SDH Portal (HORIZON 2030)

最近提交给皇家医学会杂志的一篇学术论文提出了一个自驱动医疗(SDH)在线平台的基本架构，该平台可以支持个人的个人健康和福祉之旅。该门户将允许个人使用手机应用程序、平板电脑、计算机或蓝牙设备记录他们自己生成的数据(例如，他们的感觉如何、家庭监测的血压读数等)，并将这些数据‘推送’到一个安全的SDH门户，该门户保存他们的所有健康记录，包括在更广泛的医疗系统中生成的记录。然后，SHD门户可以提供个性化的反馈和可操作的见解(例如，个性化的风险评分、人工智能辅助的临床指导、轻推和游戏化等)，以向自助者提供他们可以用来帮助改善其身心健康和福祉的可操作的洞察力。在尝试开发具有此功能的国家SDH门户之前，需要克服许多潜在的障碍，包括与以人为中心、访问、数据、治理相关的考虑，以及如何可持续地为此类门户提供资金以造福公众和患者。同时扩大业务和SDH领域的增长。我们建议与广泛的利益相关者合作，通过帮助描述未来以人为中心的SDH门户可能是什么样子，有助于释放SDH议程的潜力。与其专注于特定的技术、平台或产品，我们想通过另一种方式来询问目标服务用户(即患者和不同年龄段和各行各业的人)他们希望门户是什么样子，以及它应该具有什么功能来帮助他们进行个人自我护理。我们正在寻求公共资金，以建设性地与广泛的利益相关者(包括社区成员、少数族裔群体、技术提供商和LinkedIn上的SDH开放顾问组成员)进行接触：1\确定以人为中心的SDH门户2的显著特征。评估英国在20303年前建立全球首个以人为本的SDH门户网站的准备情况。为英国的SDH门户议程制定商业案例阐明以人为中心的SDH门户的可取特征，目标用户和服务不足的群体可以帮助政府和卫生组织改善不同年龄和不同阶层人群的健康状况，同时控制成本并解决EDI、升级和净零等优先领域。

A recent academic paper submitted to the Journal of Royal Society of Medicine proposed a basic architecture of a Self-Driven Healthcare (SDH) online platform that could support individuals in their personal health and wellbeing journey. The portal would allow individuals to record their own self-generated data (e.g., how they feel, blood pressure reading from home monitoring, etc.,) using a phone app, tablet, computer or Bluetooth device and to 'push' these data onto a secure SDH Portal which holds all their health records, including those generated in the wider healthcare system. The SHD portal could then provide personalized feedback and actionable insights (e.g., personalized risk score, artificial intelligence-assisted clinical coaching, nudges, and gamification etc.,) to empower the self-carer with actionable insights they could use to help improve their mental and physical health and wellbeing.There are many potential barriers that need to be negotiated before attempting to develop a national SDH portal with this functionality, including considerations related to person-centredness, access, data, governance, and how such a portal could be sustainably funded for public and patient benefit, whilst expanding businesses and growth in the SDH arena.Our proposal for collaborative working with a wide mix of stakeholders will help unlock the potential of the SDH agenda by helping characterize what a future person-centred SDH portal could look like. Rather than focus on a specific technology, platform or product, we want to go about this another way and ask the intended service users (i.e., patients & people across the age groups and from all walks of life) what they would like the portal to look like and what functionality it should have to help them in their individual self-care journey.We are seeking public funding to engage constructively with a wide mix of stakeholders (including members of the community, ethnic minority groups, technology providers and members of SDH Open Advisory Group on LinkedIn) to:1\. Identify the salient characteristics of a person-centred SDH Portal2\. Assess UK readiness to establish a first-in-the-world person-centred SDH Portal by 20303\. Develop the business case for SDH Portal agenda in the UKClarifying the desirable characteristics of a person-centred SDH Portal with intended users and underserved groups could help governments and health organisations improve health outcomes in people from across the ages and from different walks of life, whilst also controlling costs and addressing priority areas such as EDI, levelling up and Net-Zero.