CAPNET - Building Research Capacity in Child Abuse Pediatrics

项目摘要/摘要 儿童身体虐待是儿童发病率和死亡率的重要来源，也是可预防的医疗保健。 成本。在美国，每年有超过12万名儿童被确定遭受过身体虐待， 导致数百人死亡，数万人长期患有身心疾病， 数十亿美元的医疗成本和生产力损失。几十年来，虐待研究一直有一个 资源和调查人员严重短缺。2013年，国际医学研究所(IOM)报告《新方向》 在儿童虐待和忽视研究中“呼吁建立新的、复杂的、多学科的研究基础设施- 特别提到需要额外的多中心研究。该报告还强调了创建 统一的定义和措施，可将多个专业的数据联系起来，并招聘一名新的 有能力的调查员。自从国际移民组织的报告发表以来，虐待儿童儿科社区已经 致力于为虐待儿童问题可持续研究网络(CAPNET)奠定基础，并取得了成功 在：建立网络结构；批准治理文件；起草试点共同数据要素 (CDE)；确定初步研究议程；建立年度研究培训机构。 此应用程序计划通过创建可持续的数据资源来利用这些成就 CAPNET作为更广泛的虐待研究社区的资源。此应用程序创建的资源将 为滥用研究人员提供多中心数据收集、存储、质量保证和共享 职业范围。我们的具体目标是：目标1：完善、试点和实施基于网络的多中心数据 虐待儿童研究的收集和质量保证体系。我们将细化CDE草案，确保可行， 可靠的数据收集和跨专业的数据链接。一个数据协调中心将监督数据 管理、质量和合规性，使用中央IRB。这些资源将产生稳健的数据， 可供更广泛的研究社区使用，其中包含数千例虐待的核心临床数据 来自九个参与中心的评估。目标2：协调共享和促进多学科的学术使用 数据居中。我们将使用数据共享协议、面对面和远程会议、试点赠款、创新 网络和指导以及透明的绩效指标，在整个职业生涯中培养研究人员 连续体。目标3：开始扩大CAPNET，将儿童福利纳入其中。我们将利用社区参与 和建立共识的方法，以发展所需的关系，并确定优先研究 主题和数据领域，以应对下一阶段的协作医疗和儿童福利研究。 此应用程序创建的每个资源都将使更广泛的研究社区受益，最终导致 提高研究能力，减少护理差距，改善受虐待儿童的结果。

PROJECT SUMMARY/ABSTRACT Child physical abuse is a significant source of childhood morbidity and mortality, and preventable healthcare costs. Each year, in the US, more than 120,000 children are determined to have suffered physical abuse, resulting in hundreds of deaths and tens of thousands with long-term physical and psychological morbidity, with billions of dollars in healthcare costs and lost productivity. For decades, abuse research has had a dramatic deficit of resources and investigators. In 2013, the Institute of Medicine (IOM) report “New Directions in Child Abuse and Neglect Research” called for new, sophisticated, multidisciplinary research infrastructure – specifically citing the need for additional multi-center research. The report also highlighted the need to create uniform definitions and measures that could link data across multiple professions, and to recruit a new cadre of capable investigators. Since the publication of the IOM's report, the child abuse pediatrics community has worked to lay the foundation for a sustainable research network for child abuse (CAPNET), and has succeeded in: establishing a network structure; ratifying governance documents; drafting pilot common data elements (CDEs); identifying an initial research agenda; and establishing an annual research training institute. This application proposes to leverage these accomplishments by creating sustainable data resources to launch CAPNET as a resource for the wider abuse research community. The resources created by this application will allow multi-center data collection, storage, quality assurance and sharing for abuse researchers across the career spectrum. Our specific aims are: Aim 1: Refine, pilot and implement a web-based, multicenter data collection and quality assurance system for child abuse research. We will refine draft CDEs to ensure feasible, reliable data collection and cross-specialty data linkage. A data coordinating center will oversee data management, quality, and compliance, using a central IRB. These resources will produce a robust data, available to the wider research community, containing core clinical data from several thousand abuse evaluations from nine participating centers. Aim 2: Coordinate sharing and facilitate scholarly use of multi- center data. We will use data sharing agreements, in-person and distance meetings, pilot grants, innovative networking and mentorship and transparent performance metrics to nurture researchers across the career continuum. Aim 3: Begin expansion of CAPNET to include child welfare. We will use community engagement and consensus-building methods to develop the relationships needed, and to identify the priority research themes and data domains to address the next phase of collaborative medical and child welfare research. Each resource created by this application will benefit the wider research community, ultimately resulting in increased research capacity, decreased care disparities and improved outcomes for abused children.