Designing and deploying a national registry to reduce disparity in access to stroke treatment and optimise time to treatment

该项目旨在设计和开发一个接受挽救生命治疗的中风患者的国家临床登记处。该登记处的长期目标是帮助减少居住在加拿大农村社区的患者得到的较差护理。该登记处将为跟踪和分享加拿大200多家中风医院的表现提供基础。登记处将有几个关键目标：1。设计一个软件应用程序，可以方便地在急诊科收集数据。设计一个面向患者/家属的软件应用程序，允许他们提供自我识别的详细信息。为注册中心设计一个患者报告的结果测量门户4。设计引人入胜的交互式数据可视化网站性能和数据完整性5。将登记册分发给加拿大200多家中风医院。衡量和缩小加拿大城乡医院在为中风患者提供挽救生命的治疗方面的差异。这项工作将与以下两个组织合作完成：美敦力：一家大型医疗器械公司，设计和制造用于中风患者血凝块回收/清除的设备。Lumiio：一家专门从事病人登记和真实世界数据收集系统的小公司。

This project aims to design and develop a national clinical registry of stroke patients that receive life saving treatment. The long-term vision of this registry is to help reduce any inferior care received by patients that reside in rural communities compared to urban areas of Canada. The registry will provide a basis to enable tracking and sharing of performance with more than 200 stroke hospital across Canada.The registry will have several key objectives: 1. Design a software application that allows for easy data collection in the emergency department2. Design a patient/family facing software application that allows them to provide their self-identification details3. Design a patient reported outcomes measure portal for the registry4. Design engaging interactive data visualizations of site performance and data completeness5. Distribute the registry to over 200 stroke hospitals across Canada6. Gauge and reduce differences between rural and urban hospitals in access to life saving treatment for stroke patients in CanadaThis work will be completed in partnership with the following 2 organizations:1. Medtronic: a large medical device company that designs and manufactures devices for clot retrieval/removal in stroke patients.2. Lumiio: A small company that specialized in patient registries and real-world data collection systems.