Quality evaluation and improvement on educational and support program for cancer patients and their families

1)调查癌症患者及其家属出院后对支持项目的需求。结果65.2%的患者(n=158)期望参与支持计划。2)他们期望从支持计划中获得以下信息：a)身体状况和治疗的信息，b)不安和焦虑的应对方式，c)如何解决工作和经济困难，d)姑息治疗的信息。3)癌症患者自由描述他们的经历，并进行定性分析。结果发现，癌症患者的心理状况(抑郁、消极、生活不确定等)、身体状况与日常生活、患者与家庭的关系、社会生活等方面存在以下问题。4)对调查结果进行了修订。此外，我们还召开了进度会议，以提高程序的质量。对癌症患者及其家属的支持计划的实施过程和结果进行评估：1)癌症患者之间的交流评价得分增加；2)承认“与有同情心的人在一起轻松相处”和“提高对疼痛或困难的应对能力”的效果。

1. The purpose of this research was to have improved the quality of the support program intended for the cancer patient and the family.1) We investigated cancer patient and family's needs for the support program after leaving hospital. As a result, 65.2% of the patients( n =158) expected participation in the support program.2) They expected the following information to be obtained from the support program ; a) information on physical conditions and treatments, b) coping way of uneasiness and worry, c) how to settlement of work and economic difficulties, d) information on palliative care.3) The cancer patients freely described their experiences those were qualitatively analyzed. As a result, the following matters have been found from the cancer patient's experience ; a) mental (depression, negation, uncertainty for life and so on), b) physical condition and daily life, c) relations between patient and family, and social life.4) The program and the teaching materials were made revised on the investigation results. Moreover, we held the progress meeting to improve the quality of the program.2. The support program to the cancer patient and the family was evaluated about the process and the outcome.1) The evaluation score of "exchange among cancer patients" for which the cancer has increased.2) And, the effect concerning "ease spent with companion who shares feelings" and "improvement of coping ability to pain or difficulties" were admitted.