Research on Advance directives of Amyotrophic Lateral sclerosis Patient and QOL

肌萎缩侧索硬化症患者的预先指导与生活质量研究（1）优点（多个答案）的预先指令是命令（18%"为了实现他的希望而进行会谈"，16%"符合他/她的要求，先进的医疗"，15%"分享自主决定的内容"，14%"他/她，家人，患者回答"不需要强迫治疗"的占12%（N = 300）。护士（N = 305）和医生（N = 265）的回答基本相同。(2)虽然预防因素预诊指示不传播的顺序是"只有医生可以决定治疗策略"、"没有习惯自主决定"、"对决定内容不了解"、"形式不规范"、"没有法律的依据"，在这位医生身上发现了一种倾向，即认为"没有法律的依据"是值得怀疑的。(3)关于预先指示传播的政策，虽然（多个答案）是11%的命令“检查更新的内容，并重写”在一个病人的回答24%的“信息是实质性的”，和18%的“促进通知”，其次是19%的“促进通知”，医生重视“法律依据”17%。(4)虽然是预嘱的表述方式，但在患者回复中，其顺序是"口头"、"文件"、"医院原件"、"手写备忘录"，文件大多已与口头匹敌。最多为3次，尽管约有30%的患者回答存在重写Advance指令内容的情况。

Research on Advance directives of Amyotrophic Lateral sclerosis Patient and QOLResult: (1)The merit (multiple answers) of Advance directives is order (18%"talks are made in order to fulfill his hope", 16% "it complies with his/her request and medical treatment is advanced", 15%"contents of self-determination are shared", 14% "that communication of his/her, family, and medical stuff becomes good", and 12% "it is not forced medical treatment which is not desired" ), in patients' reply (N=300). It is the same as that also of nurses (N=305) and doctors (N=265) reply almost. (2) Although the prevention factor (multiple answers) through which Advance directives do not spread was the order of "only a doctor may decide treatment policy", "it not having got used to self-determination", "it not being well-known to a decision content", "the form not being standardized", and there "there being no legal basis" in the patient reply, the tendency to regard as questionable what "no legal basis is" was seen in the doctor. (3) About the policy of Advance directives spread, although (multiple answers) are 11% of order "which checks renewal of contents, and rewriting" in a patient reply 24% "information is made substantial", and 18% "which promotes a notice", subsequently to 19% "which promotes a notice", the doctor attaches importance to "legal-basis" 17%. (4) Although it is the presentation method of Advance directives, in the patient reply, it is the order of "oral", a "document", "the original form of a hospital", and a "handwriting memorandum", and the document has rivaled oral mostly. Maximum is 3 times although about 30 % has answered by the patient reply that the existence of rewriting of the contents of Advance directives.