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Overcoming barriers to developing, testing, and disseminating psychosocial and rehabilitation interventions in a rare disease context: Making patient-centered research for rare diseases a reality

Overcoming barriers to developing, testing, and disseminating psychosocial and rehabilitation interventions in a rare disease context: Making patient-centered research for rare diseases a reality
克服罕见疾病背景下开发、测试和传播心理社会和康复干预措施的障碍:使以患者为中心的罕见疾病研究成为现实
批准号:
315662
负责人:
Kwakkenbos Linda
金额:
$10.2万
依托单位:
依托单位国家:
加拿大
项目类别:
Fellowship Programs
财政年份:
2014
资助国家:
加拿大
项目状态:
已结题
起止时间:
2014-09-01 至 2016-09-01

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中文摘要
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英文摘要
Internationally, National Plans for Rare Diseases have emphasized the emotional, physical, and management challenges that people living with a rare disease face, and the dramatic lack of resources to support effective coping. Self-management programs are
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