责人: Nicole DePasquale
• 金额: $ 11.41万
• 依托单位: DUKE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-04-01 至 2026-01-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10571812
• 关键词: Activities of Daily Living; Address; Adult; Affect; Area; Awareness; Board Certification; Cancer Patient; Capsicum; Caring; Chronic Disease; Chronic Kidney Failure; Clinical; Clinical Research; Clinical Trials; Collaborations; Communication; Complex; Data; Data Analyses; Data Collection; Dementia; Deterioration; Development; Dialysis procedure; Disease; Disease Management; Disease Progression; Doctor of Philosophy; Educational Status; Effectiveness; Elderly; Epidemiologist; Family; Family Study; Feasibility Studies; Fostering; Foundations; Funding; Goals; Grant; Health; Health Care Costs; Health Policy; Health Services; Human Development; Individual; Internist; Intervention; Interview; Kidney Failure; Kidney Transplantation; Leadership; Life; Longitudinal Studies; Mentors; Methodology; Methods; Modeling; Modification; Nature; Nephrology; Outcome; Patient Care; Patients; Pattern; Personal Satisfaction; Prevalence; Process; Process Measure; Psychologist; Psychology; Public Health; Qualitative Research; Quasi-experiment; Renal function; Reporting; Research; Research Institute; Research Methodology; Research Personnel; Resources; Science; Self Management; Severity of illness; Sociology; Structure; Teacher Professional Development; Testing; Time; Training; Training Programs; Universities; Work; Writing; burden of illness; career; career development; clinical care; cost; depressive symptoms; effectiveness trial; evidence base; experience; family support; feasibility testing; health related quality of life; human old age (65+); improved; insight; intervention refinement; medical schools; member; multidisciplinary; multiple chronic conditions; novel; older patient; prevent; professor; psychosocial; recruit; social; social science research; societal costs; success; theories; therapy design

PROJECT SUMMARY Candidate: Nicole DePasquale, PhD, MSPH, is an Assistant Professor at the Duke University School of Medicine and is fully committed to becoming an independently-funded investigator at the intersection of family science and disease management. Her long-term career goal is to develop family-centered interventions that optimize individual and dyadic health and well-being among older patients with chronic disease and their family care partners. Dr. DePasquale’s multidisciplinary background makes her an ideal candidate to merge these two largely separate areas of inquiry. Her academic, research, and training experiences to date span the fields of communication, psychology, sociology, public health, and human development and family studies, and her research experiences have been both quantitative and qualitative in nature. Career development and training plan: Dr. DePasquale’s career development and training plan feature a multidisciplinary mentoring team comprising a general internist/clinical epidemiologist, geriatrician, health services researcher, biostatistician, social/health psychologist, and board-certified nephrologist. This team will support her pursuit of activities that address gaps and strengthen under-developed areas in her experience through a training plan focused on: 1) geriatric nephrology, 2) dyadic disease management, 3) advanced quantitative and qualitative research methodology, 4) intervention science, and 5) professional and scholarly development (best research practices, research collaborations, leadership, and grant writing). Additional resources to foster her career development and facilitate achievement of her training goals include Duke’s Claude D. Pepper Center; Edward R. Roybal Center; Offices for Faculty Development, Scientific Integrity, and Research Mentoring; Social Science Research Institute; and Clinical Research Training Program. Research plan: The proposed research will use different methodological to address the overarching objective of understanding the ways in which older patients and their family care partners manage the full course of chronic kidney disease (CKD) together, and how dyadic management affects individual and dyadic health and well-being: 1) quantify associations between care partner help with CKD self-management and patient self- management, depressive symptoms, and health-related quality of life over time (secondary data analysis); 2) investigate the interrelations of dyadic disease appraisal, disease management, and health along the continuum of CKD progression (primary data collection through interviews); and 3) adapt and test the feasibility of SHARE for CKD, a care planning intervention to help patient-care partner dyads work together to manage CKD. The goal of this work is to initiate a shift in focus from individual experiences and outcomes related to CKD self-management to those of both members of the care dyad, which can then be used to assist research, clinical care, and health policies in better supporting patients and care partners alike. Findings will provide Dr. DePasquale with preliminary data to refine her intervention and test its effectiveness in a R01-funded trial.

项目摘要 候选人：Nicole DePasquale，博士，MSPH，是杜克大学医学院的助理教授。 医学，并完全致力于成为一个独立资助的研究者在交叉点， 家庭科学和疾病管理。她的长期职业目标是发展以家庭为中心的干预措施 优化慢性病老年患者的个体和二元健康和福祉， 家庭护理伙伴DePasquale博士的多学科背景使她成为合并的理想人选 这两个基本上独立的调查领域。她的学术，研究和培训经验，以日期跨越 传播学、心理学、社会学、公共卫生、人类发展和家庭研究等领域， 她的研究经验在性质上是定量和定性的。 职业发展和培训计划：DePasquale博士的职业发展和培训计划包括： 多学科指导小组，由一名普通内科医生/临床流行病学家、老年病学家、卫生 服务研究员、生物统计学家、社会/健康心理学家和委员会认证的肾病学家。这支球队将 支持她开展活动，以消除差距，加强她经验中的欠发达领域 通过培训计划，重点是：1）老年肾病学，2）双元疾病管理，3）高级 定量和定性研究方法，4）干预科学，5）专业和学术 发展（最佳研究实践，研究合作，领导力和赠款写作）。额外 促进她的职业发展和促进她实现培训目标的资源包括杜克的 克劳德·D Pepper Center; Edward R. Roybal中心;教师发展办公室，科学诚信， 研究指导;社会科学研究所;和临床研究培训计划。 研究计划：拟议的研究将使用不同的方法来解决的总体目标， 了解老年患者及其家庭护理伙伴管理整个过程的方式， 慢性肾病（CKD），以及二元管理如何影响个体和二元健康， 健康：1）量化护理伙伴帮助CKD自我管理和患者自我管理之间的关联， 随着时间的推移，管理、抑郁症状和健康相关生活质量（次要数据分析）; 2） 调查二元疾病评估、疾病管理和健康之间的相互关系，沿着连续体 CKD进展（通过访谈收集主要数据）;以及3）适应并测试 SHARE for CKD，一种护理计划干预措施，帮助患者护理合作伙伴共同管理 CKD。这项工作的目标是开始将重点从个人经验和成果转移到以下方面： CKD自我管理到护理二分体的两个成员的那些，然后可以用于辅助研究， 临床护理和卫生政策，以更好地支持病人和护理伙伴。调查结果将提供博士。 DePasquale提供了初步数据来完善她的干预措施，并在R 01资助的试验中测试其有效性。