A comprehensive study of the natural history of OPMD: An essential step towards clinical trial readiness and evidence-based interventions

OPMD 自然史的全面研究：迈向临床试验准备和循证干预的重要一步

• 批准号: 445616
• 负责人: Gagnon Cynthia
• 金额: $ 59.8万
• 依托单位: Universit de Sherbrooke
• 依托单位国家: 加拿大
• 项目类别: Operating Grants
• 财政年份: 2021
• 资助国家: 加拿大
• 起止时间: 2021-04-01 至 2026-04-01
• 项目状态: 未结题
• 来源: https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=445616&lang=en
• 关键词: Dysphagia; Metrological Properties; Mobility; Muscle Strength; Natural History Study; Oculopharyngeal Muscular Dystrophy; Participation Restrictions; Physical Impairments; Walking Capacities

This study will address the impact of oculopharyngeal dystrophy in the lives of those affected. In addition to dysphagia, our team will document several characteristics related to their physical performance, such as walking capacities and muscle strength.

本研究将探讨眼咽营养不良对患者生活的影响。除了吞咽困难，我们的团队还将记录与他们的身体表现相关的几个特征，如步行能力和肌肉力量。