Enhancing NSHAP Caregiving & Social Network Measures to Contextualize Aging & Family Caregiving of AD/ADRD among English- and Spanish-speaking Latino Older Adults

项目摘要摘要 研究人员估计，患有AD的拉丁裔人数从2012年的37.9万人增长到3.5%，增幅为832% 到2060年将达到100万。虽然家庭经常支持阿尔茨海默病患者和 阿尔茨海默病相关痴呆(AD/ADRD)，语言差异会造成特别复杂的情况 照顾者的情况，他们必须为有以下情况的家庭成员驾驭占主导地位的英语系统 恢复到他们的第一语言。这个问题对拉美裔人来说尤其尖锐，因为他们中的大多数人都是双语者， 许多家庭正在(也将会)受到复杂的照料需求的影响。经常，材料的翻译 旨在促进语言不同群体的服务访问。但为了反映潜在的文化细微差别和 确定目标语言中最好的世俗短语和/或习语表达，构建有效的 措施需要的不仅仅是翻译。此外，因为语言是公共的，所以它与 认同形成和文化适应，这会影响人们的社交网络的形成，并强化语言 技能。可以说，对有效措施的分析还应该考虑社会(语言)背景如何 影响反应。 我们建议丰富国家社会生活、健康和老龄化项目(NSHAP)，这是一项纵向研究 老年人关注社会关系、身心健康、认知、感觉和运动功能， 以及药物使用。NSHAP对拉丁裔进行了过度抽样，收集了英语和西班牙语的数据，并采访了 受访者分四轮(2005-06、2010-11、2015-16和2021-22)。然而，这些数据很少被 用于研究拉丁裔老年人的健康和社交生活。还没有进行过任何研究来比较 讲英语和西班牙语的拉美裔人的社交网络，我们对这些人的照顾一无所知 网络。NSHAP缺乏关于日常生活中语言使用的问题，也很少有关于如何使用语言的问题 文化特征可能会阻碍人们获得保健和其他重要机构的机会。要将其设置为情景 在讲西班牙语和英语的拉丁裔老年人中，AD/ADRD的老龄化和家庭照顾我们的目标是 增加NSHAP社交网络花名册和护理问题，提高NSHAP西班牙语 护理措施和社会网络，并对拉丁裔AD/ADRD实施增强的NSHAP方案 西班牙语和英语的护理员。

Project Summary Abstract Researchers estimate an 832 percent growth in the number of Latinos with AD from 379,000 in 2012 to 3.5 million by 2060. While families frequently support the communication in people with Alzheimer’s Disease and Alzheimer’s Disease Related Dementias (AD/ADRD), language differences can create particularly complex situations for caregivers who must navigate a dominant English-language system for a family member who has reverted to their first language. This issue is particularly acute for Latinos, given that the majority are bilingual, and many families are (and will be) affected by complex caregiving needs. Frequently, the translation of materials serves to promote service access for linguistically diverse groups. But to reflect underlying cultural nuances and to identify the best secular phrasing and/or idiomatic expression in the target language, constructing valid measures requires more than mere translation. Moreover, because language is communal, it is closely tied to identity formation and acculturation, which can affect people’s social network formations and reinforce language skills. Arguably, analyses of valid measures should also consider how the social (linguistic) context might influence responses. We propose to enrich the National Social Life, Health, and Aging Project (NSHAP), a longitudinal study of older adults focused on social relationships, physical and mental health, cognitive, sensory, and motor function, and medication use. NSHAP oversampled Latinos, collected data in English and Spanish, and interviewed respondents in four rounds (2005-06, 2010-11, 2015-16 and 2021-22). However, these data have rarely been used to study Latino older adults’ health and social lives. No research has been conducted that compares the social networks of English- and Spanish-speaking Latinos and we know nothing about caregiving within these networks. NSHAP lacks questions on language usage in daily life and contains few questions on how language and cultural characteristics might impede access to health and other important institutions. To contextualize aging and family caregiving of AD/ADRD among Spanish- and English-speaking Latino older adults we aim to augment the NSHAP social network roster and caregiving questions, improve NSHAP Spanish-language measures of caregiving and social networks, and administer the enhanced NSHAP protocols to Latino AD/ADRD caregivers in Spanish and English.