Symptoms and Self Management in Low Income African Americans with Advanced Cancer

患有晚期癌症的低收入非裔美国人的症状和自我管理

• 批准号: 7910082
• 负责人: Katherine Aylward Yeager
• 金额: $ 2.93万
• 依托单位: EMORY UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2010
• 资助国家: 美国
• 起止时间: 2010-04-29 至 2012-04-28
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7910082
• 关键词: Address; Adult; Advanced Malignant Neoplasm; African American; American Cancer Society; Area; Cancer Patient; Centers for Disease Control and Prevention (U.S.); Diagnosis; Disadvantaged; Enrollment; Health; Healthy People 2010; Home environment; Human; Institute of Medicine (U.S.); Intervention; Interview; Literature; Low income; Malignant Neoplasms; National Cancer Institute; National Center on Minority Health and Health Disparities; National Institute of Nursing Research; Outcome; Patients; Quality of life; Research; Resources; Self Management; Services; Staging; Strategic Planning; Symptoms; Testing; Time; United States; Woman; cancer care; end of life; experience; health disparity; improved; interest; men; programs; public health relevance; symptom management

DESCRIPTION (provided by applicant): This purpose of the study is to explore the symptom experience and symptom self- management practices of low-income African American adults with Stage IV cancer. The specific aims are to: 1) explore the symptom experience of low-income African American patients with advanced cancer and 2) explore the symptom self-management experience of low- income African American patients with advanced cancer. A qualitative descriptive approach will be used to describe the symptom experiences as described by patients including a description of their symptoms, strategies used to manage symptoms and any facilitators and barriers to their management of cancer-related symptoms. Approximately 15 men and 15 women will be enrolled in in-depth interviews to discuss symptom experience and symptom self-management strategies. Understanding and correcting disparities has become a priority for many leading research organizations such as the National Cancer Institute, the National Center on Minority Health and Health Disparities, the National Institute of Nursing Research, the National Centers for Disease Control and Prevention, the Institute of Medicine, Healthy People 2010 of Health and Human Services, and the American Cancer Society. The significance of this study addresses the initiatives of many of these organizations. Specifically the focus of this application addresses two of the four areas of research interest of the NINR Strategic Plan (2006-2010), improving quality of life and eliminating health disparities, and has implications for a third area, end-of-life. PUBLIC HEALTH RELEVANCE: The experience of low income African Americans with cancer needs to be described to begin to further understand and eliminate disparities in cancer care in the United States. The gap in the literature in symptom management is worrisome at a time when more African Americans are being diagnosed with advanced cancer and patients are being asked to manage symptoms at home with limited resources. The information gained from this study will provide the groundwork for a larger research program to develop and test culturally appropriate interventions to improve symptom self-management strategies and outcomes in this disadvantaged group.

描述（由申请人提供）：本研究的目的是探索患有IV期癌症的低收入非洲裔美国成年人的症状体验和症状自我管理实践。具体目标是：1）探索患有晚期癌症的低收入非洲裔美国人患者的症状体验和2）探索患有晚期癌症的低收入非洲裔美国人患者的症状自我管理体验。将使用定性描述性方法描述患者描述的症状经历，包括其症状描述、用于管理症状的策略以及管理癌症相关症状的任何促进因素和障碍。大约15名男性和15名女性将参加深入访谈，讨论症状经验和症状自我管理策略。了解和纠正差异已成为许多领先的研究组织的优先事项，如国家癌症研究所，国家少数民族健康和健康差异中心，国家护理研究所，国家疾病控制和预防中心，医学研究所，健康人2010年健康和人类服务，以及美国癌症协会。这项研究的重要性涉及许多这些组织的倡议。具体而言，这一应用的重点涉及国家康复研究所战略计划（2006-2010年）四个研究领域中的两个领域，即提高生活质量和消除健康差距，并对第三个领域，即临终关怀产生影响。 公共卫生关系：需要描述低收入非洲裔美国人患有癌症的经历，以开始进一步了解和消除美国癌症护理的差异。在越来越多的非洲裔美国人被诊断出患有晚期癌症，患者被要求在资源有限的情况下在家管理症状的时候，症状管理文献中的差距令人担忧。从这项研究中获得的信息将提供一个更大的研究计划，开发和测试文化上适当的干预措施，以改善症状自我管理策略和结果在这个弱势群体的基础。