CAREER: Co-designing a Service Exchange Model for Sustaining Community-based Respite Care

该项目将导致对有效的在线服务交换机制的新理解，以促进服务不足和弱势群体的临时性护理。临终关怀可以为初级照顾者提供一个机会，让他们从长期为生病或残疾的家庭成员提供护理工作中休息一下，并鼓励他们参与劳动力市场。尽管它有好处的方面，但在接受和提供临时性护理方面存在诸如财政、技术、技能和社会抑制等障碍。这项研究将调查社会技术因素，这些因素对于开发一个负担得起和可获得的临时性护理服务交换平台至关重要，该平台利用当地社区内共享的护理需求。调查结果将导致开发一个服务交换平台，促进为残疾人和慢性病患者提供临时性护理服务匹配、协调和持续护理支持。综合研究和教育计划将开展社交媒体推广，改革本科生和研究生水平的课程，以提高对照顾者负担方面的性别差异的认识，将照顾者与社区资源联系起来，提供临时性护理技能发展，并提供关于技术使用、护理管理和护理过渡的在线培训和最佳实践指南。这项研究将推进以负担得起和可访问的社区临时性护理服务交流平台的设计。三组活动将有助于我们理解社会技术系统的设计和使用，这些系统旨在促进临终关怀服务交换、互惠、技能发展和有限计算机技能参与者的访问。首先，研究将通过对护理接受者、初级照顾者、二级照顾者和临时性照顾者的访谈，评估导致基于社区的临时性护理的障碍和促进者，然后与这些利益相关者群体共同设计研讨会。其次，将开发一个服务交换平台原型，以满足服务不足和脆弱社区的喘息护理需求，包括迭代的以用户为中心的设计和可用性测试。第三，为期12周的试验研究将评估临终关怀服务交流平台在减轻照顾者负担、促进感知信任以及提高患者、初级照顾者和临时性照顾者在照护和护理过渡期间的护理质量方面的可行性和初步效果。这项研究将提供初步证据，说明以社区为基础的暂缓护理网络是否可以对缓解长期存在的照顾者负担问题产生影响。这一奖项反映了NSF的法定使命，并通过使用基金会的智力优势和更广泛的影响审查标准进行评估，被认为值得支持。

This project will lead to a novel understanding of effective online service exchange mechanisms for facilitating respite care among underserved and vulnerable populations. Respite care can provide a chance for primary caregivers to take a break from their long-term caregiving work for sick or disabled family members, as well as encourage them to engage in workforce participation. Despite its beneficial aspects, there are barriers such as financial, technical, skill-based, and social inhibitions to receiving and providing respite care. This research will investigate the sociotechnical factors that are crucial for developing an affordable and accessible respite care service exchange platform that leverages the shared caregiving needs within a local community. Findings will result in the development of a service exchange platform that facilitates respite care service matching, coordination, and ongoing care support for people with disabilities and chronic conditions. The integrated research and education plan is to conduct social media outreach, revamp undergraduate and graduate level courses to promote awareness of gender disparities in caregiver burden, connect caregivers to community resources, provide respite care skill development, and offer online training and best practices guidelines on technology use, care management, and care transition.The study will advance the design of affordable and accessible community-based respite care service exchange platforms. Three sets of activities will contribute to our understanding of design and usage of sociotechnical systems that aim to facilitate respite care service exchanges, reciprocity, skill development, and access for participants with limited computer skills. First, the research will assess the barriers and facilitators that lead to community-based respite care, through interviews of care recipients, primary caregivers, secondary caregivers, and respite caregivers, followed by co-design workshops with these stakeholder groups. Second, a service exchange platform prototype will be developed to address the respite care needs in underserved and vulnerable communities, involving iterative user-centered design and usability testing. Third, a 12-week pilot study will evaluate the feasibility and preliminary effectiveness of the respite care service exchange platform on reducing caregiver burden, facilitating perceived trust, and improving care quality of patients, primary caregivers, and respite caregivers during caregiving and care transition. This study will provide preliminary evidence as to whether a community-based respite care network can have an impact on alleviating the persistent problem of caregiver burden.This award reflects NSF's statutory mission and has been deemed worthy of support through evaluation using the Foundation's intellectual merit and broader impacts review criteria.