Internet Based System for Managing Obesity in Children with Disabilities

基于互联网的残疾儿童肥胖管理系统

• 批准号: 8737307
• 负责人: JAMES Howard RIMMER
• 金额: $ 17.24万
• 依托单位: UNIVERSITY OF ALABAMA AT BIRMINGHAM
• 依托单位国家: 美国
• 财政年份: 2013
• 资助国家: 美国
• 起止时间: 2013-09-18 至 2016-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/8737307
• 关键词: Address; Adult; Area; Asthma; Attention; Awareness; Behavior; Behavioral; Blood; Body Weight; Body Weight decreased; Child; Cholesterol; Clinical; Communication; Communities; Community Participation; Data; Developmental Disabilities; Diabetes Mellitus; Diet; Disabled Children; Disabled Persons; Eating; Effectiveness of Interventions; Environment; Environmental Risk Factor; Equipment and supply inventories; Exercise; Face; Family; Family member; Feasibility Studies; Feedback; Friends; Future; Goals; Health; Health Care Costs; Health Personnel; Health Professional; Health Promotion; Health Status; Health behavior; Healthcare Systems; Home environment; Incidence; Information Technology; Internet; Intervention; Knowledge; Life; Meningomyelocele; Mental Depression; Monitor; NIH Program Announcements; Nutritional; Obesity; Online Systems; Outcome; Paper; Parents; Phase; Physical Education; Physical activity; Pilot Projects; Principal Investigator; Public Health; Publishing; Qualifying; Randomized; Randomized Controlled Trials; Recreation; Reporting; Research; Research Personnel; Resources; Risk; Sample Size; Schools; Services; Social Environment; Spinal Dysraphism; Sports; System; Technology; Testing; Time; Training; Transportation; Weight; Weight maintenance regimen; Work; Youth; base; cost effective; design; disability; eHealth; economic impact; evidence base; experience; health disparity; improved; innovation; interest; novel; nutrition; obesity in children; obesity management; obesity prevention; patient population; programs; public health relevance; response; sedentary; self esteem; telehealth systems; tool; usability; web site

DESCRIPTION (provided by applicant): Children with spina bifida experience significantly higher rates of obesity, physical inactivity, poor nutrition and secondary health conditions compared to non-disabled children and children with other types of disabilities. Their ability to participate in health-promoting behaviors (i.e., physical activity, nutrition) is greatly compromisd by (a) inaccessible features in the built environment (e.g., parks, playgrounds, recreational sports programs, physical education classes, etc.); (b) lack of awareness or knowledge on the part of family members in managing their child's weight; and (c) lack of health promotion programs tailored to the needs of children with spina bifida. The primary aim of this application is to evaluate the potential for use of an Information and Communication Technology (ICT) system, referred to as POWERS - Personalized Online Weight and Exercise Response System, to provide individualized physical activity and nutrition programming to geographically diverse children with low incidence disabilities such as spina bifida. The theoretical framework is based on the Principal Investigator's current research related to a blended telecoaching/internet-assisted health promotion intervention that demonstrated successful weight loss in obese adults with physical disabilities. This e-health application will be customized for parents of children wih spina bifida to assist them in making appropriate choices in promoting increased physical activity and improved nutrition within the context of the child's current home, school and community using a blended internet- and telecoaching-assisted program. The POWERS platform includes: (a) an extensive toolkit that assesses personal and environmental factors associated with physical activity and nutrition and a health appraisal inventory examining functional limitations and secondary health conditions to allow for customization to each end user; (b) an automated system for generating specific, achievable goals tailored to each child's needs and interests and associated with the availability of home and community resources; (c) telecoaching by a trained health professional to support key health behaviors (physical activity, nutrition) through an online communication network; and (d) a feedback system that allows health providers and family members to monitor daily progress toward physical activity and nutrition goals. A feasibility pilot study will be conducted with 36 children with spina bifida (6 o 12 years) to examine the utility of the system in improving physical activity and nutrition behaviors. Target outcomes include changes in physical activity level, improved nutrition, body weight, and community participation. This proposal extends previous work to: 1) further refine and evaluate the POWERS platform, and 2) conduct a 12-week feasibility trial to determine effect size of intervention outcomes to inform a future RCT. The ICT system has the built-in capability (if proven effective) to be used by researchers and health professionals in addressing obesity disparities with other disabled populations.

描述（由申请人提供）：与非残疾儿童和其他类型的残疾儿童相比，脊柱裂儿童的肥胖、缺乏运动、营养不良和继发性健康状况的发生率明显较高。他们参与促进健康行为的能力（即，身体活动，营养）被（a）建筑环境中不可接近的特征（例如，公园、游乐场、休闲体育项目、体育课等）; (b)家庭成员缺乏管理子女体重的意识或知识;以及（c）缺乏针对脊柱裂儿童需要的健康促进方案。本申请的主要目的是评估使用信息和通信技术（ICT）系统（称为POWERS-个性化在线体重和运动响应系统）的潜力，为地理位置不同的低发病率残疾儿童（如脊柱裂）提供个性化的身体活动和营养计划。该理论框架基于主要研究者目前的研究，该研究与混合式远程教练/互联网辅助健康促进干预有关，该干预在患有身体残疾的肥胖成年人中成功减肥。这一电子保健应用程序将为脊柱裂儿童的父母量身定制，以帮助他们做出适当的选择，在儿童目前的家庭、学校和社区范围内，利用混合的互联网和远程辅导辅助方案，促进增加体育活动和改善营养。POWERS平台包括：（a）一个广泛的工具包，用于评估与体力活动和营养有关的个人和环境因素，以及一个健康评估清单，检查功能限制和次级健康状况，以便能够针对每个最终用户进行定制;（B）一个自动化系统，用于根据每个儿童的需要和兴趣，并结合家庭和社区资源的可用性，制定具体的、可实现的目标;（c）由训练有素的保健专业人员通过在线通信网络提供远程辅导，以支持关键的健康行为（体育活动、营养）;以及（d）反馈系统，使保健提供者和家庭成员能够监测实现体育活动和营养目标的日常进展。将对36名脊柱裂儿童（6至12岁）进行可行性试点研究，以检查该系统在改善体力活动和营养行为方面的效用。目标成果包括身体活动水平的变化、营养的改善、体重和社区参与。该提案扩展了以前的工作：1）进一步完善和评估POWERS平台，2）进行为期12周的可行性试验，以确定干预结果的效应量，为未来的RCT提供信息。信息和通信技术系统具有内置能力（如果证明有效），可供研究人员和卫生专业人员用于解决肥胖与其他残疾人口的差距。