Patient education in allogeneic hematopoietic cell transplant: what patients wish they had known about quality of life.
Patient education in allogeneic hematopoietic cell transplant: what patients wish they had known about quality of life.
复制标题
患者对同种异体造血细胞移植的教育：患者希望他们对生活质量了解什么。
DOI：
10.1038/bmt.2013.158
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发表时间：
2014-02
影响因子：
4.8
通讯作者：
Pidala J
中科院分区：
文献类型：
--
作者：
Jim HS;Quinn GP;Gwede CK;Cases MG;Barata A;Cessna J;Christie J;Gonzalez L;Koskan A;Pidala J
Quality of life (QOL) is increasingly recognized as an important clinical outcome of hematopoietic cell transplantation (HCT), but patient education is often overlooked. The goal of the current qualitative study was to examine education regarding post-HCT QOL from the patient’s perspective. Allogeneic HCT recipients participated in one of four focus groups. Participants were asked to recall what they had been told about post-HCT QOL as they were preparing for transplant, how their QOL differed from what they expected, and how to educate future patients about post-HCT QOL. Verbatim transcripts were coded for both a priori and emergent themes using content analysis. A total of 24 patients participated (54% female, mean age 51, range 23-73). Participants frequently expressed the desire for additional education regarding post-HCT QOL, particularly late complications. They noted that late complications were often unexpected, had a profound impact on their QOL, and threatened their ongoing sense of recovery. They emphasized that the timing, content, and format of education regarding QOL should be flexible to meet their diverse needs. Findings from the current study draw attention to the importance of patient education regarding post-HCT QOL as well as additional QOL research designed with patient education in mind.
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影响因子：
120.7
作者：
Syrjala, KL;Langer, SL;Martin, PJ
通讯作者：
Martin, PJ
影响因子：
4.8
作者：
Majhail NS;Rizzo JD;Lee SJ;Aljurf M;Atsuta Y;Bonfim C;Burns LJ;Chaudhri N;Davies S;Okamoto S;Seber A;Socie G;Szer J;Van Lint MT;Wingard JR;Tichelli A;Center for International Blood and Marrow Transplant Research;American Society for Blood and Marrow Transplantation;European Group for Blood and Marrow Transplantation;Asia-Pacific Blood and Marrow Transplantation Group;Bone Marrow Transplant Society of Australia and New Zealand;East Mediterranean Blood and Marrow Transplantation Group;Sociedade Brasileira de Transplante de Medula Ossea
通讯作者：
Sociedade Brasileira de Transplante de Medula Ossea
影响因子：
45.3
作者：
Syrjala, KL;Langer, SL;Martin, PJ
通讯作者：
Martin, PJ
影响因子：
7.9
作者：
Rimer, Barbara K.;Kreuter, Matthew W.
通讯作者：
Kreuter, Matthew W.
影响因子：
6.5
作者：
Pidala J;Anasetti C;Jim H
通讯作者：
Jim H