Nemours NCI Community Oncology Research Program (NCORP)

描述(由申请人提供)：Nemour是国际公认的多站点儿科保健系统，建立在致力于改善所有儿童健康的集中、高效和协作的研究基础设施之上。2012年，凭借超过25年的临床试验研究经验，Nemour儿科肿瘤学网站成立了Nemour社区临床肿瘤学计划(CCOP)，该计划于2013年6月获得资助。虽然内穆斯Alfred I DuPont儿童医院(威尔明顿，DE)、内穆斯儿童诊所(佛罗里达州杰克逊维尔)、内穆斯儿童医院(佛罗里达州奥兰多)和内穆斯儿童诊所(佛罗里达州彭萨科拉)都有出色的临床试验参与记录，但内穆斯CCOP下的四个儿科项目的协调为资源提供了更好的开发和利用。在前六个月的资助中，Nemour CCOP已经超过了前几年的癌症控制收益(现在在所有儿童肿瘤学小组网站中排名第四)，并超过了之前治疗试验的收益速度。内穆尔基金会提供了必要的资源和支持，使内穆尔社区合作伙伴计划能够在短时间内脱颖而出。在建立Nemour CCOP的过程中，我们认识到向NCI社区肿瘤学研究计划(NCORP)结构的必要过渡。为了确保成功过渡，Nemour投资了最先进的数据管理系统、强大的质量管理计划，并招募了联邦资助的癌症护理提供研究人员，以建立Nemour医疗保健提供科学中心。Nemour NCORP将允许开发儿童癌症研究基础设施，以实现以下目标：1)通过有意义地使用电子资源和改善整个护理过程中的最佳实践，通过增加试验收益，加快预防和治疗癌症及其症状的干预措施的发展；2)扩大和维护支持NCI资助的癌症护理提供研究的有成效和高效率的基础设施；以及3)通过传播、讨论和采用临床试验的结果，以及通过医生、家庭和社区教育，在社区中促进高质量的护理。

DESCRIPTION (provided by applicant): Nemours is internationally recognized, multi-site pediatric healthcare system that is built upon a centralized, efficient and collaborative research infrastructure committed to improving the health of all children. In 2012, with over 25 years' experience in clinical trials research, the Nemours pediatric oncology sites formed the Nemours Community Clinical Oncology Program (CCOP), which was funded in June of 2013. While Nemours Alfred I duPont Hospital for Children (Wilmington, DE), Nemours Children's Clinics - Jacksonville, Florida, Nemours Children's Hospital (Orlando, FL) and Nemours Children's Clinic -Pensacola, FL all had outstanding records of clinical trial participation, alignment of the four pediatric programs under the Nemours CCOP provided better development and utilization of resources. In the first six months of funding, the Nemours CCOP has eclipsed Cancer Control accruals from previous years (now 4th among all Children's Oncology Group sites), and exceeded the previous pace of treatment trail accruals. The Nemours Foundation has provided necessary resources and support to permit the Nemours CCOP to excel in a short period of time. In building the Nemours CCOP, we recognized the necessary transition to the NCI Community Oncology Research Program (NCORP) structure. To ensure a successful transition, Nemours invested in a state-of-the-art data management system, a robust quality management plan, and the recruitment of federally-funded Cancer Care Delivery researchers to establish the Nemours Center for Healthcare Delivery Science. The Nemours NCORP will permit development of a childhood cancer research infrastructure that achieves the following aims: 1) to accelerate development of interventions to prevent and treat cancer and its symptoms by increasing accrual to trials, through meaningful use of electronic resources, and improving best practices across the continuum of care, 2) to expand and maintain an infrastructure supportive of productive and efficient participation in NCI-funded Cancer Care Delivery Research, and 3) to foster quality care in the community through dissemination, discussion and adoption of results from clinical trials, and through physician, family and community education.