The Creation of ASDRA (Autism Spectrum Disorder Risk Alert)
The Creation of ASDRA (Autism Spectrum Disorder Risk Alert)
批准号:
7778931
负责人:
Louise Mary Tiranoff
金额:
$89.26万
依托单位国家:
美国
项目类别:
财政年份:
2005
资助国家:
美国
项目状态:
已结题
起止时间:
2005-09-01 至 2013-02-28
关键词:
3 year oldAcademyAgeAge-YearsAmericanAreaAutistic DisorderAwarenessChildChildhoodClinicClipComplexComputer softwareComputerized Medical RecordDataData CollectionDatabasesDevelopmentDevicesDiagnosisDisabled ChildrenEarly DiagnosisEarly identificationEarly treatmentEffectivenessEnrollmentEnvironmentFamilyFeedbackGrantGuidelinesHealth PersonnelHealthcareHospitalsInfantInternetInterventionKnowledgeLibrariesLifeManualsMethodsMonitorNarrationNational Research CouncilOffice VisitsOnline SystemsOutcomeParentsPediatricsPhasePrivate PracticeProcessProductionProtocols documentationQualifyingRecommendationRecordsRecruitment ActivityReportingResearchResearch DesignResearch InfrastructureResearch PersonnelResourcesRiskScreening procedureSecureServicesSiteSmall Business Innovation Research GrantSpeedSurveysSystemTechnologyTestingTimeLineToddlerTrainingUnited States National Institutes of HealthWorkautism spectrum disorderbasecontinuing medical educationdesigndisorder riskflexibilityfollow-uphuman subjectimprovedinnovationinstrumentinterestmedical schoolspediatricianprogramsprototypepublic health relevancesoftware systemstool
中文摘要
描述(由申请人提供):GeneticaLens是一家多媒体视频制作和技术服务公司,与一个领先的研究人员团队合作,在自闭症谱系障碍(ASD)的早期检测中创建了自闭症谱系障碍风险警报(ASPLESS)。ASPLESS”是一个软件系统和集成的基于网络的工具集,可以访问视频密集型数据库,通过帮助儿科医生遵循美国儿科学会(AAP)推荐的复杂的三岁及以下儿童监测指南,促进自闭症谱系障碍(ASD)的早期评估。ASPNET”将被设计为与儿科办公室EMR程序兼容或作为一个独立的应用程序工作。在第二阶段结束时,“ASSWITCH”将提供:a.一个儿科医生家长分享工具(PPST!)一个互动的,视频增强的评估工具(IMCHAT),以及跟踪设备和提醒/警报功能。B.由两部分组成的CME课程和测试,以培训医疗保健提供者关于ASD的早期风险警报以及当发现儿童处于风险中时要遵循的转诊和随访协议; c.一个视频和数据的在线手册,供儿科医生、家庭和其他相关方持续使用。公共卫生相关性:美国儿科学会提出的新指南现在建议,所有儿童都应该在18和24个月时使用经过验证的仪器进行自闭症谱系障碍(ASD)筛查。现在有确凿的证据证明了强化早期干预对ASD婴幼儿的有效性(Dawson & Osterling,1997; National Research理事会,2001; Myers,约翰逊,and the理事会on Children with Disabilities,2007)。未在幼年时发现的儿童无法从这些早期干预措施中受益,其后果可能是终身的和毁灭性的。“ASEAN”是一个基于网络的视频密集型软件和工具集,旨在帮助儿科实践更有效地为3岁及以下儿童提供ASD的早期监测。“自闭症”将提高准确性,加快早期识别自闭症儿童风险的过程,以便尽早开始适当的干预措施,改善被诊断患有自闭症儿童的结果。
英文摘要
DESCRIPTION (provided by applicant): GeneticaLens, a multi-media video production and technology services company, has joined forces with a team of leading researchers in the early detection of Autism Spectrum Disorders (ASD) to create the Autism Spectrum Disorders Risk Alert (ASDRA"). ASDRA" is a software system and integrated web based toolset with access to a video-intensive database, that facilitates the early assessment of Autism Spectrum Disorders (ASD) by assisting pediatricians in following the complex American Academy of Pediatrics (AAP) recommended guidelines for the surveillance of children three years of age and under. ASDRA" will be designed to be compatible with pediatric office EMR programs or work as a stand-alone application. At the end of Phase II ASDRA" will provide: a. A Pediatrician Parent Share Tool (PPST!) with an interactive, video- enhanced assessment tool (the IMCHAT), as well tracking devices and reminder/alert features. b. A 2-part CME course and tests to train healthcare providers on the early risk alerts of ASD as well as the referral and follow-up protocols to follow when a child if found to be at-risk; c. An online manual of video and data for ongoing use by pediatricians, families, and other interested parties. PUBLIC HEALTH RELEVANCE: New guidelines put forth by the American Academy of Pediatrics now suggest that all children should be screened for Autism Spectrum Disorders (ASD) using a validated instrument at 18 and 24 months. There is now conclusive evidence demonstrating the effectiveness of intensive early intervention for infants and toddlers with ASD (Dawson & Osterling, 1997; National Research Council, 2001; Myers, Johnson, and the Council on Children with Disabilities, 2007). Children who are not detected at an early age cannot benefit from these early interventions, and the consequences can be life-long and devastating. ASDRA" a web-based, video-intensive software and toolset, is design to assist pediatric practices to more effectively and efficiently provide early surveillance of ASD for children 3 years of age and younger. ASDRA" will improve the accuracy and speed up the process of early identification of children at-risk for ASD so that the appropriate interventions can begin as early as possible and the outcomes of children diagnosed with ASD can be improved.
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会议论文
The development of the Clinical Picture Maker, a novel video platform to aid the diagnosis and treatment of SCN2A-related disorders, and other rare diseases.
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批准号:10759930
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项目类别:
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资助金额:$32.19万
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财政年份:2023
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负责人:Louise Mary Tiranoff
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依托单位:
Creation of ASDRA (Autism Spectrum Disorder Risk Alert)
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批准号:6994966
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项目类别:
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资助金额:$44.93万
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财政年份:2005
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负责人:Louise Mary Tiranoff
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依托单位:
FACILITATING THE DIAGNOSIS OF ANGELMAN SYNDROME
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批准号:6181684
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项目类别:
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资助金额:$32.73万
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财政年份:1995
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负责人:Louise Mary Tiranoff
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依托单位:
FACILITATING THE DIAGNOSIS OF ANGELMAN SYNDROME
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批准号:6554366
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项目类别:
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资助金额:$5.0万
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财政年份:1995
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负责人:Louise Mary Tiranoff
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依托单位:
海外基金