Developing Effective Policies for Managing Technologies for Rare Diseases

制定有效的罕见疾病技术管理政策

• 批准号: 247572
• 负责人: Menon Devidas
• 金额: $ 105.64万
• 依托单位: University of Alberta
• 依托单位国家: 加拿大
• 项目类别: Operating Grants
• 财政年份: 2011
• 资助国家: 加拿大
• 起止时间: 2011-08-01 至 2016-08-01
• 项目状态: 已结题
• 来源: https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=247572&lang=en
• 关键词: Coverage Decision Making; Health Policy; Knowledge Translation; Rare Diseases

The number of promising technologies for rare diseases has grown recently, bringing new hope to patients. Simultaneously, they have challenged public policy makers who have to decide which technologies to fund. As the number of patients is small, most o

最近，针对罕见病的有前景的技术越来越多，给患者带来了新的希望。 与此同时，他们也对公共政策制定者提出了挑战，因为他们必须决定资助哪些技术。