Investigating healthcare for rural females with complex gynecological conditions

农村女性复杂妇科疾病医疗保健调查

基本信息

  • 批准号:
    10912960
  • 负责人:
  • 金额:
    $ 16.28万
  • 依托单位:
  • 依托单位国家:
    美国
  • 项目类别:
  • 财政年份:
    2023
  • 资助国家:
    美国
  • 起止时间:
    2023-09-01 至 2024-08-31
  • 项目状态:
    已结题

项目摘要

Our proposed Research Project valuably builds directly upon the progress and insights obtained in COBRE Pilot Project Years 1 and 2 regarding healthcare and outcomes for rural females with congenital uterine anomalies (CUAs, also known as Mullerian Anomalies), a National Institutes of Health (NIH) Sexual and Gender Minority health disparity research population. CUAs are differences of development of the female reproductive tract, impacting ~7% of the general female population, resulting in a variety of health concerns including pregnancy complications, pelvic pain, infertility, and in severe cases, absence of uterus and upper portion of vagina. Females with CUAs require a range of healthcare expertise related to diagnoses, treatment and follow up care throughout their lifetime. The proposed project provides a valuable opportunity to: (1) engage our Billings Clinic CUA patient community in focus groups to expand upon insights obtained from Year 2 key informant interviews, and to define priorities for future patient-driven research; (2) assess Mountain West health system administrative records to (a) reveal the prevalence and extent of interstate travel required to receive care for CUA patients in the Mountain West, and (b) stratify gynecological cancer risk for women with CUAs according to type of cancer and variation of anomaly; and (3) examine the financial burdens and insurance barriers related to CUA-related healthcare procedures to reveal the extent of important compounding disparities in terms of healthcare cost and access to medically necessary reproductive care for this patient community. Given our ability to continue fostering partnerships with our CUA patient and provider community, the project will support the continued quantitative and qualitative analysis of clinical outcomes and patient experiences, and strengthen collaborations with regional patients and their providers across the Mountain West. Successful completion of our aims will ultimately assure patients as research partners, foster broader collaboration opportunities with regional providers caring for these women (including for future recruitment), and reveal valuable clinical data outcomes to support a competitive R01 submission.
我们提出的研究项目有价值地直接建立在COBRE的进展和见解上 试点项目第1年和第2年:农村先天性子宫内膜异位症妇女的保健和结果 异常(CUA,也称为穆勒异常),美国国立卫生研究院(NIH)性和 少数民族健康差距研究人口。CUA是女性发育的差异 生殖道感染,影响到约7%的一般女性人口,导致各种健康问题 包括妊娠并发症、盆腔疼痛、不孕症,严重的情况下, 阴道的一部分。患有CUA的女性需要一系列与诊断相关的医疗保健专业知识, 终身治疗和后续护理。拟议的项目提供了一个宝贵的机会, 目的:(1)让我们的比林斯诊所CUA患者社区参与焦点小组,以扩大所获得的见解 从第二年的关键知情人访谈,并确定未来患者驱动的研究的优先事项;(2)评估 西部山区卫生系统的行政记录,以(a)揭示州际卫生系统的流行程度和范围 在西部山区接受CUA患者护理所需的旅行,以及(B)对妇科癌症进行分层 根据癌症类型和异常的变化,对患有CUA的妇女进行风险评估;(3)检查 与CUA相关的医疗程序相关的财务负担和保险障碍,以揭示 在医疗保健费用和获得必要医疗服务方面, 生殖健康服务鉴于我们有能力继续促进与 CUA患者和提供者社区,该项目将支持持续的定量和定性 分析临床结果和患者经验,并加强与区域患者的合作 和他们的供应商成功完成我们的目标将最终确保 患者作为研究伙伴,促进与区域提供者更广泛的合作机会, 这些女性(包括未来的招募),并揭示了有价值的临床数据结果,以支持 竞争性R01提交。

项目成果

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