Nemours NCI Community Oncology Research Program (NCORP)

描述（由申请人提供）：Nemours是国际公认的多站点儿科医疗保健系统，建立在集中，高效和协作的研究基础设施上，致力于改善所有儿童的健康。2012年，凭借超过25年的临床试验研究经验，Nemours儿科肿瘤中心成立了Nemours社区临床肿瘤项目（CCOP），该项目于2013年6月获得资助。虽然Nemours Alfred I duPont儿童医院（Wilmington， DE）， Nemours儿童诊所- Jacksonville， Florida， Nemours儿童医院（Orlando， FL）和Nemours儿童诊所- pensacola， FL都有出色的临床试验参与记录，但Nemours cccop下的四个儿科项目的结合提供了更好的开发和利用资源。在资助的前六个月，Nemours的CCOP已经超过了前几年的癌症控制项目（目前在所有儿童肿瘤组项目中排名第四），并且超过了之前治疗试验项目的发展速度。Nemours基金会提供了必要的资源和支持，使Nemours CCOP能够在短时间内取得优异成绩。在建立Nemours CCOP时，我们认识到有必要向NCI社区肿瘤研究计划（NCORP）结构过渡。为了确保成功过渡，Nemours投资了最先进的数据管理系统、强大的质量管理计划，并招募了联邦政府资助的癌症护理交付研究人员，建立了Nemours医疗保健交付科学中心。Nemours NCORP将允许开发儿童癌症研究基础设施，以实现以下目标：1)通过有意义地利用电子资源和改进整个连续护理过程中的最佳做法，增加试验累积量，从而加速预防和治疗癌症及其症状的干预措施的发展；2)扩大和维护支持nci资助的癌症护理提供研究的生产性和高效率参与的基础设施；3)通过传播促进社区的优质护理；讨论和采用临床试验结果，并通过医生、家庭和社区教育。

DESCRIPTION (provided by applicant): Nemours is internationally recognized, multi-site pediatric healthcare system that is built upon a centralized, efficient and collaborative research infrastructure committed to improving the health of all children. In 2012, with over 25 years' experience in clinical trials research, the Nemours pediatric oncology sites formed the Nemours Community Clinical Oncology Program (CCOP), which was funded in June of 2013. While Nemours Alfred I duPont Hospital for Children (Wilmington, DE), Nemours Children's Clinics - Jacksonville, Florida, Nemours Children's Hospital (Orlando, FL) and Nemours Children's Clinic -Pensacola, FL all had outstanding records of clinical trial participation, alignment of the four pediatric programs under the Nemours CCOP provided better development and utilization of resources. In the first six months of funding, the Nemours CCOP has eclipsed Cancer Control accruals from previous years (now 4th among all Children's Oncology Group sites), and exceeded the previous pace of treatment trail accruals. The Nemours Foundation has provided necessary resources and support to permit the Nemours CCOP to excel in a short period of time. In building the Nemours CCOP, we recognized the necessary transition to the NCI Community Oncology Research Program (NCORP) structure. To ensure a successful transition, Nemours invested in a state-of-the-art data management system, a robust quality management plan, and the recruitment of federally-funded Cancer Care Delivery researchers to establish the Nemours Center for Healthcare Delivery Science. The Nemours NCORP will permit development of a childhood cancer research infrastructure that achieves the following aims: 1) to accelerate development of interventions to prevent and treat cancer and its symptoms by increasing accrual to trials, through meaningful use of electronic resources, and improving best practices across the continuum of care, 2) to expand and maintain an infrastructure supportive of productive and efficient participation in NCI-funded Cancer Care Delivery Research, and 3) to foster quality care in the community through dissemination, discussion and adoption of results from clinical trials, and through physician, family and community education.