SHARES: Substance use HeAlth REcord Sharing

分享：药物使用健康记录共享

• 批准号: 10582423
• 负责人: MARIA ADELA GRANDO
• 金额: $ 67.42万
• 依托单位: ARIZONA STATE UNIVERSITY-TEMPE CAMPUS
• 依托单位国家: 美国
• 财政年份: 2023
• 资助国家: 美国
• 起止时间: 2023-08-01 至 2028-05-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10582423
• 关键词: Adopted; Advocate; Award; Caring; Clinic; Clinical; Clinical Treatment; Clinical Trials Network; Collaborations; Communication; Computer software; Data; Data Protection; Diagnosis; Drug abuse; Effectiveness; Electronic Health Record; Emergency department visit; Equilibrium; Ethics; Evaluation; Focus Groups; Health; Health Personnel; Health system; Healthcare; Healthcare Systems; Hydrocodone; Informatics; Institution; Interdisciplinary Study; International Statistical Classification of Diseases and Related Health Problems, Tenth Revision (ICD-10); Language; Laws; Legal; Literature; Manuals; Marijuana Dependence; Medical; Medical Records; Medicine; Mental Health; Methods; Modeling; Opioid; Outcome; Patient Data Privacy; Patient Preferences; Patient-Focused Outcomes; Patients; Performance; Pharmaceutical Preparations; Policies; Privacy; Procedures; Process; Provider; Public Health; Publications; Qualitative Research; Quality of Care; Recommendation; Recording of previous events; Research; Site; Standardization; Substance Use Disorder; Surveys; Technology; Terminology; Testing; United States Substance Abuse and Mental Health Services Administration; Voice; addiction; automated segmentation; care delivery; data access; data interoperability; data privacy; data sharing; follow-up; health care service organization; health data; health plan; health record; improved; insight; integrated care; interoperability; knowledge base; novel; novel strategies; patient engagement; patient oriented; patient safety; preference; privacy protection; service delivery; social stigma; substance use; tool; willingness

PROJECT SUMMARY Integrated care is critical and becoming more common, but balancing the privacy needs of patients with substance use disorders (SUD) and increasing patient safety through data access is a challenge to realizing its full potential. Our previous award (R01MH108992) found: 1) a general dearth of research on SUD data privacy and confidentiality; 2) few publications on how SUD data sharing protections impact care; 3) inadequate interdisciplinary research on SUD data protections; 4) minimal inclusion of patients and advocates in SUD data privacy literature; 5) sparse quantitative and qualitative research on SUD data privacy (opinions and legal reviews are predominant); and 6) low accuracy for electronic health record sensitive data segmentation software sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA). The focus is to amplify patients’ and providers' voices on Substance use HeAlth REcord Sharing (SHARES). Research question: Elucidate SUD data sharing challenges and the feasibility of automated data segmentation to improve data interoperability and health care for those with SUD. Study sites: three integrated clinics, a health system, a SUD treatment clinic, a health plan and a state’s health information exchange. Specific aims: Aim 1: Explore patient and provider views on SUD data sharing and health care to inform policies on SUD data privacy and confidentiality; Aim 2: Demonstrate the feasibility and accuracy of automated SUD data segmentation by proposing novel informatics methods and tools that advance automated SUD data segmentation; Aim 3: Evaluate the clinical accuracy and impact of automated SUD data segmentation demonstrating that patient-controlled data sharing improves service delivery and SUD patient outcomes. Impact: SHARES introduces novel, standard-based, institution-independent, EHR-agnostic and scalable sensitive health data segmentation methods and technology to improve data sharing and interoperability between healthcare institutions and service delivery and patient outcomes for those with SUD.

项目摘要 综合护理至关重要，而且越来越普遍，但要平衡 物质使用障碍（SUD）患者，并通过数据访问提高患者安全性 是实现其全部潜力的挑战。我们之前的裁决（R 01 MH 108992）发现：1）a 关于SUD数据隐私和保密性的研究普遍缺乏; 2）关于如何保护数据的出版物很少 SUD数据共享保护影响护理; 3）对SUD数据的跨学科研究不足 保护; 4）在SUD数据隐私文献中最少纳入患者和倡导者; 5） 关于SUD数据隐私的稀疏定量和定性研究（意见和法律的评论 占主导地位）;以及6）电子健康记录敏感数据分割的准确性低 由物质滥用和精神健康服务管理局赞助的软件 （SAMHSA）。 重点是扩大患者和提供者的声音， 物质使用健康记录 分享（SHARES）。 研究问题：阐明SUD数据共享的挑战和 自动数据分割的可行性，以提高数据互操作性和医疗保健， 那些有SUD的人研究地点：三个综合诊所，一个卫生系统，一个SUD治疗诊所，一个 健康计划和州健康信息交换。具体目标： 目标1：探索患者 和提供商对SUD数据共享和医疗保健的看法，以告知SUD数据政策 隐私和保密;目标2：展示自动化的可行性和准确性 通过提出新的信息学方法和工具， 自动SUD数据分割;目的3：评价临床准确性和影响 自动SUD数据分割证明患者控制的数据共享 改善服务交付和SUD患者的治疗效果。影响：分享介绍小说， 基于标准、独立于机构、与EHR无关且可扩展的敏感健康数据 分段方法和技术，以改善数据共享和互操作性之间 医疗机构和服务交付以及SUD患者的治疗效果。