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SHARES: Substance use HeAlth REcord Sharing

分享：药物使用健康记录共享

基本信息

批准号：
10582423
负责人：
MARIA ADELA GRANDO
金额：
$ 67.42万
依托单位：
ARIZONA STATE UNIVERSITY-TEMPE CAMPUS
依托单位国家：
美国
项目类别：
财政年份：
2023
资助国家：
美国
起止时间：
2023-08-01 至 2028-05-31
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/10582423
关键词：
Adopted Advocate Award Caring Clinic Clinical Clinical Treatment Clinical Trials Network Collaborations Communication Computer software Data Data Protection Diagnosis Drug abuse Effectiveness Electronic Health Record Emergency department visit Equilibrium Ethics Evaluation Focus Groups Health Health Personnel Health system Healthcare Healthcare Systems Hydrocodone Informatics Institution Interdisciplinary Study International Statistical Classification of Diseases and Related Health Problems, Tenth Revision (ICD-10)Language Laws Legal Literature Manuals Marijuana Dependence Medical Medical Records Medicine Mental Health Methods Modeling Opioid Outcome Patient Data Privacy Patient Preferences Patient-Focused Outcomes Patients Performance Pharmaceutical Preparations Policies Privacy Procedures Process Provider Public Health Publications Qualitative Research Quality of Care Recommendation Recording of previous events Research Site Standardization Substance Use Disorder Surveys Technology Terminology Testing United States Substance Abuse and Mental Health Services Administration Voice addiction automated segmentation care delivery data access data interoperability data privacy data sharing follow-up health care service organization health data health plan health record improved insight integrated care interoperability knowledge base novel novel strategies patient engagement patient oriented patient safety preference privacy protection service delivery social stigma substance use tool willingness

项目摘要

PROJECT SUMMARY Integrated care is critical and becoming more common, but balancing the privacy needs of patients with substance use disorders (SUD) and increasing patient safety through data access is a challenge to realizing its full potential. Our previous award (R01MH108992) found: 1) a general dearth of research on SUD data privacy and confidentiality; 2) few publications on how SUD data sharing protections impact care; 3) inadequate interdisciplinary research on SUD data protections; 4) minimal inclusion of patients and advocates in SUD data privacy literature; 5) sparse quantitative and qualitative research on SUD data privacy (opinions and legal reviews are predominant); and 6) low accuracy for electronic health record sensitive data segmentation software sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA). The focus is to amplify patients’ and providers' voices on Substance use HeAlth REcord Sharing (SHARES). Research question: Elucidate SUD data sharing challenges and the feasibility of automated data segmentation to improve data interoperability and health care for those with SUD. Study sites: three integrated clinics, a health system, a SUD treatment clinic, a health plan and a state’s health information exchange. Specific aims: Aim 1: Explore patient and provider views on SUD data sharing and health care to inform policies on SUD data privacy and confidentiality; Aim 2: Demonstrate the feasibility and accuracy of automated SUD data segmentation by proposing novel informatics methods and tools that advance automated SUD data segmentation; Aim 3: Evaluate the clinical accuracy and impact of automated SUD data segmentation demonstrating that patient-controlled data sharing improves service delivery and SUD patient outcomes. Impact: SHARES introduces novel, standard-based, institution-independent, EHR-agnostic and scalable sensitive health data segmentation methods and technology to improve data sharing and interoperability between healthcare institutions and service delivery and patient outcomes for those with SUD.

项目总结