Conference Support for Genetic Alliance

对基因联盟的会议支持

• 批准号: 7750473
• 负责人: SHARON F. TERRY
• 金额: $ 6.4万
• 依托单位: GENETIC ALLIANCE, INC.
• 依托单位国家: 美国
• 财政年份: 2009
• 资助国家: 美国
• 起止时间: 2009-07-09 至 2011-06-20
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7750473
• 关键词: Address; Advocate; Affect; Applications Grants; Attention; Blood; Cardiovascular system; Cessation of life; Chemicals; Collaborations; Commit; Communities; Development; Diagnostic; Disabled Persons; Disease; Disease Pathway; Educational workshop; Eye; Fertilization; Funding; Genetic; Genetic Research; Genomics; Goals; Health; Health Professional; Health system; Hereditary Disease; Individual; Industry; Institution; Kidney; Lead; Link; Liver; Longevity; Malignant Bone Neoplasm; Mental Health; Methods; Minority; Mission; NIH Program Announcements; Outcome; Pancreas; Participant; Pathway interactions; Positioning Attribute; Process; Public Health; Rare Diseases; Request for Applications; Research; Research Personnel; Research Training; Resources; Scientist; Screening procedure; Services; Skin; Solutions; Training; Translational Research; Woman; Work; advocacy organizations; assay development; biobank; brain metabolism; cohort; drug development; handicapping condition; interest; meetings; novel; open source; public health relevance; repository; symposium; therapeutic development; therapy development; tool

DESCRIPTION (provided by applicant): This grant application requests support for annual conferences sponsored and coordinated by Genetic Alliance over a five-year period. Genetic Alliance, was established in 1986, and is a network of 1,000 disease specific organizations. The mission of Genetic Alliance is to transform health through genetics to accelerate the translation of research to services. This year's conference will be held on July 17-19, 2009, at the Bethesda North Marriot in Rockville, MD, a handicapped accessible hotel. This conference theme is Discovering Openness in Health Systems. The overall goal of each of the Conferences is to provide a forum for discussion about the various challenges, solutions, and opportunities in the research translation pipeline. Participants will discuss best practices in basic and translational research, encourage and solidify systemic connections, and examine methods for collaboration among researchers, clinicians and disease advocates. The annual conferences held by Genetic Alliance have consistently drawn a large, diverse, and dynamic group of participants-last year's annual conference was attended by more than 200 people including advocates, health professionals, policymakers, researchers, industry professionals, and community leaders. The target group for participants is disease communities. We define these communities as composed of the advocate leaders, the clinician-scientists and the basic researchers for each disease. The types of diseases represented at the meeting are diverse: cardiovascular, mental health, skin, eye, liver, kidney, pancreas, bone, cancer, brain, metabolism and blood. These diseases affect individuals across the lifespan. Our conference attendance is typically 65% women, and 15% minority participants. The aim of this and upcoming conferences is to create a forum for the cross-fertilization of ideas between highly diverse groups within the genetics community in order to accelerate research and treatment development. Genetic Alliance is committed to increasing collaboration across various fields - including diseases and disease pathways, federal agencies, and institutions. We build each year upon the prior year's conference. All of the tools we develop are open source and publically available, including all materials from the conference. Previous tools have included the Genetic Alliance BioBank, Disease InfoSearch, the Resource Repository and various best practices.

描述（由申请人提供）：本拨款申请请求支持遗传联盟在五年内赞助和协调的年度会议。遗传联盟成立于 1986 年，是一个由 1,000 个疾病特定组织组成的网络。基因联盟的使命是通过遗传学改变健康状况，加速研究成果向服务的转化。今年的会议将于 2009 年 7 月 17 日至 19 日在马里兰州罗克维尔的 Bethesda North Marriot 酒店举行，这是一家残疾人专用酒店。本次会议的主题是发现卫生系统的开放性。每次会议的总体目标是提供一个论坛，讨论研究翻译流程中的各种挑战、解决方案和机遇。 参与者将讨论基础研究和转化研究的最佳实践，鼓励和巩固系统联系，并研究研究人员、临床医生和疾病倡导者之间的合作方法。 基因联盟举办的年度会议一直吸引了大量、多样化且充满活力的参与者——去年的年度会议有 200 多人参加，其中包括倡导者、卫生专业人员、政策制定者、研究人员、行业专业人士和社区领袖。参与者的目标群体是疾病社区。 我们将这些社区定义为由每种疾病的倡导者领导者、临床医生科学家和基础研究人员组成。会议代表的疾病类型多种多样：心血管、心理健康、皮肤、眼睛、肝脏、肾脏、胰腺、骨骼、癌症、大脑、新陈代谢和血液。这些疾病影响个体的一生。我们的会议出席者通常有 65% 是女性，15% 是少数族裔参与者。本次会议和即将举行的会议的目的是为遗传学界高度多样化的群体之间的思想交叉创造一个论坛，以加速研究和治疗的发展。 基因联盟致力于加强各个领域的合作，包括疾病和疾病途径、联邦机构和机构。我们每年的会议都以前一年的会议为基础。我们开发的所有工具都是开源且公开的，包括会议中的所有材料。以前的工具包括遗传联盟生物库、疾病信息搜索、资源库和各种最佳实践。