Cancer genomics; Psychosocial, behavioural and ethical issues and outcomes, two inter-related longitudinal studies

癌症基因组学；

• 批准号: nhmrc : GNT1124749
• 负责人: A/Pr Ainsley Newson
• 金额: $ 50.67万
• 依托单位国家: 澳大利亚
• 项目类别: Project Grants
• 财政年份: 2017
• 资助国家: 澳大利亚
• 起止时间: 2017-01-01 至 无数据
• 项目状态: 已结题
• 来源: https://researchdata.edu.au/cancer-genomics-psychosocial-longitudinal-studies/1347434
• 关键词: Cancer; genomics; Psychosocial; behavioural; ethical

Over 1/3 of patients with cancer will die of their disease. Genomics offers hope of more tailored risk management and treatment, but will only realize its promise if patients understand, cope with, inform relatives about, and make informed decisions based on, genomic results. This study will be the first internationally to explore the knowledge, attitudes, preferences, experiences and outcomes of cancer patients who undergo genomic testing and their relatives, over time.

超过三分之一的癌症患者会死于他们的疾病。基因组学为更有针对性的风险管理和治疗带来了希望，但只有当患者理解、应对、告知亲属并根据基因组结果做出明智的决定时，基因组学才能实现其承诺。这项研究将是国际上第一次探索接受基因组检测的癌症患者及其亲属的知识、态度、偏好、经历和结果。