DNA data management portal: Development of the tools, features and safeguards to ensure the public can access, understand, manage and share their digital genetic information online securely.

我们是Sano Genetics，一家领先的创新数字健康平台开发商，专注于DNA和基因测序和数据。随着DNA测序市场-无论是公共的还是私人的(到2025年达到192亿GB；19%的CAGR-[联合市场研究][0]：2017)-持续增长，存储的个人健康数据量也在不断增长。虽然这为药物发现提供了新的机会，为目标患者群体提供了更快的途径，并降低了医学研究的招募成本，但它也引起了对个人隐私、健康数据如何使用、其所有权以及谁最终可以访问它以及持续多长时间的严重担忧。考虑到这一点，迫切需要开发工具和保障措施，以确保用户能够安全有效地访问、理解、管理和控制他们与谁共享他们的数字基因信息。我们与英国基因组学‘100,000基因组计划’和大型基因组数据分析公司Zetta Gentics合作，打算开发一种安全、以用户为中心的基因数据管理和同意平台，将数据的共享权和所有权重新掌握在用户手中，而不是收集数据的平台。[0]：https://www.alliedmarketresearch.com/dna-sequencing-market“

"We are Sano Genetics, a leading developer of innovative digital health platforms, focussed on DNA and genetic sequencing and data.As the market for DNA sequencing - both public and private (£19.2bn by 2025;19% CAGR-[Allied Market Research][0]:2017) - continues to grow, as does the volume of personal health data stored. Whilst this opens up new opportunities for drug discovery, providing quicker access to target patient groups and reducing the recruitment cost of medical research it also raises serious concerns in regard to personal privacy, how health data is used, its ownership, and who ultimately has access to it and for how long.With this in mind, there is an urgent need to develop the tools and safeguards to ensure users can access, understand, manage and control who they share their digital genetic information with securely and effectively.Working with Genomics England '100,000 Genomes Project' and big genome data analysts Zetta Genomics, we intend address with the development of a secure, user-centric data management and consent platform for genetic data that put the power to share and ownership of data back in the hands of users, away from the platforms that collect it.[0]: https://www.alliedmarketresearch.com/dna-sequencing-market"