Pediatric Research Optimizing Methods in Stakeholder Engagement (PROMISE)

儿科研究优化利益相关者参与的方法（PROMISE）

• 批准号: 10580764
• 负责人: JOSEPH J CUTULI
• 金额: $ 29.52万
• 依托单位: ALFRED I. DU PONT HOSP FOR CHILDREN
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-03-01 至 2027-02-28
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10580764
• 关键词: Accountability; Address; Adoption; Advisory Committees; Advocate; Area; Belief; Biomedical Research; Caring; Centers of Research Excellence; Child; Child Health; Child Welfare; Child health care; Childhood; Clinical Research; Clinical Trials Network; Collaborations; Communities; Community Health; Community Outreach; Community Participation; Complex; Consultations; Data Set; Delaware; Disadvantaged; Ecology; Ensure; Equity; Family; Fostering; Funding; Generations; Goals; Health; Healthcare; Healthcare Systems; Income; Individual; Inequity; Infrastructure; Institution; Intervention; Investigation; Investments; Knowledge; Leadership; Methods; Modeling; Participant; Pediatric Hospitals; Pediatric Research; Peer Review; Phase; Policies; Positioning Attribute; Process; Provider; Public Policy; Publications; Reporting; Research; Research Personnel; Research Priority; Research Support; Resources; Route; Secure; Time; Training; Translating; Translational Research; Trust; Work; base; career; community engaged research; community engagement; community partnership; data repository; health disparity; health inequalities; improved; innovation; meetings; member; operation; outreach; programs; racial disparity; research in practice; response; social; success; tool; working group

PROJECT SUMMARY The Pediatric Research Optimizing Methods In Stakeholder Engagement (PROMISE) Core will support Research Expanding Access to Child Health (REACH) COBRE investigations by fostering engagement of communities and investigators as equal co-participants throughout the research process. Communities are powerful and essential partners in the effective, comprehensive, and equitable transformation of pediatric care. Community stakeholders possess a valuable and often rich appreciation of the multilevel, complex social realities that contribute to disparities in health and health care for children and families. Community-engaged research holds the potential to address disparities in health and health care, yet few investigators pursue partnerships and community participation because of a lack of training and perceived barriers including the time commitment and difficulty generating empirical publications from such research. The PROMISE Core will support investigators in taking a community-based, participatory approach in their research and address the barriers that dissuade investigators, especially early career investigators, from engaging in this approach. Specifically, the PROMISE Core will establish an institutional infrastructure that prepares investigators by: a) training them in community- engaged research frameworks, b) forming and facilitating ongoing project work groups for specific investigators and relevant community stakeholders, c) providing ongoing technical assistance/consultation, and d) maintaining a data repository to support investigators in expediently generating rigorous evidence in response to community- priority questions. This institutional infrastructure will apply a framework for the successful engagement of community stakeholders and investigators in a process of equal participation in all aspects of the research process, including co-construction, co-execution, and shared interpretation and dissemination of findings. The PROMISE Core aims to: 1) create a dynamic, responsive infrastructure to support investigators in their pursuit of conducting stakeholder-engaged intervention-focused research to address pediatric health disparities, 2) prepare and support investigators in participating in stakeholder-engaged research and producing, translating, and utilizing scientific knowledge to improve community health, and (3) manage and sustain these resources to broadly support community-engaged research to address health disparities. Dr. J. J. Cutuli will direct the PROMISE Core, supported by a core Internal Advisory Committee, the REACH Stakeholder Advisory Committee and the existing Delaware Clinical and Translational Research ACCEL Program Community Engagement and Outreach Core Community Advisory Council. The PROMISE Core will bring community expertise to bear on questions of inequity in pediatric health and health care, enabling the REACH Center to achieve its overall goals of developing, evaluating, and implementing new interventions and models of care to overcome the complex socioecological factors that contribute to health inequity.

项目概要 利益相关者参与中的儿科研究优化方法 (PROMISE) 核心将支持 研究通过促进儿童参与来扩大儿童健康覆盖范围 (REACH) COBRE 调查 社区和研究者在整个研究过程中作为平等的共同参与者。社区是 儿科护理有效、全面和公平转型的强大且重要的合作伙伴。 社区利益相关者对多层次、复杂的社会现实具有宝贵且往往丰富的认识 这造成了儿童和家庭健康和保健方面的差异。社区参与的研究 具有解决健康和医疗保健方面差异的潜力，但很少有研究人员寻求伙伴关系和 由于缺乏培训和明显的障碍（包括时间投入和 很难从此类研究中产生实证出版物。 PROMISE Core 将支持研究人员 在研究中采取基于社区的参与式方法，并解决阻碍的障碍 调查人员，尤其是早期职业调查人员，避免采用这种方法。具体来说，承诺 核心将建立一个机构基础设施，通过以下方式为调查人员做好准备：a）在社区中培训他们- 参与研究框架，b）为特定研究人员组建和促进正在进行的项目工作组 和相关社区利益相关者，c) 提供持续的技术援助/咨询，以及 d) 维护 一个数据存储库，用于支持调查人员迅速生成严格的证据以响应社区的需求 优先问题。该机构基础设施将应用一个框架，以促进各方的成功参与 社区利益相关者和研究者平等参与研究的各个方面 过程，包括共同构建、共同执行以及共同解释和传播研究结果。这 PROMISE Core 的目标是：1) 创建一个动态、响应迅速的基础设施来支持调查人员的追求 开展利益相关者参与的以干预为重点的研究，以解决儿科健康差异问题，2) 准备并支持调查人员参与利益相关者参与的研究以及制作、翻译、 利用科学知识改善社区健康，以及 (3) 管理和维持这些资源 广泛支持社区参与的研究，以解决健康差异问题。 J. J. Cutuli 博士将指导 PROMISE Core，由核心内部咨询委员会、REACH 利益相关者咨询委员会支持 以及现有的特拉华州临床和转化研究 ACCEL 计划社区参与和 外展核心社区咨询委员会。 PROMISE Core 将带来社区专业知识 儿科健康和保健方面的不平等问题，使 REACH 中心能够实现其总体目标 制定、评估和实施新的干预措施和护理模式以克服复杂的问题 造成健康不平等的社会生态因素。