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Determining "acceptable uncertainty:" A case study of uncertain diagnosis in cystic fibrosis newborn screening

Determining "acceptable uncertainty:" A case study of uncertain diagnosis in cystic fibrosis newborn screening
确定“可接受的不确定性”：囊性纤维化新生儿筛查中不确定诊断的案例研究
批准号：
206172
负责人：
Marshall Jennifer A
金额：
$7.65万
依托单位：
University of Toronto
依托单位国家：
加拿大
项目类别：
Studentship Programs
财政年份：
2009
资助国家：
加拿大
项目状态：
已结题
起止时间：
2009-10-01 至 2012-10-01
来源：
https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=206172&lang=en
关键词：
Bioethics Communication Of Uncertainty Genetic Testing Health Services Research Healthcare Ethics Newborn Screening Population Health Risk Communication Uncertain Diagnosis Uncertainty Measures

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英文摘要
Newborn screening (NBS) is used to identify infants with treatable disorders so that they may benefit from early detection and treatment. Cystic fibrosis (CF), determined by genetic testing, is often part of NBS programs because early diagnosis can improv
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