Outreach, Recruitment and Engagement Core

外展、招聘和参与核心

• 批准号: 10263713
• 负责人: Martha X Sajatovic
• 金额: $ 26.26万
• 依托单位: CLEVELAND CLINIC LERNER COM-CWRU
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-09-01 至 2026-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10263713
• 关键词: African American; Aging; Alzheimer' s Disease; Alzheimer' s disease related dementia; Awareness; Biological; COVID-19 pandemic; Caring; Cities; Clinical; Clinical Investigator; Clinical Research; Clinical Trials; Cognitive; Collaborations; Communication; Communities; Community Health Education; Community Outreach; Country; County; Data; Dementia; Dementia caregivers; Dementia with Lewy Bodies; Diagnosis; Disease; Elderly; Enrollment; Ensure; Evaluation; Feedback; Foundations; Funding; Goals; Heterogeneity; Hispanics; Home; Impaired cognition; Individual; Industrialization; Investigation; Leadership; Methods; Minority; Mission; Modeling; Nature; Neurocognitive Deficit; Newsletter; Ohio; Outreach Research; Participant; Pathologic; Patient Recruitments; Population; Protocols documentation; Research; Research Personnel; Risk; Rural Community; Sampling; Special Population; Subgroup; Underrepresented Populations; Veterans; Work; apolipoprotein E-4; clinical center; community engagement; community partnership; ethnic minority population; experience; high risk; improved; innovation; interest; marginalized population; member; metropolitan; mild cognitive impairment; outreach; participant retention; personalized care; programs; psychologic; racial and ethnic; racial minority; recruit; social culture; suburban communities; virtual; volunteer; web site; webinar

PROJECT SUMMARY The Outreach, Recruitment, and Engagement Core (OREC) will be responsible for providing important liaison and outreach between the Cleveland Alzheimer's Disease Research Center (CADRC) and people with dementia, their care partners and both the professional and local lay community, so that information may be communicated bi-directionally. The OREC will be led by Dr. Martha Sajatovic, a clinical investigator with over 2 decades of clinical trials and research experience, with focus on community outreach and engagement of traditionally hard-to-reach or marginalized populations. To best meet the needs of the Center, the OREC must develop and maintain a robust pool of volunteers within Northeast Ohio, with and without cognitive impairment, who are willing to participate in the CADRC Clinical Core (CC) and other activities (e.g., clinical trials). The OREC will accomplish this through 4 specific aims. The OREC will promote recruitment and retention of participants in clinical research in close collaboration with the CC (Specific Aim 1). Both cores will continuously coordinate and evaluate recruitment and outreach efforts to identify the most effective strategies, develop new recruitment methods, and build even more extensive collaboration with community stakeholders and an expanded referral network. In Specific Aim 2, the OREC will focus recruitment of key subgroups, including African-Americans (AA), individuals with dementia with Lewy bodies and atypical Alzheimer's disease (AD), and cognitively normal controls. Taken together, these special populations will provide valuable new data on asymptomatic, at-risk individuals, and individuals in the earliest stages of neurocognitive decline. The OREC will leverage the existing Minority Advisory Board (MAB) to raise awareness of the CADRC within the AA community. Recruitment of other sub-groups will build upon successful funded programs to recruit from existing subject samples. Another goal of the OREC is to promote community education and communication, disseminate research findings, and obtain feedback that will continue to improve the academic-community partnership by engaging both the lay community as well as local and regional professional groups (Specific Aim 3). The OREC will aim to support all other members of the CADRC cores as it relates to linkage between the OREC and other cores. The OREC will facilitate communication between all cores, optimize outreach activities and help ensure that all cores are actively collaborating in the central goal of advancing AD research (Specific Aim 4).

项目摘要 外联、招聘和参与核心（OREC）将负责提供重要的 克利夫兰阿尔茨海默病研究中心（CADRC）和患有阿尔茨海默病的人之间的联络和外展 痴呆症患者、他们的护理伙伴以及专业和当地的非专业社区，以便信息可以 双向沟通。OREC将由Martha Sajatovic博士领导，她是一名临床研究员， 数十年的临床试验和研究经验，专注于社区推广和参与， 传统上难以接触或被边缘化的人口。为了最好地满足中心的需要，OREC必须 在俄亥俄州东北部建立和维持一个强大的志愿者库，有和没有认知障碍， 愿意参加CADRC临床核心（CC）和其他活动（例如，临床试验）。OREC 将通过四个具体目标来实现。 OREC将密切合作，促进临床研究参与者的招募和保留 CC（Specific Aim 1）。两个核心将不断协调和评价征聘和外联工作 努力确定最有效的战略，开发新的招聘方法，并建立更广泛的 与社区利益攸关方合作，扩大转诊网络。在具体目标2中，OREC将 重点招募关键亚组，包括非裔美国人（AA）、路易氏痴呆患者 体和非典型阿尔茨海默病（AD），和认知正常对照。综合来看，这些特殊的 人群将提供关于无症状、高危个体和最早期个体的有价值的新数据。 神经认知衰退的阶段。OREC将利用现有的少数族裔咨询委员会（MAB）筹集资金 在AA社区内对CADRC的认识。其他小组的招聘将建立在成功的基础上， 从现有的受试者样本中招募。OREC的另一个目标是促进社区 教育和沟通，传播研究成果，并获得反馈，将继续改善 学术界与社区的伙伴关系，使非专业社区以及地方和区域 专业团体（具体目标3）。OREC将致力于支持CADRC核心的所有其他成员， 本发明涉及OREC和其它核之间的连接。OREC将促进所有人之间的沟通 核心，优化外联活动，并帮助确保所有核心积极合作，实现 推进AD研究（具体目标4）。