PA TH2Caregiving: Data-Driven Digital Engagement to Assess and Address the Needs of Family Caregivers

PA TH2Caregiving：数据驱动的数字参与，评估和满足家庭护理人员的需求

• 批准号: 10598028
• 负责人: Stephanie Ann Vaughn
• 金额: $ 27.45万
• 依托单位: PATH2CAREGIVING LLC
• 依托单位国家: 美国
• 财政年份: 2023
• 资助国家: 美国
• 起止时间: 2023-04-14 至 2025-03-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10598028
• 关键词: Address; Adverse effects; Aftercare; Algorithms; American; Android; Architecture; Area; Assessment tool; Caregivers; Caring; Catalogs; Centers for Disease Control and Prevention (U.S.); Communities; Computer software; Data; Development; Discharge Plannings; Ecosystem; Education; Electronic Health Record; Engineering; Environment; Family; Family Caregiver; Family member; Feedback; Focus Groups; Goals; Health; Home; Individual; Inpatients; Internet; Intervention; Interview; Laws; Link; Logic; Medicine; Mobile Health Application; Nurses; Outcome; Outcome Assessment; Patient Self-Report; Patients; Personal Satisfaction; Phase; Preparation; Process; Quality of life; Readiness; Recommendation; Rehabilitation therapy; Reproducibility; Resources; Risk; Risk Factors; Role; Screening Result; Screening procedure; Small Business Innovation Research Grant; Statutes and Laws; Surveys; Technology; Testing; Theoretical model; Time; Translating; United States National Academy of Sciences; acute care; biopsychosocial; care outcomes; care recipients; caregiver interventions; caregiver strain; caregiving; caregiving outcomes; clinical research site; design; digital; electronic health record system; evidence base; experience; feasibility testing; formative assessment; hospital care; improved; indexing; innovation; inpatient service; interoperability; mHealth; mobile application; patient home care; programs; retiree; skills; standard of care; therapy design; tool; usability

PROJECT SUMMARY/ABSTRACT Family caregivers are often required to provide post-discharge assistance to individuals with disabling conditions, resulting in strain and negative effects on the caregiver’s health and well-being. While assessing and addressing the needs of family caregivers has been identified as a priority area, there are no comprehensive programs designed to assess a family member’s readiness to provide post-discharge care and address unmet needs. PATH2Caregiving is a nurse-led comprehensive evidence-based transitional care program designed to bridge this gap by evaluating unmet caregiver needs and implementing interventions specifically tailored to address those needs. The program includes the Preparedness Assessment for the Transition Home (PATH)©, a validated, 25-item, self-report screening tool that assesses and prioritizes biopsychosocial and ecological risk factors for caregiving, and a corresponding Catalog of Caregiver Interventions© designed to minimize the adverse effects of caregiving post-discharge through education, skill building, support, and links to community resources. Implementing such a program may mitigate the adverse effects of caregiving by developing a personalized discharge and transition plan and optimized preparation for the transition home following discharge from an acute care hospital or inpatient rehabilitation facility (IRF). The goal of this Phase I SBIR project is to translate the PATH2Caregiving Program© into a usable, acceptable and accessible mHealth platform for iOS, Android, and web-browsers. The project will involve the development and testing of a mobile application (app) with minimal features (i.e., a minimum viable product [MVP]) focused on user experience (UX) and user interface (UI).The app will be tested with caregivers and clinicians of patients being discharged from an IRF. In this Phase I project we will address the following Specific Aims (SA): SA1: Identify design features for the UI and UX, operationalization survey and algorithms, and develop the necessary backend architecture for the PATH2Caregiving platform. It will involve developing the storyboards and further refinement based upon quantitative and qualitative feedback through end-user focus groups on usability. SA 2: Develop and computationally test the PATH2Caregiving software platform for accuracy, validity, and solution reproducibility. SA 3: Conduct usability and acceptability testing of the MVP with a small group of end users, including family caregivers and clinicians, to evaluate UX through quantitative surveys that include ratings of the features, format, graphics, and ease of use; and qualitative interviews to assess accessibility, usability, usefulness, and likeability of platform features. The successful development of the PATH2Caregiving MVP will be the basis for Phase II of the project that will involve feasibility testing in real-world environments with partnerships in clinical sites, further refinement of the platform as needed, and development of interoperability features for integration into EHR systems.

项目摘要/摘要 家庭照顾者经常被要求为残疾人提供出院后的帮助， 从而对护理者的健康和幸福造成压力和负面影响。在评估和解决 家庭照顾者的需求被确定为优先领域，但没有全面的方案 旨在评估家庭成员是否准备好提供出院后护理和解决未满足的需求。 PATH 2Caregiving是一项以护士为主导的综合循证过渡性护理计划，旨在 通过评估未满足的护理人员需求并实施专门针对解决这一差距的干预措施， 这些需求。该方案包括过渡家园准备情况评估（PATH）， 经过验证的25项自我报告筛选工具，用于评估生物心理社会和生态风险并确定其优先顺序 护理因素，以及相应的护理人员干预目录©，旨在最大限度地减少 通过教育、技能培养、支持和与社区的联系来改善出院后的不良影响 资源实施这样一个计划可以通过开发一个 个性化的出院和过渡计划，以及出院后回家过渡的优化准备 来自急性护理医院或住院康复机构（IRF）。第一阶段SBIR项目的目标是 将PATH 2Caregiving Program©转化为适用于iOS的可用、可接受和可访问的移动健康平台， Android和Web浏览器。该项目将涉及一个移动的应用程序（应用程序）的开发和测试 具有最小特征（即，最小可行产品[MVP]），专注于用户体验（UX）和用户界面 该应用程序将与从IRF出院的患者的护理人员和临床医生一起进行测试。在这个阶段 我预计我们将解决以下具体目标（SA）：SA 1：确定UI和UX的设计功能， 操作化调查和算法，并开发必要的后端架构， PATH 2护理平台。它将涉及开发故事板，并根据 通过最终用户焦点小组提供关于可用性的定量和定性反馈。SA 2：开发和 计算测试PATH 2Caregiving软件平台的准确性、有效性和解决方案再现性。 SA 3：与一小组最终用户（包括家庭）一起对MVP进行可用性和可接受性测试 护理人员和临床医生，通过定量调查评估用户体验，包括功能，格式， 图形和易用性;以及定性访谈，以评估可访问性、可用性、有用性和受欢迎程度 的平台特征。PATH 2护理MVP的成功开发将成为第二阶段的基础， 该项目将涉及在现实世界环境中的可行性测试，并与临床站点合作， 根据需要改进平台，并开发互操作性功能以集成到EHR中 系统.