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Supporting Patients and Family Care Partners to Manage Chronic Kidney Disease Together

支持患者和家庭护理伙伴共同管理慢性肾脏病

基本信息

批准号：
10571812
负责人：
Nicole DePasquale
金额：
$ 11.41万
依托单位：
DUKE UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2021
资助国家：
美国
起止时间：
2021-04-01 至 2026-01-31
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/10571812
关键词：
Activities of Daily Living Address Adult Affect Area Awareness Board Certification Cancer Patient Capsicum Caring Chronic Disease Chronic Kidney Failure Clinical Clinical Research Clinical Trials Collaborations Communication Complex Data Data Analyses Data Collection Dementia Deterioration Development Dialysis procedure Disease Disease Management Disease Progression Doctor of Philosophy Educational Status Effectiveness Elderly Epidemiologist Family Family Study Feasibility Studies Fostering Foundations Funding Goals Grant Health Health Care Costs Health Policy Health Services Human Development Individual Internist Intervention Interview Kidney Failure Kidney Transplantation Leadership Life Longitudinal Studies Mentors Methodology Methods Modeling Modification Nature Nephrology Outcome Patient Care Patients Pattern Personal Satisfaction Prevalence Process Process Measure Psychologist Psychology Public Health Qualitative Research Quasi-experiment Renal function Reporting Research Research Institute Research Methodology Research Personnel Resources Science Self Management Severity of illness Sociology Structure Teacher Professional Development Testing Time Training Training Programs Universities Work Writing burden of illness career career development clinical care cost depressive symptoms effectiveness trial evidence base experience family support feasibility testing health related quality of life human old age (65+)improved insight intervention refinement medical schools member multidisciplinary multiple chronic conditions novel older patient prevent professor psychosocial recruit social social science research societal costs success theories therapy design

项目摘要

PROJECT SUMMARY Candidate: Nicole DePasquale, PhD, MSPH, is an Assistant Professor at the Duke University School of Medicine and is fully committed to becoming an independently-funded investigator at the intersection of family science and disease management. Her long-term career goal is to develop family-centered interventions that optimize individual and dyadic health and well-being among older patients with chronic disease and their family care partners. Dr. DePasquale’s multidisciplinary background makes her an ideal candidate to merge these two largely separate areas of inquiry. Her academic, research, and training experiences to date span the fields of communication, psychology, sociology, public health, and human development and family studies, and her research experiences have been both quantitative and qualitative in nature. Career development and training plan: Dr. DePasquale’s career development and training plan feature a multidisciplinary mentoring team comprising a general internist/clinical epidemiologist, geriatrician, health services researcher, biostatistician, social/health psychologist, and board-certified nephrologist. This team will support her pursuit of activities that address gaps and strengthen under-developed areas in her experience through a training plan focused on: 1) geriatric nephrology, 2) dyadic disease management, 3) advanced quantitative and qualitative research methodology, 4) intervention science, and 5) professional and scholarly development (best research practices, research collaborations, leadership, and grant writing). Additional resources to foster her career development and facilitate achievement of her training goals include Duke’s Claude D. Pepper Center; Edward R. Roybal Center; Offices for Faculty Development, Scientific Integrity, and Research Mentoring; Social Science Research Institute; and Clinical Research Training Program. Research plan: The proposed research will use different methodological to address the overarching objective of understanding the ways in which older patients and their family care partners manage the full course of chronic kidney disease (CKD) together, and how dyadic management affects individual and dyadic health and well-being: 1) quantify associations between care partner help with CKD self-management and patient self- management, depressive symptoms, and health-related quality of life over time (secondary data analysis); 2) investigate the interrelations of dyadic disease appraisal, disease management, and health along the continuum of CKD progression (primary data collection through interviews); and 3) adapt and test the feasibility of SHARE for CKD, a care planning intervention to help patient-care partner dyads work together to manage CKD. The goal of this work is to initiate a shift in focus from individual experiences and outcomes related to CKD self-management to those of both members of the care dyad, which can then be used to assist research, clinical care, and health policies in better supporting patients and care partners alike. Findings will provide Dr. DePasquale with preliminary data to refine her intervention and test its effectiveness in a R01-funded trial.

项目总结