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Emerging team in rare diseases: achieving the "triple aim" for inborn errors of metabolism

Emerging team in rare diseases: achieving the "triple aim" for inborn errors of metabolism
罕见病新兴团队：实现先天性代谢缺陷“三重目标”
批准号：
247573
负责人：
Potter Elizabeth K
金额：
$108.58万
依托单位：
University of Ottawa
依托单位国家：
加拿大
项目类别：
Operating Grants
财政年份：
2011
资助国家：
加拿大
项目状态：
已结题
起止时间：
2011-08-01 至 2016-08-01
来源：
https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=247573&lang=en
关键词：
"Triple Aim" Comparative Effectiveness Health Service Delivery Models Inborn Errors Of Metabolism Newborn Screening Patient-Oriented Research Personalized Medicine Rare Diseases Reimbursement Policy

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中文摘要
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英文摘要
Our team proposes a program of research to position Canada as a world leader in evidence-informed health care for children with rare diseases, beginning with inborn errors of metabolism (IEM). We have a strong team with expertise in many areas of academic
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An innovative registry-based trials platform to improve clinical care, outcomes, and health policy for children with treatable rare diseases
  • 批准号：
    416065
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  • 资助金额：
    $200.63万
  • 财政年份：
    2019
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    Potter Elizabeth K
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    University of Ottawa
Catalyzing registry-based randomized comparative effectiveness trials for inherited metabolic diseases in children: establishing a core outcome set and data collection tools
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    University of Ottawa
Designing interventions to improve delivery of health care for children with inherited metabolic diseases: family and provider perspectives
  • 批准号：
    357123
  • 项目类别：
    Operating Grants
  • 资助金额：
    $53.78万
  • 财政年份：
    2016
  • 负责人：
    Potter Elizabeth K
  • 依托单位：
    University of Ottawa
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