Development of a Consumer Research Network for Studying Obesity

开发研究肥胖的消费者研究网络

• 批准号: 7855657
• 负责人: JULIE A JACKO
• 金额: $ 90.01万
• 依托单位: UNIVERSITY OF MINNESOTA
• 依托单位国家: 美国
• 财政年份: 2009
• 资助国家: 美国
• 起止时间: 2009-09-29 至 2011-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7855657
• 关键词: Address; Adult; Awareness; Boxing; Budgets; Clinical; Clinical Research; Communication; Consent; Coronary heart disease; Data; Data Collection; Data Element; Databases; Decision Making; Degenerative polyarthritis; Development; Dyslipidemias; Electronic Mail; Employee; Enrollment; Ensure; Epidemic; Epidemiology; Epigenetic Process; Ethical Issues; Ethics; Genetic; Goals; Health; Health Insurance Portability and Accountability Act; Health Personnel; Health Sciences; Health education; Healthcare; Human; Hypertension; Individual; Industry; Informatics; Information Systems; Instruction; Intervention Studies; Link; Malignant Neoplasms; Medical Records; Minnesota; Network-based; Non-Insulin-Dependent Diabetes Mellitus; Obesity; Online Systems; Outcome; Overweight; Ownership; Patient Self-Report; Personal Health Records; Population; Population Heterogeneity; Population Research; Prevention strategy; Privacy; Procedures; Questionnaires; Randomized; Recruitment Activity; Research; Research Infrastructure; Research Personnel; Research Project Grants; Research Subjects; Risk Factors; Science; Secure; Security; Sleep Apnea Syndromes; Stroke; System; Systems Theory; Testing; United States; Vision; Voice; Weight; base; comparative; comparative effectiveness; cost; cost effective; cost effectiveness; depression; early onset; economic impact; effectiveness research; experience; flexibility; health care delivery; health disparity; health information technology; health record; improved; innovation; meetings; obesity prevention; public health relevance; public health research; tool; web site

DESCRIPTION (provided by applicant): Consumer Research Network to Facilitate Research in the Science of Health: The primary goal of this proposal is to develop and implement an innovative consumer research network (CRN) that can advance the research in the science of improving health by creating a consumer based health information technology (HIT) infrastructure that allows investigators to connect directly with individual consumers to participate in research. This proposed CRN infrastructure will leverage an extensive network of secure web based personal health records (PHRs) through an alliance of employers of the Buyers Health Care Action Group who are implementing Personal Health Records (PHRs) to cover more than 600,000 employees and dependents. The PHRs will be populated with medical records through the Minnesota Health Information Exchange include health data for over 90% of the Minnesota population. This ground breaking effort will be the first of its kind in the United States to use a consumer based HIT network to improve research capabilities by increasing access to large diverse populations to power large epidemiological and genetic studies. It can also reduce the cost of clinical, epigenetic, and public health research as well as support consumer centric health care delivery. The study has two specific aims: 1) Develop the informatics infrastructure for the Consumer Research Network by linking the network of personal health records; 2) Conduct a comparative effective study of consumer based strategies for weight management and obesity prevention in the consenting consumer population who are in the CRN. PUBLIC HEALTH RELEVANCE: The primary goal of this proposal is to develop and implement an innovative consumer research network (CRN) that can advance the research in the science of improving health by creating a consumer based health information technology (HIT) infrastructure that allows investigators to connect directly with individual consumers to participate in research. The CRN infrastructure will leverage an extensive network of secure web based personal health records (PHRs) through an alliance of national employers of the Buyers Health Care Action Group who are implementing Personal Health Records (PHRs) to cover more than 600,000 employees and dependents. In this study, the infrastructure will be developed and the utility of it to conduct research will be used with consumers in a study of comparative effectiveness of consumer strategies for weight management and obesity prevention. This ground breaking effort will be the first of its kind in the United States to use a consumer based HIT network to improve research capabilities by increasing access to large diverse populations to power large epidemiological and genetic studies. It can also reduce the cost of clinical, epigenetic, and public health research as well as support consumer centric health care delivery.

描述（申请人提供）：促进健康科学研究的消费者研究网络：该提案的主要目标是开发和实施一个创新的消费者研究网络（CRN），通过创建基于消费者的健康信息技术（HIT），基础设施，使调查人员能够直接与个人消费者联系，参与研究。这一拟议的CRN基础设施将通过正在实施个人健康记录（PHR）的买方医疗保健行动小组的雇主联盟，利用一个广泛的基于安全网络的个人健康记录（PHR）网络，覆盖60多万名员工和家属。PHR将通过明尼苏达州健康信息交换中心提供医疗记录，包括明尼苏达州90%以上人口的健康数据。这一开创性的努力将是美国第一次使用基于消费者的HIT网络，通过增加对大量不同人群的访问来提高研究能力，从而为大型流行病学和遗传学研究提供动力。它还可以降低临床，表观遗传和公共卫生研究的成本，并支持以消费者为中心的医疗保健服务。该研究有两个具体目标：1）通过连接个人健康记录网络，为消费者研究网络开发信息学基础设施; 2）在CRN中同意的消费者人群中进行基于消费者的体重管理和肥胖预防策略的比较有效研究。 公共卫生相关性：该提案的主要目标是开发和实施一个创新的消费者研究网络（CRN），通过创建一个基于消费者的健康信息技术（HIT）基础设施，使研究人员能够直接与个人消费者联系，参与研究，从而推动改善健康科学的研究。CRN基础设施将通过买方医疗保健行动小组的国家雇主联盟利用广泛的基于安全网络的个人健康记录（PHR）网络，这些雇主正在实施个人健康记录（PHR），以覆盖600，000多名员工和家属。在这项研究中，将开发基础设施，并利用它来进行研究，将与消费者在一项研究中的消费者的体重管理和肥胖预防策略的比较有效性。这一开创性的努力将是美国第一次使用基于消费者的HIT网络，通过增加对大量不同人群的访问来提高研究能力，从而为大型流行病学和遗传学研究提供动力。它还可以降低临床，表观遗传和公共卫生研究的成本，并支持以消费者为中心的医疗保健服务。