Alzheimer's Disease Research Center

最近流行的严重急性呼吸综合征冠状病毒2型(SARS-CoV-2)，或冠状病毒病 (新冠肺炎)，颠覆了世界的许多东西。纽约市和哥伦比亚大学欧文医学中心 一直是COVID全国和国际中心的医院。心理社会性和功能性 新冠肺炎对当地民众的影响是多方面的。受轻度认知障碍影响的人群 损害和痴呆(包括阿尔茨海默病(AD)和阿尔茨海默病相关痴呆 (ADRD)面临高病死率和必要的社会疏远政策后护理的重大中断 适用于高危人群。这些变化强加了新的和意想不到的个人和专业照顾者 菌株。具体地说，在我中心照顾的人群中发生了以下情况： A)由于其自身的社会距离而失去与专业照顾者的潜在直接联系 要求、新的人照顾责任、个人疾病 B)出于对签约新冠肺炎的担忧，在当地环境中进行有限的短途旅行，以及 C)结束各种正式和非正式的社交日活动。 因此，在与世隔绝的时期，痴呆症患者很大程度上被绑在家里， 被混乱所迷惑，并感知和表达他们的家人所经历的压力。此外，许多人 这些家庭照顾者必须在远程工作责任和家庭照顾之间取得平衡，通常在 同样的家。不幸的是，其中一些情况是站不住脚的，并导致了疾病， 我们的一些患者和研究参与者以及他们的家人住院和死亡。 本提案将探讨老年人的经历、知识、态度、就医行为以及 与纽约市新冠肺炎疫情有关的心理社会支持，特别是在认知正常的成年人中 在ADRC中被跟踪，以及那些患有病理性认知老化的人的护理伙伴 作为社会经济决定因素。据推测，许多成年人将经历不利的后果， 受到个人和专业照顾者期望的影响，并在不同程度上展示了新冠肺炎 具体的求医行为以及受影响的护理，特别是高龄或护理方面的行为 对于其他年龄较大的人、少数民族和处于不利地位的社会经济群体。 更好地了解当地新冠肺炎期间和之后的寻求健康行为及其影响因素 无论是在当地还是在全球，只要社区传播日益扩大，这种流行病就会产生潜在的影响。 一种有效的调查工具，其模块被有目的地设计来捕捉多代影响，可能 与未来一段时间相关，直到当前的大流行病过去，以及未来的大流行病或其他 限制社会参与和人口流动的紧急情况。

The recent pandemic of severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), or coronavirus disease (COVID-19), has disrupted much in the world. New York City and Columbia University Irving Medical Center have been the hospital at the COVID national and international epicenter. The psychosocial and functional implications of COVID-19 on our local population are myriad. The population affected by mild cognitive impairment and dementia (including Alzheimer’s Disease (AD) and Alzheimer Disease-related dementias (ADRD)) faces high case fatality rates and major disruptions in care following necessary social distancing polices for high risk persons. These changes have imposed new and unexpected personal and professional caregiver strains. Specifically, the following have occurred in the population for whom our center provides care: a) the loss of potential direct contact with professional caregivers due to their own social distancing requirements, new person caregiving responsibilities, personal illnesses b) limited excursions in the local environment out of concerns, for contracting COVID-19, and c) closure of myriad social day activities, both formal and informal. As a result, during periods of social isolation, persons with dementia are largely bound to their homes, confused by the chaos, and perceive and express the stress their family members experience. Moreover, many of these same family caregivers must balance remote work responsibilities and family caregiving, often within the same home. Unfortunately, some of these circumstances are untenable and have led to illness, hospitalization, and death of some of our patients and research participants, as well as their family members. This proposal will explore the experiences, knowledge, attitudes, healthcare-seeking behaviors, and psychosocial support related to the NYC COVID-19 epidemic, particularly among adults with normal cognition being followed in the ADRC as well as care partners for those persons with pathological cognitive aging, as well as socioeconomic determinants. It is hypothesized that many adults will have experienced adverse outcomes, been impacted in their personal and professional caregiver expectations, and variably demonstrate COVID-19 specific health seeking behaviors, as well as had care impacted, particularly those of advancing age or caring for others with advancing age, in ethnic minorities, and disadvantaged socioeconomic groups. Better understanding health-seeking behaviors and determinants during and after the local COVID-19 epidemic has potential implications both locally and potentially globally wherever community spread is growing. An effective survey instrument, with modules purposefully designed to be capture multigenerational effects may be relevant to some time to come, until the current pandemic has passed, as well as future pandemics or other emergencies which restrict social engagement and population movement.