Pediatric Research Optimizing Methods in Stakeholder Engagement (PROMISE)

儿科研究优化利益相关者参与的方法（PROMISE）

• 批准号: 10580764
• 负责人: JOSEPH J CUTULI
• 金额: $ 29.52万
• 依托单位: ALFRED I. DU PONT HOSP FOR CHILDREN
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-03-01 至 2027-02-28
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10580764
• 关键词: Accountability; Address; Adoption; Advisory Committees; Advocate; Area; Belief; Biomedical Research; Caring; Centers of Research Excellence; Child; Child Health; Child Welfare; Child health care; Childhood; Clinical Research; Clinical Trials Network; Collaborations; Communities; Community Health; Community Outreach; Community Participation; Complex; Consultations; Data Set; Delaware; Disadvantaged; Ecology; Ensure; Equity; Family; Fostering; Funding; Generations; Goals; Health; Healthcare; Healthcare Systems; Income; Individual; Inequity; Infrastructure; Institution; Intervention; Investigation; Investments; Knowledge; Leadership; Methods; Modeling; Participant; Pediatric Hospitals; Pediatric Research; Peer Review; Phase; Policies; Positioning Attribute; Process; Provider; Public Policy; Publications; Reporting; Research; Research Personnel; Research Priority; Research Support; Resources; Route; Secure; Time; Training; Translating; Translational Research; Trust; Work; base; career; community engaged research; community engagement; community partnership; data repository; health disparity; health inequalities; improved; innovation; meetings; member; operation; outreach; programs; racial disparity; research in practice; response; social; success; tool; working group

PROJECT SUMMARY The Pediatric Research Optimizing Methods In Stakeholder Engagement (PROMISE) Core will support Research Expanding Access to Child Health (REACH) COBRE investigations by fostering engagement of communities and investigators as equal co-participants throughout the research process. Communities are powerful and essential partners in the effective, comprehensive, and equitable transformation of pediatric care. Community stakeholders possess a valuable and often rich appreciation of the multilevel, complex social realities that contribute to disparities in health and health care for children and families. Community-engaged research holds the potential to address disparities in health and health care, yet few investigators pursue partnerships and community participation because of a lack of training and perceived barriers including the time commitment and difficulty generating empirical publications from such research. The PROMISE Core will support investigators in taking a community-based, participatory approach in their research and address the barriers that dissuade investigators, especially early career investigators, from engaging in this approach. Specifically, the PROMISE Core will establish an institutional infrastructure that prepares investigators by: a) training them in community- engaged research frameworks, b) forming and facilitating ongoing project work groups for specific investigators and relevant community stakeholders, c) providing ongoing technical assistance/consultation, and d) maintaining a data repository to support investigators in expediently generating rigorous evidence in response to community- priority questions. This institutional infrastructure will apply a framework for the successful engagement of community stakeholders and investigators in a process of equal participation in all aspects of the research process, including co-construction, co-execution, and shared interpretation and dissemination of findings. The PROMISE Core aims to: 1) create a dynamic, responsive infrastructure to support investigators in their pursuit of conducting stakeholder-engaged intervention-focused research to address pediatric health disparities, 2) prepare and support investigators in participating in stakeholder-engaged research and producing, translating, and utilizing scientific knowledge to improve community health, and (3) manage and sustain these resources to broadly support community-engaged research to address health disparities. Dr. J. J. Cutuli will direct the PROMISE Core, supported by a core Internal Advisory Committee, the REACH Stakeholder Advisory Committee and the existing Delaware Clinical and Translational Research ACCEL Program Community Engagement and Outreach Core Community Advisory Council. The PROMISE Core will bring community expertise to bear on questions of inequity in pediatric health and health care, enabling the REACH Center to achieve its overall goals of developing, evaluating, and implementing new interventions and models of care to overcome the complex socioecological factors that contribute to health inequity.

项目摘要 儿科研究利益相关者参与优化方法（PROMISE）核心将支持 研究通过促进参与来扩大儿童健康的可及性（REACH）COBRE调查 在整个研究过程中，社区和研究人员作为平等的共同参与者。社区 在儿科护理的有效，全面和公平的转变中，我们是强大和重要的合作伙伴。 社区利益攸关方对多层次、复杂的社会现实具有宝贵的、往往是丰富的认识 这造成了儿童和家庭在健康和保健方面的差距。社区参与的研究 具有解决健康和医疗保健方面差距的潜力，但很少有研究人员寻求合作伙伴关系， 社区参与，因为缺乏培训和认识到的障碍，包括时间承诺， 很难从这样的研究中产生经验性的出版物。PROMISE核心将支持调查人员， 在他们的研究中采取以社区为基础的参与性方法，并解决阻碍他们的障碍。 调查人员，特别是早期职业调查人员，参与这种方法。具体而言，承诺 核心方案将建立一个机构基础设施，通过以下方式为调查人员做好准备： 参与的研究框架，B）为特定的调查人员组建和促进正在进行的项目工作组 和相关的社区利益攸关方，c）提供持续的技术援助/咨询，以及d）维护 一个数据储存库，以支持调查人员方便地生成严格的证据，以应对社区- 优先问题。这一体制基础设施将适用一个框架， 社区利益相关者和调查人员平等参与研究的各个方面 进程，包括共同建设、共同执行、共同解释和传播调查结果。的 PROMISE核心旨在：1）创建一个动态的，响应式的基础设施，以支持调查人员的追求 开展以家长参与干预为重点的研究，以解决儿科健康差距，2） 准备和支持研究人员参与业主参与的研究和生产，翻译， 并利用科学知识来改善社区健康，以及（3）管理和维持这些资源， 广泛支持社区参与的研究，以解决健康差距问题。J·J·卡图利博士将指导 PROMISE核心，由核心内部咨询委员会，REACH利益相关者咨询委员会支持 和现有的特拉华州临床和转化研究ACCEL计划社区参与， 外展核心社区咨询理事会。PROMISE核心将带来社区专业知识， 儿科健康和医疗保健中的不公平问题，使REACH中心能够实现其总体目标 开发，评估和实施新的干预措施和护理模式，以克服复杂的 造成健康不平等的社会生态因素。